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Welcome to our new members in April!

I'd like to extend a warm welcome to all of you who have joined us in the last week in our Asthma and Allergic Diseases Support Community! 

Please make yourself at home: explore the , ask questions, and share experiences.  AAFA has given me lots of good support and encouragement!

 I'm Cynthia — my daughter and I have asthma, and my daughter has eczema. AAFA's been such a great help to me in understanding our asthma better. 

Whether you're trying to figure out , share tips on , or you want to take your mind off your asthma by hearing other members share "" … AAFA has something for everyone managing asthma and allergic disorders.

We want to hear how things are going for you. How are your ,  or  affecting you today? Join in the conversations or .  We look forward to hearing from you!

Also, handy tip: make sure you bookmark our  so you can easily find your way back here. 

Please join me in giving a hearty welcome to our newest members:

@marcia, @Deepali Jadhav, @Vikas kundu, @Kristal, @Roni, @Radarjohn, @P Harvey, @Troy, @DianaM, @MrsButters, @JoanKuah, @jennifer c., @aupser, @Nina K, @Domsmom06, @Peter, @Minhas, @Zippidi, and @msshale68

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Comments 31

  • LK

    Welcome everyone!  

    Glad you have found this wonderful community!  I'm Lisa and I have adult-onset, cough-variant asthma.  I was diagnosed over five years ago but only found these forums last fall.  Before last fall, I knew a few other people who had asthma but their asthma was very mild.  They were on no maintenance medicines and one or two puffs on a rescue inhaler and they would be fine.  I am on several maintenance meds and have to be careful to avoid my triggers as much as possible.

    It took me awhile to be comfortable enough to post on these forums but once I did, I immediately felt right at home.  While your medical care team is your primary resource, the folks here have wonderful suggestions on how to live with asthma.  You will find oodles    of support and understanding from others who either have gone through or are going through what you are.

    Hope to see posts or questions from you soon!

    Again, welcome!!  

  • MrsButters

    Thank you for the warm welcome!!  It is really nice to have a community support!  

    We are in the fairly early stages of food allergy diagnosis, Reactive Airway Disease and Eczema for my youngest child, 2 1/2 years old.   Known allergies so far: tree nuts, melons and carrots.  

    I am thankful to have found this group and the Kids With Allergies forum early in our journey.   Looking forward to connecting with all of you!

  • K8sMom2002

    Mrs. Butters and Lisa, so glad you guys found these forums as rewarding as I have … it's been so great to develop these friendships and have this support!

  • Marie E Natzke

    Welcome all,  hope you don't mind my sense of humor sometimes it's what gets me through.  I have Allergic Asthma  (animals are my asthma attack trigger)  and undiagnosed inflammatory arthritis (DR feels it's a fprm of Psoriatic Arthritis or Rheumatiod Arthritis).   One is bad enough on it's own but I'm lucky I get to have both of them!!!   Anyway, welcome to the group!!

  • Jeana

    Hello new members! Welcome to a wonderful site. I have adult asthma/ crossover COPD. In fact spent the afternoon at doctors today she put me on amoxicillin today and prednisone again. So we all can help anyway we can. 

  • K8sMom2002

    Hugs, Jeana and Marie!

    Jeana, I hope the meds help quickly!

    Marie, I love your sense of humor — laughter can be a very good medicine, and I think it really helps me to be able to laugh.

    And thanks for all that you and Jeana contribute to this community! Jeana's right — we all help anyway we can!

  • Pljohns

    Welcome everyone!  We're sorry you needed to find us, but glad you did!  Welcome to the group-yo will find the most amazing group of people here with a lot of really good ideas, and varied experiences but most of all, the best support you will ever find.  

    I'm Lynn-just now celebrating a year on this forum-I have adult onset, non-allergic, severe uncontrolled asthma.  I'm not sure if I manage it or it manages me but I work at it.  A year ago, I was the person who wouldn't do my nebs (I can't use inhalers-my lungs don't like them) or who was hiding in the restrooms to do them.  Thanks to the support and encouragement from this forum, I will now sit in front of everyone and do nebs if I need to, wear a mask to keep from getting sick and am a pretty good advocate for myself and what I need.  None of that would have happened without these wonderful, amazing people on this forum.  Jump right in on topics or start a new one-we welcome all topics and all of the input is what makes this such an amazing place to be a part of.  Welcome!!!

  • Megan Roberts

    Welcome to you all! This community is a wonderful source of support and information. I have been struggling with exercise-induced asthma, made worse by seasonal and other allergies. I have learned so much here about how to better manage my condition and met some great people too.  

    Hope you all feel right at home.

  • K8sMom2002

    MissWheezy89, what sort of assistance are you looking for? If it's financial assistance for medications or co-pays, you may be eligible for help through .

    AAFA also offers tips on what to do  medicines. The blog is a bit older, and so some of the funds they list may be out of date, but others are a possibility.

  • K8sMom2002

    Welcome to all of you who have joined us in the last week in our Asthma and Allergic Diseases Support Community! 

    I hope you'll feel as at home in this community as I do – AAFA has given me lots of good support and encouragement!

