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You VS Asthma – Who Won Today?

You logged in to the AAFA community and are reading this because asthma affects you. It affect you AND your family every•single•day.  Some days more than others….

Why did you log in today? What about asthma affected your life TODAY?

Did asthma keep you from doing what you wanted to do? Or was today a win for YOU and asthma took a back seat?

No matter if it's something big or small, share why you logged in today….

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Comments 136

  • Kathy P

    I'm calling today a "win"! Even though it's raining, which usually flares things for me, my cough has remained loose and my chest has not tightened up! My hope is that it's the new controller med and not just a fluke!

  • K8sMom2002

    for the win, Kathy P! Fingers crossed that it's not a fluke and you'll continue to improve. 

    Let's see … me vs asthma … I wound up having a mini attack after doing a too-enthusiastic sprint down my hall for some indoor exercise this AM. BUT it self-resolved, so that was good. I'm going to call it a win — because I didn't lose!

  • Mandy

    Asthma is winning today. I've got a ton of fuzz today so I am just chilling out/vegging out. Waiting for the meds to kick in. Guaif is on board and drinking plenty of fluids. 

    Kathy and Cynthia glad to hear today are wins for you both.

  • Kathy P

    for a win Cynthia! Self-resolving is always good!

    Boo on fuzz Mandy! 

    Things are still loose and coughable (is that a word?) Messaged doc last night call in new med (had a sample) which he did. BUT the pharmacy is out of stock 

  • Mandy

    In our world, I believe it is. Sorry that the pharmacy is out but hopefully they can get it soon!

  • K8sMom2002

    Coughable is DEFINITELY a word I would use. To me, it equals = cough that escorts junk out the door but doesn't trigger an attack. Hope the pharmacy gets meds in stock soon!

    Mandy, hoping the fuzz is taking a beating today and the weather is warming up. 

    No asthma attack this AM, but lungs are twitchy … so I guess I'll have to report back later on the outcome of any skirmishes.

  • K8sMom2002

    Well! I think I won over asthma yesterday … today, I'm not sure. My lungs are twitchy because DD is off of school today and has been cleaning up a storm so that a friend can come over and spend the night. Even though I'm not the one cleaning, my lungs are protesting. I think it's because she's used every. single. cleaning. product. at once — I usually space things out. 

    So for right now … it's Asthma 1, Cynthia zip. But hey, it's only the first half of the day or thereabouts. Time enough for me to retreat to the "locker room of life" and put together a campaign to tackle asthma.

  • Kathy P

    Hope you managed to keep things in control!

    I'm losing the battle today….I woke up with my eyes glued shut!  One of the rubber pieces on our master bath shower door tore. So, dh removed a piece of the door to get the rubber piece out last night. I think that disturbed all the molds that were collected in there. And I got to sleep with that since the master bath is in the corner of our bedroom! My lungs are not happy!

    How is everyone else doing today?

  • K8sMom2002

    Kathy P, hope you're doing better today and the molds are no more. 

    Wouldn't you know that my trusted antiperspirant was out at the store, so I had to get another "flavor" in that brand? Ugh … it's a solid, not a spray, but for some reason this AM when my DH put it on (we share the same kind), it just snatched my lungs right out of my chest. It didn't bother ME when I put it on, but he SWORE he put nothing else on. 

    He did point out that different fragrances react differently on different people. 

  • Kathy P

    Ugh on the antiperspirant scent. I'm picky about what "flavor" deodorant dh gets. Any that bother me go in his travel toiletries!

    I had a HUGE win yesterday!  We all know that I struggle with  and clutter is a big factor. Well, I masked up and tackled our bedroom! All the dust bunnies under the bed, removing the piles of clutter on the floor. Wow, that was a LOT of built up dust!  I even made dh clean out his pile-o-junk! No allergy reactions, no asthma flare! 

    Now, some of the clutter merely got moved to different rooms, but a lot get tossed or put in the donate pile. I still need to do a clearing of one dresser and my night stand, but those are minor compared to what got accomplished! There are other rooms I need to tackle, but I'm encouraged that I can manage it!

