Navigation

Xolair injections

I am happy to report that on 2/5 I will getting my xolair shot. It took my asthma doctor writing them a nasty letter. Also the hospital bill was like 50-60,000 dollars. I got the approval and then had to fight with CVS Specialty Pharmacy. They kept forgetting to put my medicine on the ups truck. Are you serious, I was to have a delivery date of January 19th, the January 26th, January 30th. After calling the incompetent idiots they said it would be at the Doctor's office on Feb 2nd. They told me if there was a problem they would call me. I said you better be calling me to say the medicine is on its way. I have been looking for the Pharmacy reporting agency.

17
165

Comments 17

  • K8sMom2002

    Middi, so glad you were able to get the Xolair approved, and how frustrating an experience you've had! 

    So you'll be able to get your Xolair shot at your regular doctor's office? Some folks have said they were required to have it at an infusion center. 

  • Kathy P

    Woohoo! I'm glad you got everything sorted out! I hope it helps – keep us posted!

  • Middi

    Yes my Xolair shots are working. I have not had to use my machine for 2 months. I still am on 4 inhalers. My doctor wants to start me on allergy shots, but he wants to wait a year. If anyone can get a Xolair shot you should. 

  • K8sMom2002

    Wow! I'm so glad that the Xolair is helping! What are some things you had to get used to with the shot? Do you still have to wait a long time after you get your shot?

  • LK

    @Middi,  That's wonderful that the Xolair is working for you!!  Hurrah!!  

    I just had my first Xolair shot earlier this week so am very hopeful it will help me as well.  How long did it take for you to notice an improvement?

  • Middi

    Pollen , dust mites, cat/dog dander, mold, roach poop, extreme cold and extreme hot weather. What is a girl to do? Found out June 30th I have copd. I was a little upset, but its mild and I can help keep it that way. My doctor put me on an 1800 calorie diet, so I can lose weight. He said that will help with my sleep apnea, diabetes, high blood pressure, and asthma. After going to the hospital for asthma exacerbation, and spending five days in the hospital. I will follow his orders

  • Melissa G

    Oh Middi! I am so sorry you ended up in the hospital!  How are you doing now? Did the doctor give you any new medications?

  • Middi

    Bekah I'm so sorry. What made you have to get a g-j tube?  Melissa I was on a regiment of prednisone for 5 days in the hospital (50) mg, then they sent me home with a step down of (5)mg for 13 days. I had to use my nebulizer every 6 hours. I have a pharmacist in the wellness center. I have to take stop smoking classes, and pulmonary rehabilitation  classes. I also have to keep track of my air out take-blow into this tube like thing. I will be using a pulse ox, and rollator so that I can sit and do things. I need to conserve my energy so that's where the rollator comes in. They have expressed, demanded that I have air conditioning in my apartment. I had to see my asthma doctor, pulmonary doctor, and today I have to see my primary care physician. It's a big change for me I have always been a mover and a shaker. My family is so wonderful they make sure I have everything that I need. They also (my nephew) especially make sure I take my treatments.

     

  • K8sMom2002

    Middi, that is a lot of big changes! But it sounds like you have a supportive family and medical team.

    I think the classes to help you stop smoking will really help — and also the pulmonary rehab will help as well. Do they have you on oxygen?

  • Melissa G

    Wow, Middi, that is a lot of changes! that is great your family is there for you! 

    As for my dd Bekah, she has a feeding tube because she is dysmotility. Her stomach doesn't function anymore. 

  • Brenda Silvia-Torma

    Middi, I'm so glad that you are out of the hospital and that you have a plan for steps forward! That is a lot of change, so it's great that you have your family and your healthcare team to help you!! Thinking good thoughts for you that you will feel better in days and weeks ahead. 

    Brenda