I am going to lose my mind and Bekah is going to scratch her skin until she bleeds…..
I never really knew how much the atarax was helping Bekah until the cardiologist had us discontinue it. Bekah was diagnosed with Long QT Syndrome and apparently atarax can make it worse. Something we don't want, however since we pulled the atarax Bekah is miserable.
We have increased the allegra dose and she is using two prescriptions creams to manage the eczema but nothing is really keeping it under control.
Because Bekah has a central line she cannot soak in the tub like she use to when she was little. She takes one shower/bath a week, with daily sponge baths. She lightly towel dries, uses her ointments and vanicream twice a day.
The cardio doesn't even want her taking benadryl but I end up giving her a small dose to help relief the itch enough so she can fall asleep at night.
During Bekah's next cardio appt, she will have an echo and ekg done so we shall see how she is doing since some meds were pulled.