  • Pljohns

    Today-asthma is winning-have been in the yellow with peak flows for over a week, albuteral isn't helping much-probably because I can't find the time to do nebs every 3 hours-so today, it's winning.

  • Kathy P

     Lynn – hope you can turn things around. Nebs every 3 hrs would be tough. Please do take/make the time to care for yourself. Any idea what triggered things today?

  • Pljohns

    this lovely weather is to blame for this round-it's 75 one day and 30 the next and windy all the time.  I cover my face from the wind but the awful changes are the total blame.

  • Kathy P

    Is it the temp changes? I recall you said allergies aren't a trigger. What do you use to cover your face? A mask or a scarf? I often wear scarves and then use them as a "filter."

  • GigiGibson

    I'm winning today! Y'all know I do budesonide and a duoneb at 6 am and sometimes performist like this am. Well, I have been doing an extra albuterol on the drive to work and find it gives me a better start to the day. Something about going out and being in the car ya know. I always mask and get the car temp right before I leave but it's fruitless. Anyway, the extra neb helps. I find that with attacks too back to back helps me. I was just at the bottom of my green zone this am. When I was just in the yellow last Monday I ended up in that bad attack. Another reason I'm thinking about the wing. 

  • K8sMom2002

    Yahoo, Gigi! Anything that gives you a better start has to pay off, right? 

    And I'm a big believer in seeking out patterns and figuring out how to prevent problems if at all possible. 

  • K8sMom2002

    PLJohns, cold can do me in, too, and those fluctuating temps are just maddening. I've tried Kathy P's scarf trick, and it really does help. Another thing that might help even if you're not allergic, is to wear a mask on the way out the door. I've found that whenever I wear a mask for dusty work, my breath gets warmed — in the summer, that's a problem, because warmer than usual air can trigger an attack, but in the winter it helps. 

  • Kathy P

    Glad you found another trick. I have issues in certain cars if there are molds in the ventilation system. My dh's old VW will throw me into an attack immediately if the weather is damp and I put the air on. Ugh!

    Still holding my own, but I highly suspect that may change by the end of the week. The rain has stopped and the pollens are just out.of.control! OMG, it's so bad! Need to keep up with the nasal rinses and cross my fingers!

  • K8sMom2002

    Gracious, Kathy P! I hope it will ease off. I'd hope for rain, but that wouldn't help you–it would just kick up the mold. 

  • GigiGibson

    I won today! Didn't need the inhaler today until 430 wrestling the car seat into the car then hopping gates and carrying a three year old trying to wear a mask in 80 degree weather due to pollen that looks like a fire  is burning with yellow smoke wafting. I kid u not. 

    We came home though and I didn't have any more problems:-)

  • Jen

    pljohns – We've had so much back and forth weather too.  No fun.  By the way, love how you are jumping right into the forums.

  • Kathy P

    Had a great weekend hiking and biking. Today asthma is kicking my behind! I think the rain triggered it – molds always pick up when it's just drizzling and damp. I've been coughing so much and so hard. My allergies/nose doesn't seem bad, it's all in my chest. 

    I constantly had to mute myself on phone calls today! I've got enough albuterol onboard to make me jittery. I've added Mucinex and cough suppressant. Hoping it kicks in soon. My chest hurts from coughing. It's that deep, thick mucus cough. Ugh. 

  • GigiGibson

    Kathy I'm so sorry. I'm glad I don't get wet chest stuff, sounds suffocating. I'm not helping am I? 

    My asthma has been behaving, or should I say I've been on it and it's in the cage. My problem is the prednisone side effects. I had so much swelling yesterday. I went to the doc today after work. I've been weak awhile and slowly getting where I can stand long enough to do a little but after Friday I had a huge set back and my arms and legs are so weak. Swelling felt in every crease and fold, my arms and legs. She did a bunch of labs, we will get results in the next 24-48. So today the prednisone won.

