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While I was nebbing I…….

If you are like me, some days you lose multiple 15-20 minutes periods of time…..day,  evening and night in order to do a nebulizer treatment. I hate having to use my work breaks to neb and to have to do one in the middle of the night but I have found activities that make the time pass and figured my friends here may have some funny or insightful ways they use this time as well. So, please share what's going on in your life when you are on pause for the next treatment. Thanks!

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  • Melanie Carver

    I think I am pretty boring. I Netflix.

    I can't wait to hear what others do!

    I would like to be able to do something like knit or crochet. The local Children's hospital accepts handmade blankets for kids who are admitted. But this is basically what I looked like that one time I tried to do arm knitting:

  • K8sMom2002

    Mel, I've tried several times to learn how to knit or crochet. The kitty above has a better end product than I do!

    GiGi, this is a GREAT idea! 

  • K8sMom2002

    Permits? Are you building something or is it to do with your real estate job? And yay for you telling your mom you love her!

  • Shea

    Haha, cute topic Gigi.

    Mel, knitting for charity is such a sweet thought to have. I would never have thought of that! Although, I wouldn't knit because… well there are a lot of reasons concerning Ability for sure, I'll leave it at that …. but just the idea of doing something charitable during that time is really cool.

    When I do my morning nebulizer, I make the bed, then I lay in it and try to meditate on… everything and anything, although, according to the local Buddhist monk and my former yoga instructor, the best thing to do is to empty all thoughts, just breathe, and think of nothing.

    I cannot imagine trying to talk on the phone because it is so loud and the mouthpiece is in.. I guess you can text or post… I have tried to watch TV during the evening nebulizer, but the neb is sooo loud, which means I have to put the closed captions on, and that just is not as much fun. So, I usually spend the time meditating… although I am working on the "nothing" part, it really does help me to organize my thoughts/prayers/ideas/ideas/wishes. Sometimes I just focus on how I wish I could breathe this nicely all the time: In … and.. out… easier and easier each time.

  • K8sMom2002

    Shea, I am always SO impressed with people who can pull off meditation. My brain is so wired that my thoughts hop around like a jack rabbit! So I'm the kind of person who could REALLY benefit from regular meditation or prayer time or just being STILL, and at the same time, the very hardest person to get to do it.

    I have heard, though, that if a person can manage the "nothing" part for even a fraction of a minute and she works at it, she WILL get better at it. 

  • Kathy P

    Meditating is a great use of that time. I don't use my nebulizer very often – I usually am OK with inhalers. But I do try to take some time after I take the dose to settle and let it take effect. I'm going to have to try meditating. I've learned several different methods over the years – guided meditation from biofeedback training and qigong are the ones I use most often. I'm going to try some standing qigong next time I use my inhaler. 

    K8sMom – it can be hard to clear your thoughts. And it's easy to get more frustrated "willing" it to happen. I've had yoga instructors and my Taiji sifu explain that it's OK for those thoughts to come in. Acknowledge them and then let them go. It becomes easier with time and practice. I tend to be a "wiggly" meditator too. I tend to shift and adjust. But if I try to keep from moving, I wind up tense and fixated on not moving. So wiggle it is!

    Knitting hats or scarves for charity would be a great idea too!

  • Melanie Carver

    Okay, so I was thinking about this some more overnight and I think we're going to make this happen. Let's formally create a nebbin' club to knit/crochet blankies ("woobies") — Ooooh maybe we call it "Nebbin for Woobies" .

    I'll look for a children's hospital(s) to partner with and we can send our comfort items to kids who are hospitalized with asthma. I remember the first time I was hospitalized due to asthma. I was 8 years old and terrified. I think kids hearing from adults who live with the same condition and totally understand what they are going through would be a huge source of comfort for them.

    And someone is going to have to teach me how to knit properly!  Maybe we can host an online class for someone to come teach us how to do it.

  • Kathy P

    I love it! Crochet is probably easier than knitting – and often "quicker" to get a finished product.

    Do they supply patterns? I'd be down for a knitting/crochet class! If I could teach my grandmother, I can teach anyone!

