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Xolair and Chronic Hives

Hello all! Hope you had a nice holiday. I am just wondering if anyone that suffers from Chronic Hives has experience with the Xolair shot. I am about to submit my paperwork for the shot as the antihistamines are not working well, currently in the midst of a breakout of hives while on 20mg of prednisone.

Any insight or experience would be great to hear! 

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  • Jen

    @Britt421  I know that some of our members have been on xolair for various things, so they may have some insight to add for you.  @GigiGibson, @Middi, @Anne P can hopefully chime in.  

    How do you feel about possibly starting xolair?

  • Britt421

    @Jen

    My hives are very persistent so I am actually excited to try it. I know it can be either hit or miss, that's why I'm looking for some people with experiences. For me, it seems like an exciting prospect to look forward to so maybe life can go back to somewhat normal. 

  • K8sMom2002

    @Britt421, gentle hugs on the chronic hives — I get hives on occasion, and it's torment for me, so I can well imagine that you are excited at the prospect of a treatment plan!

  • Middi

    I am looking forward to getting back on Xolair for my severe asthma and allergies. I had to spend Christmas eve at the Hospital with a acute asthma attack. I had to put on antibotics,  steroids, up the use of my albuterol sulfate, my Ventolin inhaler every four hours and I have a humidifier. This attack drained all my energy, I hope that I can get back on my xolair, it does really help. Hope you get your treatments started soon good luck

  • Britt421

    @Middi

    I am so sorry to hear about Christmas Eve. I'm I'm glad you will be possibly getting back on Xolair. Thank you for telling me it works, it gets my hope up. Asthma is scary, I am sorry you have to deal with such extreme issues. 

    I just scheduled my first round of shots for next Wednesday, 1/3. I really hope it works to keep my hives away… My doctor just added montelukast to my daily regimen in the meantime, as well. It's very tiring dealing with these conditions! 

  • K8sMom2002

    Hugs, @Middi! That's no way to spend Christmas Eve! Do you know what triggered it? I hope you're feeling better!

    @Britt421, sending the very best of good your way for Wednesday and hoping that the Xolair will work. How often do your hives flare? Is there any rhyme or reason to when they do flare?

  • Britt421

    @K8sMom2002

    Thank you! There hasn't really been a day that I haven't had hives in the past 6 weeks. Maybe when I was on 60mg of prednisone. They mostly flare at night while I am sleeping so I wake up a lot to itching. My torso and arms are usually covered in hives. I am not sure if there is a trigger, I have hashimoto's disease so I think it has to do only with my autoimmune issues. I am wondering if going gluten free will also help. 

  • Megan Roberts

    @Britt421 hoping the Xolair provides relief for you. I don't have any experience with Hashimoto's but there is a lot of research backing up the gluten-free diet for it. Have you tried an elimination diet to see if it helps your symptoms? 

    @Middi so sorry you had to spend Christmas eve in the ER. How are you feeling today? Hope you are able to rest up and get your energy back soon.  

  • Britt421

    @Megan Roberts I have not tried an elimination diet yet, I am in the process of actually moving out on my own so it will be easier when I am living on my own. Just hope this all gets under control when I live on my own, then my first move is to go gluten free. 

  • Anne P
    Britt421 posted:

    @K8sMom2002

     I have hashimoto's disease so I think it has to do only with my autoimmune issues. 

    Hashimoto's can trigger chronic hives.  Have you talked to your endocrinologist about the hives?

    How are you doing?  Have the hives resolved?

     

  • Britt421

    @Anne P 

    When I was first coming down with the hives, my dermatologist ordered my blood work…then I realized that my thyroid was out of wack. The allergist had me go to my endo to up my dosage – that did not help anything. My endo wasn't very helpful either – she told me she hasn't really had any patients with this issue. 

    I am currently sitting in my allergist office, just got my 2nd Xolair shot. My hives have not resolved…some days are terrible and some days (like the past 3) I have almost none. It is so strange – there is no pattern to this mess. I am up and down on the prednisone too – restarting tapers over and over. I have no relief. I am so used to the hives by now that I just barely notice them anymore! They are a part of me! I just closed on my very first home on Monday and I am getting a new car today so I have so many things that I am excited about – that takes away from my noticing the hives!! lol thank god for life changes! 

  • Middi

    I am so sorry that you are going through this. I have never heard of anyone getting hives with the xolair shot. Have you contacted the company about this?  Maybe the hives will disappear after a couple more shots. Congratulations on the new house and car!!!!!