  • Kathy P

    It's not really wet – that's part of the problem. It's really deep and it's thick. Wet I can handle! I had managed to keep my cough at bay for several hours, but then it reared it's ugly head midway through a late meeting! Fabulous!

    Ugh on the pred side effects. How miserable! I sure hope you can push through to stay on the lower dose. Fingers crossed that the labs don't show anything bad.

  • GigiGibson

    Oh I feel tight and like the shoulders are rising but  the lungs aren't working. Feel like Crud is in there. Pf was great. On my third neb. 

  • Kathy P

    Oh no! Hope the nebs help.

    So far, the coughing is a minimum this morning. Hoping to keep it that! Medicate early and often! This was a good reminder to me to stay ahead of things.

  • Jen

    Gigi – Hope you hear back soon about the labwork…and that it leads to an easy fix.

  • K8sMom2002

    Hugs, Gigi and Kathy … that sounds miserable for the both of you! 

    Gigi, I hope you're able to continue weaning down on the prednisone …

  • Pljohns

    It's still early but so far, it's winning today-I think the stress of the week has caught up with me.  DH has been sick for 2 days with whatever crud is going around and it's been a tough week.  I can't stop coughing this morning and I'm getting tighter and tighter.  I'm just worn out-guess it's time to suck it up-literally-and hit the nebs-as I sit here in front of everyone I work with and patients in and out-there is no where to hide and do this one.

  • Pljohns

    Well-I did it-neb in front of everyone.  I know you all think it's stupid for me to actually accomplish that but it's a huge deal for me to finally be able to do that for the first time without hiding.

  • Kathy P

    Good for you! And it IS a big deal! There is a vulnerability with showing we have a serious medical condition. I used to even hide my inhaler use, but now I just pull it out and take a dose. Sometimes it surprises people because they didn't know I have asthma. Other times, it leads to a discussion. But usually, it's just no big deal. But I remember times when I knew I needed it and would find a way to excuse myself from a group or whatever to go take it! Now that just seems sill to me!

  • K8sMom2002

    PLJohns, I say on using that neb! I hope that with time, you will find your co-workers to be super understanding — and even tuning it out and not even noticing it. 

    I totally get not wanting to use a neb in front of others, to not want to draw attention to yourself, especially after enduring what you've had to in the past.

    My DD has really had to work on getting the confidence to advocate for herself about her food allergies. It's hard for her to feel like she's the center of attention.

    But as she does, she's spreading awareness and paving the way for others.

    I know that because we've been the lucky beneficiary of some other person with food allergies coming before us — sometimes we go into a restaurant and start to explain about food allergies, and the chef will say, "No problem. We've helped others. Tell me how you need it. Tell me what you need to keep you safe." 

  • GigiGibson

    Good for u PL! I use mine wherever. I had to step in back at church because hello u can hear the canister but my husband said why??? Just do it, so I do now. 

    I had a hard time masking caus kids ask mom why I have that on. I just tell them I am on medicine that makes me catch colds so I'm trying to stay well. They understand that and we all move on.

    im winning today so far NO proair. Wooo hoooo

  • Pljohns

    The clinical manager her could tell I was having issues with my asthma today and came in to see if I was OK.  I apologized for having to close the office door but told her what was up.  She offered to have the clinical staff answer the phones and told me to do whatever I needed to.  I got out at lunch and did grocery shopping-it was exhausting-and literally came running back because I knew I had patients waiting-she came in and saw me having a really hard time, closed the door and said she would have someone from the clinical staff come cover me.  I told her  no that I would be OK as soon as I took care of 2 patients I could do what I needed to.  I really appreciated her kindness-and really needed a coworker to be nice about it after the way this week has been.

  • Pljohns

    No weird looks or anything-they were very nice and I am grateful for how they were

  • Kathy P

    Yay Gigi! No ProAir is a big win for today!

    That's awesome that you have a such a caring supervisor  PLJ! And you got errands done! I'm impressed!