  • K8sMom2002
    Kathy P posted:

    If I could teach my grandmother, I can teach anyone!

     You have NOT tried to teach me. I got as far as learning how to make a chain. I couldn't even figure out how to crochet a doily. 

  • K8sMom2002

    Mel, I love the idea, though! My DD and my sister and I helped make blankets for  as part of a Disney promotion some years back, where we could "earn" a discount on tickets by making blankets. 

    We sewed ours, and I swore then that I was going to try to teach myself how to knit. Alas, it didn't work. 

    For those who don't knit or crochet, but still want to participate, they could do the .

  • K8sMom2002
    Kathy P posted:
    Doilies are hard! Very fussy and intricate and lots of wonky directions.

    Awww … you're just saying that to make me feel better about myself.

  • Kathy P

    Nope, I've made doilies and they are hard! And take a long time with the fine crochet cotton. Chunky yarn and a big hook are the way to go for simple quick projects.

  • K8sMom2002

    My doilies were attempted with big hooks and chunky yarn … my best technique with a crochet hook is to use it MacGyver style to retrieve things out of a tight space.

  • Shea

    I was thinking, wouldn't it be cool to make an asthma dust mask for kids in the hospital? Cool ones. So I googled, and found: 

    So cute! Might be easier than crocheting and so useful! I really want to try to make one.

  • GigiGibson

    That's awesome shea! Tonight I was working on listing a house while nebbing. I get a lot done. Most challenging thing I do is put on my make up each morning while doing one. 

  • Kathy P

    Woohoo for getting lots done!And too funny about putting on makeup while you do the morning one!

  • Shea

    I have a problem wearing masks. I do not like looking or feeling like I am sick. I think kids feel that way… I was hospitalized a bit in youth. Things like wearing my own PJs or cute socks got me through (as opposed to hospital robes or hospital socks, yuck!) I still wont wear masks in public. Maybe in a hospital. Maybe on a plane. Mostly, I despise them. But, maybe, if I made some cool ones myself.. I would wear them. And kids would, especially in the hospital, around germs, or if they live in a home that is not asthma and allergy friendly, then they at least have the mask.

    And, Kathy P, we could find cool patterns for sure. For kids, teens, adults, with peoples favorite things, and stylish.

    We could make care packages, with crochet blankets (although whatever we make should be washable in hot water, allergy and asthma friendly). 

    I have never sewed or crocheted, but there is always time to learn.. while NEBBING!!! 

  • Kathy P

    I hear you on not wanting to look sick. I think it's shifting to see more people with masks who are trying to prevent themselves from getting sick vs being sick and trying to not spread germs. 

  • Shea

    That's true. I have to keep that in my mind. They are for prevention, protection, getting well. I will repeat that. I have been looking at masks. My skin allergies are just as bad as my asthma though, so I think I will try avoidance as #1, ace hardware masks and lightweight but long sleeved clothes for yard/vacuuming and a stylish lightweight mask for carrying shopping, in case I run into a service animal or perfumes, at least it will be some protection.

  • GigiGibson

    Good plan shea. They are lightweight. Just two ply fabric.the elastic is adjustable. You put it on then pull the elastic and it tightens up. Very comfy, thin wire over bridge. I haven't had the chance to try them in public yet and lord knows I don't go outside. I'm sick right now too so I've been lying around all weekend. 

  • K8sMom2002

    Love the idea of learning stuff while nebbing! And the face mask pattern is too cute!

    Shea, I've had to get used to the idea when I see people with masks that maybe they're protecting themselves from ME and MY germs rather than the other way around. After all, that's why doctors wear masks in surgery. 

  • Shea

    I do not usually see people with masks on in public, besides doctors offices and hospitals, and I do not mske assumptions, I know people on chemo wear them for protection. If I had to wear a mask every time I went out in public, it would have to be comfortable and stylish. I still would rather not. But I am thinking of convincing myself to temporarprotectio, until I can get off prednisone…. And only because there are some cute ones out now (or that I am just learning about now)! Like, when I go to my brothers bday party, my other brother who lives with cats will be there, I am considering wearing the mask for protection of my lungs. But I am not sure. Can you talk with the mask on? Or do you just pull it up and down like a bandana?