  • Britt421

    @Middi 

    Well, my doctor says and I do read online, that it is possible that it may take quite a few shots to make it go away. She keep urging me to go see a rheumatologist though, as I have elevated ANA factor…she says my hives are presenting like urticarial vasculitis in some places. 

     

    Thank you for the congratulations! I am so super excited!

  • K8sMom2002

    @Britt421, what a great attitude! Congrats on the house and the car … hoping that the Xolair will help. What is your hesitation about going to see a rheumatologist?

  • Britt421

    @K8sMom2002

    I don't have a hesitation – My mom has been seeing a rheumy for a few years and even my allergist said it may be better to go to one who knows my family history (mom has rheumatoid arthritis), however I called to make an appointment and since I am a new patient, they can't get me in until May. I am shopping around for one that I can actually go to sooner. Parts of me is afraid if there is another autoimmune condition, as I always read online (I know we shouldn't do this) that it's rare that one would only have Hashimoto's.

  • K8sMom2002

    Could you get in on their cancellation's list? Sometimes if you're willing to drop everything and go at the last minute, you can get in sooner. 

    I hear you on the dread of another diagnosis … still, knowing your enemy helps you find the tools to fight it! We're here for you — sending good to you about finding either a new rheumy who can take you sooner OR getting a cancellation on one that knows your family history. That last would be a really good thing.

  • Britt421

    @K8sMom2002 So, I ended up finding another Rheumatologist, but they could only get me in at the beginning of April – which is better than end of May. So, we will see what happens. I am scheduled for my next Xolair shot next Wednesday. 

    I have recently just moved into my new Apartment and for the first time in 3 months I had some relief. I had 5 straight days with not a sign of a hive – then I tapered down on my prednisone by 2.5 mg (to 10 mg) and had very small traces of hives (which is very promising). I am thinking that my hives are partially stress related. 

  • K8sMom2002

    That IS promising! I'm so glad things are better. And stress can definitely make asthma or hives worse, so I think you may be on to something.

    What kinds of things are you doing to help ease your stress? Whatever you've been doing must be working if stress is a trigger! 

    Enjoy that new apartment!

  • Melissa G

    @Britt421-have you seen the rheumatologist yet? How did the last xolair shot go? Congrats on the new apartment! That is so exciting! 

  • Britt421

    @Melissa G hi! My rheumatologist appointment is finally coming this Thursday. The Xolair is hit or miss, to. Be honest. My allergist has now started to treat me every 3 weeks with 2 shots instead of every 4 to see if that may help. I am still hovering from 7.5 to 15mg prednisone… Just can't get off of it. And thanks on the new apartment… This hives nonsense came at the worst time… I'm racking up the medical bills just as I moved in. Trying to stay positive! 

  • K8sMom2002

    @Britt421, how did the rheumatologist appointment go? I'm hoping the hives settle down and you'll figure out a way forward. I'm guessing the stress from it all can't be helpful, but we're here for you!

  • Melissa G

    @Britt421 I hope the appt went well and you have had a great weekend! Update us when you can. 

  • Britt421

    @K8sMom2002 @Melissa G

    Thank you for checking up on me.

    So, I ended up just getting some bloodwork done and they said they would call if there was anything of concern. Honestly, this rheumatologist did not seem to be too interested (as I already have a diagnosed autoimmune – Hashimoto's – that she obviously doesn't treat) and kept telling me that the hives are just a result of my high ANA. She said she believes that the hives are not a result of any other autoimmune disease and that I shouldn't have anything to worry about – she would usually see people with hives that have the Hashimoto's. So, unless there is any other autoimmune disease flaring up…she can't and won't help me…told me to continue with the allergist. She also basically told me that it is just a matter of finding a way to stop the hives and that for everyone it is different. I don't know what else there is to do. This coming Wednesday I will have my next Xolair shot, which is good…this past week was pretty good hive-wise – very few. I can't wait to tell the allergist about all of this and see what she has to say. One positive out of all of this is that I am finally seeing my weight come off (I started using Weight Watchers to try to lose the 15 lbs I gained in the past 5 months and I am already down 3 lbs in 2 weeks – the weight is a BIG source of stress for me). 

  • Melissa G

    I'm sorry the doctor wasn't very helpful! That is discouraging!   Will you see your allergist this Wed when you get the Xolair shot?

     joining Weight Watchers and losing weight!! That is fantastic! Great job! 

  • K8sMom2002

    Congrats on the weight loss and the fewer hives! Hugs on the less than encouraging visit … but I'm glad you have some good news to share with your allergist. 