    So far, today is good. Initially, I forgot my morning meds, but I remembered at my first cough  I took a hit of albuterol on the second cough and things have been calm.

    I managed a 4.5mi bike ride yesterday – all flat, low speed, just around the neighborhood. It was a little rough, but I did it! I pretreated and was little jittery so that wasn't good. I need to remember to eat something too. I don't know why I get jittery from albuterol only if my blood sugar is low. I did continue to cough for a while after I got home. And I noticed that my HR stayed a bit elevated. Interesting data point – I've noticed in the past that sometimes my O2 will be OK, but my HR low.

  • GigiGibson

    It's hard to wave the white flag. ….show your underbelly, admit you are weakened. I hate it too, I understand.

  • Pljohns

    That is the hardest part for me-I've had the attitude since I was diagnosed 5 years ago that asthma wasn't going to run my life-that attitude landed me in the hospital 4 times. I know it has to change, but I can't seem to let it go and admit I need help.

  • Mandy

    I wish there was a manual on how to adapt and adjust to chronic illness! I struggle with pacing. Knowing my limitations and recognizing patterns is key for me. I remind myself and my husband that this may not always be the case but it's what I have to do to cope, recover, recoup, and not get into trouble. But then, I go away for the weekend and bam…I have literally slept 12hrs and am still tired. Coughing my face off and full of fuzz which contributes to the fatigue. Went shopping with my best ies this weekend and out for lunch. It was so nice to see them! I don't get out that often so today I will let the asthma win. 

  • Pljohns

    Hang in there Mandy-sometimes the time out with buddies is worth it-just some human contact where for a little while you don't have to think about anything but laughing and having fun.  It's been a very , very long time since I did that-and no one here in town to do it with.  Hope you are soon better and it sounds like you had a really good time.

  • Kathy P

    Hugs Mandy. Sorry you are paying today for your fun. Sometimes the trade off is worth it. 

    I too struggle with balance. For years, I tried to keep up with everything and usually wound up miserable. I didn't want to miss out. Lately though, the pendulum has swung the other way – I choose to not even try things out of fear that I'll wind up with my asthma making me miserable while trying to not make everyone else miserable or miss out because I couldn't keep up. This has actually been weighing on me a lot lately. 

  • GigiGibson

    Sounds like we all deal with the same battles, physical and mental, emotional. Do I push? Do I guard myself? Do I disappoint or do I sacrifice? I do t think about here is ecer an easy answer. I'm trying to guard my health and I see more and more others are guarding me too so many feel more empowered to say no. Even to the grandlady and that's tough. I have read so much about how meditation, self care, rest,sleep and those types of things are vital, necessary and even critical to calming inflammation on a variety of websites. I'm thinking if we hav so many other special. We'd then maybe we do really need more rest than the average person. I know a good attack wipes me out so an average day would warrant more rest than the average person. I'm going to try to be mindful of this and get more sleep.

  • K8sMom2002

    Hugs, Mandy … I hope you'll bounce back soon and give the fuzz the boot (and the boot the boot, too!) 

    I hate the either/or choice that we're all so often faced with. I say rest and recharge and let your doc know what's going on … 

  • Jen

    Gigi – I hear you about trying to get more sleep.  It can be so hard for me to go to bed at a good time, though.

  • Jen

    By the way, I think the topic of sleep/rest is a good one, so I started a thread just to discuss .

  • Pljohns

    Today-it's winning-the weather changed and dropped from 80's to 51 and my lungs don't like it.  I'm REALLY struggling this morning-been hitting nebs every 3 hours but my numbers were down over 120 points today and they are low enough I'm having a really hard time.  I was stuck in a 4 hour meeting and too afraid to use my neb so now I'm really hurting.  I'm back at my office now and have already hit one, so it's some better.  Cruddy day…

  • K8sMom2002

    Ugh, I hope the day treated you more kindly. I really, really hate it when the weather changes like that. It's never a good day for my lungs when it yo-yos.