  • K8sMom2002

    I'm thinking you can talk with the mask on if the cloth is thin enough and not tight across the lips. After all, surgeons and nurses talk during surgery. 

    It would be a small problem for me … I have a hearing deficit in both ears and I rely on lip reading to help me do without hearing aids. I never realize how much I depend on lip reading until someone is talking with me when I can't see their lips!

  • GigiGibson

    I've actually had lots of phone calls at work with my mask on. The cleaning lady tries to kill me on Fridays. 

  • K8sMom2002

    Gigi, hugs on the cleaning lady — is it the cleaning supplies she uses or is it the dust she stirs up? I do so hate to see a vacuum coming my way!

    Good to know that you can still be understood with a mask on!

  • K8sMom2002

    Ai-yi-yi … that stuff can be horrendous on the lungs, can't it? 

    Can you provide her with a big stack of old newspapers and some water? That's how I clean my windows and shiny stuff — works just as well, and NO FUMES. 

    What did everybody do while you were nebbing today?

    Gigi, did you get any of your contracts worked out? 

  • Kathy P

    Do you supply the cleaning supplies or does she? I know a lot of people who supply their own. I use 50/50 distilled vinegar and water. I use something similar for mopping my laminate flooring – I don't recall the ratio, but it's vinegar, isopropyl alcohol, water and I add a few drops of essential oil which is optional.

  • K8sMom2002

    Gigi, I guess I was thinking that the cleaning lady was at your work — if it's at home, yeah, I would definitely ask her to use something besides Windex. 

    I use homemade recipes for cleaning supplies because I can't deal with the perfumes. I think @Shea does, too, from something I read in one of her replies.

    Maybe we should start a thread about cleaning supplies and cleaning solution recipes that work for each of us?

  • K8sMom2002

     to see what folks are doing while they're nebbing … @Gloria @GigiGibson @Shea 

    You guys have put me to shame with making great use of that time!

  • Gloria

    I could say I ride my bike. That would be unique, but it would also be lie! I just relax.

  • Jen

    @Gloria - new thread – "Things I Tell People I Do When I'm Nebbing."  

  • GigiGibson

    Just ole fb browsing for this neb. I'm so beat up with this vaccine. My arm is red and swollen and painful, fever all night and today, numbing feeling in a couple fingers. Also tummy woes. Geeshhhh. I'm all ready for my open house tomorrow, I hope we have lots of traffic!!!!

  • Kathy P

    Yikes! Are you have a systemic reaction to the vaccine? I had a terriblereaction to a flu shot many years ago – my arm swelled from my shoulderto my elbow. I felt like I get hit by a truck. Time to call the doc foradvice?

  • Gloria

    Gigi, I hope you feel better soon. Did you seek medical help for this reaction?

  • K8sMom2002

    Gigi, I'm with Gloria and Kathy P on this one … if this is a different reaction than previous vaccines, I'd check in with the doctor.  

    As far as FB, I'm on it, but I'm hopeless at it. Pinterest, now, is my one weakness when I'm in a holding pattern and can't go anywhere. I can totally go down multiple rabbit holes and time seems to pass in hyper-speed when I'm on Pinterest.

    Good luck on your open house!

    Gloria and Jen, too funny on the biking and nebbing and the "what I SAY I do" – wonder what a doc would say if you asked about combining the two activities?

  • Shea

    Well, I did not wear a face mask to my brothers birthday party, but I wish I had… so I am telling everyone this while i am nebbing (one of my brothers and his wife own cats and were at the family birthday party, and I have bad reactions to secondhand dander exposure). I thought I'd be OK, or just hoped I would., but I am wheezing, wheezing. I had to use my rescue inhaler twice, but I made it through 4 hours there, and it was fun. I am taking benadryl now too. I am going to order some cute medical grade facemasks, because, to be truthful, I do not think I am going to knit or sew one anytime soon, and if I did… it would probably look more like a doily (and I hear THOSE are hard to make).