  • Britt421

    @Melissa G

    Well, Dr now wants to try to give me 2 shots in 2 weeks now. I have hives today, which is unfortunate because I shouldn't have any since I have the meds in me. I just don't know what I can do next. Feeling defeated. Still waiting on my rheumatologist blood work too. 

  • K8sMom2002

    Hugs on the hives AND on feeling defeated. I'm hoping that you will get some relief and SOON! Will the rheumatologist's bloodwork results change up any of your meds?

  • AmandaMarie

    @Britt421 Hi there! This is my first time posting on this site. I am going through something similar. Have had hives for 7 weeks now. Allergist is saying it’s chronic hives at this point. Bloodwork showed no allergies, and the cause is unknown. I’ve found heat and polyester (or more fitted clothing) to trigger outbreaks. I’ve stopped wearing bras altogether and that’s seemed to help the area. Hives can take days to disappear and old ones will pop up when I have a new outbreak. They’re intensely itchy especially at night. I’ve found cool oatmeal baths and ice packs to help a bit. Taking Allegra in the morning and Zyrtec every night. Just filled out the paperwork for xolair. Wanted to check in on you and hear how you’ve been doing. Any improvement? I hope you’re living hive-free!

  • Melissa G

    Hi AmandaMarie, welcome to AAFA! So glad that you found us! 

    Oh my on the unexplained hives! That is terrible. Here is a resource for you: 

    Good luck on the xolair! 

  • Britt421

    @AmandaMarie

    Hello and welcome! I am so sorry you are going through this, it is such an annoyance and at times debilitating.

    So far I have had 8 or 9 (I think) Xolair treatments, and I finally seem to be doing much, much better. The main allergist that I see (along with the other one at the practice) have said that the hives I have are a challenging case (I take Allegra 2 x a day and Xyzal 1 x a day + Zantac 2 x a day, Singulair, Prednisone 2 x a day, and the Xolair – these didn't seem to be doing the trick for me) and there have been discussions about actually putting me on immunosuppressants like Cyclosporine, etc. (this discussion happened about 2 months ago), but they wanted me to continue my Xolair shots for a bit more time while having a slow slow taper of my prednisone (I am currently on 11mg until tomorrow when I will drop to 10 – tomorrow I also go to get my 10th Xolair treatment – my treatment periods have ranged from 2 shots every 4 weeks, to 2 shots every 2 weeks).

    We will make the decision tomorrow whether or not to continue on the Xolair or move to another treatment route. I am actually optimistic though, as I have been Hive for the past month (I haven't been able to say that since this started in Nov 2017), they said that sometimes the Xolair takes longer to work in some people and maybe for me there is light at the end of the tunnel. I don't seem to have any specific triggers, honestly – they are always just there – rheumatologist I saw told me it was probably because of my hashimoto's as my blood tests all came back perfect for any other Autoimmune at the moment. 

    I hope that the treatment can work for you…and I can tell you that there is a light at the end of the tunnel – you just need to find the right set of treatments tailored to you! As long as you find a great doctor to work with you, you will be fine! These two doctors have not given up on me and I am so grateful for them as I have heard horror stories of some doctors being dismissive. I don't know what I would do without their help. 

  • Britt421

    @Melissa G I realize I never answered your question about bloodwork…it took me over a month to get my results, terrible rheumy practice, I will never go back. I ended up having to contact the lab for my results and brought them for the allergist to read. All normal, even she is puzzled because my ANA factor was mow normal. So puzzling. 

  • Melissa G

    Uughh, Britt! I am sorry the lab work didn't show anything. That is super frustrating. 

  • AmandaMarie

    @Britt421 thank you SO much for getting back to me! I don’t personally know anyone who has gone through something like this, so being able to join this group is so nice. 

    Im so glad to hear you can see the light at the end of the tunnel. Great doctors are super important for this kind of thing. I first went to a dermatologist who didn’t seem very concerned about what I was going through. The allergist has been amazing and she continues to work with me. I’m waiting for the paperwork to go through before I can start the Xolair. 

    Have you found anything that triggers your hives? Mine seem to be heat and/or stress related. I’ve been trying to work on self-care and not getting worked up over every hive – realizing it’s out of my control right now and being accepting of my current situation. I’ve found aloe Vera gel, oatmeal baths and ice packs to help. Also use a steroid cream on the hives. Haven’t tried any diet changes yet, but my allergist did forward me a special diet that eliminates foods high in histamine.

    Have you found anything that helps you on a day to day basis? 

  • Britt421

    @AmandaMarie 

    You never know, you may end up coming across someone in your daily life who has or is suffering through this as well!! Turns out, one of my coworkers had chronic hives for the duration of her pregnancy 2 years ago and for some months after (I didn't know her then and she is better now), and also the CEO of the company that I work for told me that he has a good friend that is going through exactly what we are going through (what triggered hers was climbing a mountain!). But you are right, this group is great to have, as well. 

    I ended up seeing a derm too, and even though he was super helpful and was the first to order all of the major blood tests (saw him before the allergist), he told me at my follow up that an allergist would be best suited for this type of issue. Has your allergist recommended getting more bloodwork and seeing a rheumatologist to make sure there is no other autoimmune factor?

    As for any triggers, my hives have no rhyme or reason (sometimes if i get sunburned I will have hives in just that spot, or sometimes stress may give me one or two). I have no triggers that I can actually pinpoint, they seem to just come and go as they please. In the beginning, when it was the worst (I was one giant hive with my hands swollen and my feet swollen) I definitely took many oatmeal baths and used a lot of steroid cream. I am not sure how severe yours are, but what treatments are you on currently and are they not working at all? Is it just allegra and zyrtec? Have they given you prednisone to at least give you some relief? I am sorry if I am not of much help (mine were just so bad that nothing really helped which is why I am on so many medications), but the main thing that REALLY helps me is the prednisone (doctor doesn't want to take me off of it because it's the only thing they are responding to). For you, the advice that I can give, is just whenever you have an issue, do not hesitate to contact your doctor and voice your concerns (I hope they told you this)…some people are so dismissive of this issue because they can't understand what it feels like – if you feel like you need to change your medications or feel like you are not right – call the doctor. Also, try some mindfulness meditation, I find that this helps when I have stress and anxiety about the condition.Also, of importance, I carry an Epi-Pen too, as there is a risk for angioedema (I've only had one bout of lip swelling and that was before I saw my allergist, but this is just in case your throat gets swollen) – if you don't have one already, ask the allergist – part of my health anxiety was worrying about this until I got the epi-pen. 

    If you want to know my whole daily medication regimen for my hives so maybe you can discuss with your doctor, here it is:

    Morning:1 x Prednisone (dosage depends on what taper level I am at – currently 5mg in am) 1 x Allegra (Fexofenadine)1 x Zantac (Ranitidine)Noon:1 x Xyzal (Levocetirizine)

    Early Evening:1 x Allegra (Fexofenadine)1 x Zantac (Ranitidine)

    Dinnertime:1 x Prednisone (dosage depends on what taper level I am at – currently 5mg in pm) - I split dose my prednisone as I was getting sever hives at night. 

    Evening:1 X Singulair (Montelukast)

    At Bedtime:2 x 50mg Doxepin (this helped me with the itching at night, and also helped me sleep as I developed severe health anxiety from this issue) – this is an anti anxiety medication but also works as a powerful antihistamine. Sometimes I will take an extra Xyzal at this time if I am super itchy

    Again, I feel better now than I did back in Nov of last year – it's taken months but I am finally feeling like myself again (besides trying to lose the weight I gained while on prednisone – if you are put on this, be mindful of your eating and the hunger it causes). You are going to be ok! 

  • Brenda Silvia-Torma
    AmandaMarie posted:

    @Britt421 Hi there! This is my first time posting on this site. I am going through something similar. Have had hives for 7 weeks now. Allergist is saying it’s chronic hives at this point. Bloodwork showed no allergies, and the cause is unknown. I’ve found heat and polyester (or more fitted clothing) to trigger outbreaks. I’ve stopped wearing bras altogether and that’s seemed to help the area. Hives can take days to disappear and old ones will pop up when I have a new outbreak. They’re intensely itchy especially at night. I’ve found cool oatmeal baths and ice packs to help a bit. Taking Allegra in the morning and Zyrtec every night. Just filled out the paperwork for xolair. Wanted to check in on you and hear how you’ve been doing. Any improvement? I hope you’re living hive-free!

    Hi AmandaMarie! When I read your note, the first thought I had (because of the location and how it got better when you stopped wearing a bra) was that perhaps it's a latex-related issue. Some people have cell-mediated contact dermatitis (a latex allergy) or an irritant contact dermatitis (not a latex allergy) when their skin comes in contact with latex. If your allergist has not yet ruled out a latex issue, perhaps you could discuss with her/him and share AAFA's web page on .