  • Shea

    ((lol.. very funny comments too! What I say I do while nebbing: ride bike, knit, give to charity– what I really do: online shop, facebook, watch Big Bang Theory with the captions on.   )

  • Kathy P

    Ugh in the cat dander! Have you ever discussed pretreating with your doc? If I know I'm going to be around my allergens, my doc has me pretreat with extra antihistamine and albuterol. That usually allows me be somewhere with cats for a few hours before starting to react. Might be worth asking about.

  • K8sMom2002

    Shea, I have to have the captions on ALL the time because I have hearing deficits in both ears — my poor DH hates it because while I'm pretty quick at reading and following the action, he's not and it distracts him. 

    Kathy P, your tip reminds me that I need to circle back and talk with DD's allergist about bumping up her antihistamine on Friday nights before football games. All. That. Grass. Honestly, she's severely allergic to anything with a blade, especially a grass called Bahia grass which is very widespread in our part of the country. It was used in the 1970s to seed the shoulders of the roads since it was cheap and spread quickly and now it's everywhere. Ugh!

  • Kathy P

    Our allergist would have us pretreat for that. And he'd probably have us pretreat with albuterol too since she's exercising in addition. I remember A having a bad time with the conditioning exercises after her karate belt testing. It was night, grass field, misty….and she'd already been stressing her system all day in the gym. She could not run the laps and stuff and was coughing so badly.

  • Shea

    Ugh to the grass allergy! That is a common one, they should replace that nasty stuff one day. I am already on so many medications, it is like I am constantly pretteating. My allergy is so severe, even allergy shots are not an option. The nucala is to help me deal with the secondhand and hopefully get me lower dose of prednisone and handle the small everyday indirect exposures, but other than that I take albuterol to its max every day, and do 2-4 breathing treatments with ipatrorium-albuterol and budesonide, and use spiriva once a day, and take antihistamine once a day, and 20 mg pred is the regular dose I am currently on to keep me from going into complete flare up of Churg strauss. I used to take a chemo medication too, but I did not like the side effects and have been able to manage without it. Avoidance is huge for me, especially with cat dander, as my reaction to it is off the charts. 3 years ago I had a severe anaphlactic episode, after secondhand cat dander exposure ,  which I had to be rushed to the hospital in ambulance because nothing on the spot was working for the ambulance paramedics, they gave me epipens, shot of benadry, nebulizers, it took them a while even at the hospital er to get me breathing seminormally again. So after that I started taking avoidance really seriously. But it is difficult because I really enjoy my family events, but that cat dander is sticky stuff and it really gets all over them, and I talked to them about everything, but they still go in for hugs and my brother made it clear he thinks I am overreacting, despite me emailing him doctors notes, despite my diagnosis and heart attack from chronic allergien exposures, despite the anaphlactic episode, so I am just thinking I will avoid it and him for a while. I think I will just go back to what I used to do, and take the birthday person out or make them dinner at my house, so I do not have to be around my brother and his fiancee for a while. 

  • Gloria

    Shea, it is very rude that your brother is so callous to your health needs. Sometimes my parents are that way, but it isn't nearly as bad with them. I get anaphylaxis from shellfish; and there have been times when they invite me to dinner and serve it or use clam sauce in their cooking. Go figure.

    I have two cats and they are my fur babies, but I would never be so insensitive as to hug you when I have been told of your severe allergies. If I was in your situation, having gone to so much trouble trying to educate them, I too would feel that I had no recourse other than avoidance. That's what phones are for.

  • K8sMom2002

    Shea and Gloria,   on families not working with you, and not taking you seriously about life-threatening allergies. On AAFA's sister site Kids With Food Allergies is a handout called  I've used it as a way to educate my family before. 

    Shea, could you use a little self-deprecating humor to help drive your point home when you're around family? Maybe have a tee-shirt made that says something like, "Humor Me: Even if I AM over-reacting, let's do a safe virtual-hug?"

    And I can understand avoidance if you've tried everything and nothing seems to get through. 

    Chronic illness is a loss that needs to be grieved by a family, and sometimes I have to remind myself that my family, for better or worse, gets stuck at times in the "denial" stage of grief. They keep telling themselves, "It can't be THAT bad, right?" as a coping mechanism.