     I hope you've been feeling better the past few days!

  • K8sMom2002

    AmandaMarie, it sounds like you are really working to get to feeling better! And yes, it is interesting how many people have experienced something and will share when we open up about it.

    I don't have chronic hives, but I've had bouts that are exercise induced when I eat certain foods … it is a miserable experience, so I feel for you having to endure it long term. I don't think anyone who hasn't gone through it can know the intense itching and misery … and the discouragement when the hives pop up for what seems no reason at all. 

    Britt, I hate that you had such a bad experience and had such trouble with getting your tests results. But hopefully the negative test is a good thing? I'm really crossing fingers, toes and eyelashes that you will get a doc who can figure this out for you!

  • AmandaMarie

    @Britt421Thank you so much for all this detailed info!!! I took a screenshot and will bring it up with my allergist the next time I go in. I talked to the xolair people on Friday and they said to expect a call early this week to confirm everything and then I should be good to go. 

    Right now I only take allergra in the morning and Zyrtec at night, but my allergist said I can start taking more than one as needed. I only did a three day course of prednisone and it did help, but then when it ended I stopped taking allergy meds for two days (because I thought I was “all better”) and then got a bunch of hives when it was humid and I ran errands in a polyester skirt. (Never again.) 

    I’ll also ask her about seeing a rheumatologist. We haven’t discussed it yet. 

    I was feeling a ton better the last two weeks. A lot of it has been mental. Then this weekend I had a best friend visit from out of town and we went to a concert yesterday (and walked around a bunch in the heat during the day). I was drinking and naturally woke up with a bunch of new hives today. I braced myself for that beforehand, but decided to just have fun and do what I normally would. Now I’m dealing with the outbreak, but at least I had a great time. Normally I’ve just been staying away from alcohol knowing it makes it worse (plus being on the allergy meds all the time kind of makes drinking a no go). 

    I think it’s really smart you’re on the doxepin. Sleeping has been a struggle the last few weeks. In the beginning I would sleep maybe 4 out of 7 nights (and not well). The last two weeks I slept pretty soundly every night. I hope that continues. It’s just always a bummer when you start getting better and less and less hives and think maybe it’s all going to be over and then another outbreak happens. I’m trying to not let myself get discouraged. 

    Do you think it’d be worth it for me to try the allergen elimination diet? It’s so strict and you’re supposed to follow it for three weeks to see if it works. I don’t appear to have any food allergies, but I think maybe a change in diet could contribute to less hives? Did you try anything like this? I can post the details of the diet she sent me if anyone is interested!

    Brenda, I did get tested for a latex allergy and although it came back negative, I do see a connection to uncomfortable fabrics (or fabrics that don’t breathe well) and the hives I get. So I’m definitely trying to wear mostly cotton and loose fitting clothing as much as I can. 

    And Cynthia, thank you for the kind words! It’s been rough for sure. But I’m hanging in there! I want to get back to working out again. Normally I work out three times a week, and have for as long as I can remember. But I’ve definitely stopped knowing the heat and sweat make it worse. I think getting to my old routine could be a good thing though. 

    Thanks everyone for the support!!! Hope you all had amazing weekends!

  • Melissa G

    Amanda glad you had a great weekend but it stinks that you are "paying" for it.  Have you been taking your allergy meds regularly again? 

  • Britt421

    @AmandaMarie

    Hi Amanda, have you gone to see the allergist again since you last posted? I spoke with my allergist about any sort of diet and she didn't seem to think that I necessarily needed to eliminate anything because it doesn't seem to be an allergy to food. I spoke with her about going gluten free, etc. I do think that eventually we all have to find what works best for us though (my allergists allow me to even tailr my prednisone dosage how i see fit if I have a flare). So, long story short, I never tried an elimination diet, maybe one day I will, it is just so strict. Do you think you will try it? There is also not just the elimination diet, but also the Autoimmune Protocol Diet, which is sort of the same, just for autoimmune issues. 

    As for Alcohol, I definitely find that sometimes alcohol aggravates my hives, not so much recently, though. I am able to actually have drinks and I am ok the next morning (maybe the xolair is really helping me finally). I stopped drinking for a few months when this started (at the advice of the allergist as alcohol can aggravate), but I just decided that I would rather let go and have fun sometimes, and just started to deal with it, lol. Maybe that's bad, but I don't have some weird condition to rule my life forever. 

    I just went to the beach yesterday, and I woke up with like 4 hives (so I think the sun sometimes has something to do with it, too). 

    Are you feeling any better?

  • K8sMom2002

    AmandaMarie, very interesting that you saw a connection between drinking and hives … sorry that a fun time out ended on such a note! Could you keep a journal of the things that tend to flare things up for you? Sometimes there's a pattern, and sometimes there's not.

    Britt421, ugh on the hives after your beach trip — but again, interesting about the possible connection between the sun and hives, as well as alcohol and hives. Some people DO have hives that are triggered by heat or pressure. 

    I'm curious … for either of you, is it any sort of alcohol, or is it a particular type of drink? For instance, if it's beer, then that would be wheat based. If it's a mixed drink, it could be some of the ingredients in the mixer. 

  • AmandaMarie

    Thanks for checking on me! I got my first Xolair shot on Tuesday morning. I saw the dermatologist on Thursday morning. She thought it could be cholinergic hives or dermographism (or a combination of the two). She did a shave biopsy but my skin was pretty calm when I saw her (Of course it flared up later that day when I was outside in the heat) so we may have to repeat it when I’m experiencing an outbreak. She said I should have results in about a week. The good thing is she was very patient and attentive and really put me at ease. I’m so glad I found a dermatologist I like and I think working with her and the allergist will put me on the right track. 

    The allergist said it could take until the third shot to really notice a difference but I’m definitely improving. Even when I have hives now they just feel calmer and less red and itchy than I’ve experienced in the past. I’m also starting a plant based diet tomorrow (splendid spoonful, a delivery service) because I don’t think it could hurt at this point. 

     

    The dermatologist also told me I could go up in my dosage of Zyrtec. I was only taking one at night and allergra in the morning. But then she said to stick to what I’ve been doing so we can really see if the xolair is helping. Aside from that, I’ve been using aloe from a real aloe plant after I shower every morning and using a tea tree oil soap and an oatmeal soap. Both of those things seem to be helping a bit. The great thing is I’ve been able to sleep at night. 

    @K8sMom2002 I’m trying to stay away from drinking for now but I’ve had outbreaks from red and white wine in the past. At the concert I was drinking a sparkling soda beverage that had tequila in it. I thought that would be better than beer or wine but I’m thinking the carbonation in the mixed drink could have done it. I drank tequila in margaritas another night and didn’t get hives. I do need to start writing down how I feel each day and noting what I did (and didn’t do). I was doing that before but then stopped. I’m also trying to accept that while I know heat and certain clothing are triggers for me, sometimes it just comes out of nowhere and I can’t control it! I’m trying not to obsess over it so much, although it’s definitely a mental battle where I have my bad days and my good days. 

    @Britt421 how have you been feeling? It sounds like the xolair could be helping you! I’m glad you are able to drink and enjoy yourself and still be for the next morning. And I totally agree about just living your life and not letting the hives dictate what you do with your free time. I’m trying to do that as well (although after the concert I’m avoiding alcohol for a little). I’m so glad I found this group. It’s really helpful to talk to people who can relate to what I’m going through!

  • Britt421

    @AmandaMarie Hi, I have been feeling ok. Just dropped my dosage of prednisone to 9mg for the next two weeks, naturally my body is responding by having a few hives pop out. I am curious, do you plan on continuing to see both the Derm and the Allergist in tandem? My derm. essentially told me that I should stick with the allergist because they would both treat the same exact way. I had originally gotten a skin shave biopsy too from the derm and it came back as just pruritis (the hives) with no other cause. I'm glad you have been able to sleep at night, I'm jealous! I'm glad the Xolair seems to be working for you, maybe we are both starting to finally get rid of this nonsensical condition!

  • Melissa G

    Amanda, glad you were able to get your first xolair shot. that is great that the derm was so attentive…that is huge! It is always good when you feel comfortable with a specialist. 

  • Britt421

    @Melissa G Hi, thanks for checking up. I am currently trying to get comfortable on 8mg of the pred. Just had my shots last Wednesday. I am having some hives, nothing significant, the DR said that I should be able to tolerate a few. I am now getting stressed because my hair is thinning. I brought it up to the Dr. on Wednesday because I am on so many meds, I am not sure what is doing it (Could be the Doxepin, the Prednisone, etc.). She think's its the Xolair. Can't catch a break. 

  • K8sMom2002

    So glad that the hives are in better control! Hugs on the hair thinning.

    I know that other folks on Xolair have mentioned hair-thinning. I'm glad you mentioned it to your doc.

    Some members have said that their bodies apparently got used to it and things got better. Our hair is such a huge part of our identities, especially for us ladies …