    So explore the , ask questions, and share experiences.  We're here for you! If you're wondering about something, chances are, someone else is, too.

     I'm Cynthia — my daughter and I have asthma, and my daughter has eczema. AAFA's been such a great help to me in understanding our asthma better. 

    Whether you're trying to figure out how to manage , share tips on , or you want to take your mind off your asthma or allergies by hearing other members share "" … AAFA has something for everyone managing asthma and allergic disorders.

    We want to hear how things are going for you. How are your ,  or  affecting you today? Join in the conversations or .  We look forward to hearing from you!

    Also, handy tip: make sure you bookmark our  so you can easily find your way back here. 

    Please join me in giving a hearty welcome to our newest members:

    @TinaMarmia, @Leasdeb, @Hal, @Dneilio, @Krissyta, @Kasey, @Mani, @Barbsun, @Carlo, @kaylalynae, @Carol J, @BJ, @Lori1717, @Mama, @Theo, @martha portal, and @ebraham71 … and another to @Misswheezy89, who's already introduced herself here earlier!

  • Marie E Natzke

    Welcome everyone. I have allergic asthma (fur and feathers is my trigger). I have found support and information through AAFA. What are your triggers?

  • Brenda Silvia-Torma

    Welcome everyone! My triggers are dust mites, dust, pollen, grass, ragweed, trees, etc. Since the cold has stayed with us for a while into April, I haven't had too many problems, but I know it's coming!

  • K8sMom2002

    Welcome to all of you who have joined us in the last week in our Asthma and Allergic Diseases Support Community! 

    To me, this community has been a wonderful "home" where I can get tons of good support and encouragement!

    We're here for you, and we love to pay it forward! If you're wondering about something, chances are, someone else is, too. So feel free to explore the , ask questions, and share experiences.  

     I'm Cynthia — my daughter and I have asthma, and my daughter also has eczema. AAFA's been such a great help to me in understanding our asthma better. 

    Whether you're trying to figure out , dealing with , or you want to take your mind off your asthma or allergies by hearing other members share "" … AAFA has something for everyone managing asthma and allergic disorders.

    We want to hear how things are going for you. How are your ,  or  affecting you today? Join in the conversations or .  We look forward to hearing from you!

    Also, handy tip: make sure you bookmark our  so you can easily find your way back here. 

    Please join me in giving a hearty welcome to our newest members:

    @Mari, @MELINA, @3CatBoyzes, @Dan01, @Angel2276, @SuzanneSC, @Megan Fox, @Dolly, @Novalie, @JLD and @Stacy89 …

    If I missed someone or you've just joined, feel free to chime in and introduce yourself!

  • Pljohns

    Welcome everyone!  I'm sorry you had a need to find us but we're glad you did.  You will find this is the most AMAZING group of people for support, suggestions and help of all sorts.  Everyone here has different experiences that may help you and I'm sure you have different ones that we can get help from.

    I'm Lynn-adult onset, non allergic, severe uncontrolled asthma.  A year ago, I was the asthmatic hiding in the restroom to do nebs (i can't use inhalers) or not doing them at all.  With the encouragement and support here, I now take care of myself and made major lifestyle changes to do so.  Feel free to jump in on any topic or start a new one.  Welcome again!

  • Jeana

    Hi Everyone, just got home from the asthma doctor. My cough is worse and hoarse with congestion. She gave me a double dose of steroids and put me on high dose of prednisone.. been going every two weeks to doctor and seems to not be getting better. Antibiotics last week still no change. I hope my summer won’t be this way. I leave for Russia in June for the summer. So hopefully it won’t get worse.

  • Pljohns

    Jenna-I sure do  hope you get better soon so your summer isn't messed up.  Sounds like you have a doc that is really trying to get you well.

  • K8sMom2002

    Hugs, Jeana! I know you want this stabilized for when you fly out! How exciting — a former pastor of mine traveled on a mission trip to Russia and really enjoyed it.

    It has to be frustrating to be in the doctor's office so frequently. What long term controller are you on?

    Both Kathy P and Lynn have flown recently, and they have great tips on how to manage traveling with asthma. Kathy P has also been out of the country twice recently.

    Why not  about your trip and see what tips other members have?

  • Kathy P

    Ugh @Jeana I had a rough bout that started in November and I just recently manged to turn it around. It took being really aggressive with meds including steroids and antibiotic. My doc thinks we were undertreating an infection and it just came back with any little thing. I hope your doc can figure out something that will kick it.

    I wound up traveling to Spain while mine was still flared. Doc set me up with extra meds and I took my nebulizer with me. Fortunately, the power supply on mine didn't need a converter, just a plug adapter. If you think you might need it on the plane, check what type of power outlets will be available. My neb has a battery option, so I took that for the plane.

    There are several of us who travel and there are some existing topics about and .

  • SuzanneSC

    Thanks for the warm welcome! I have environmental and food allergies and have been taking allergy shots for years. I also have severe uncontrolled asthma diagnosed  about 6 years. It is the worst thing ever to deal with. I am a cancer survivor x5! The cancer goes away but the asthma never goes away!

  • K8sMom2002

    SuzanneSC, welcome! Hugs on the uncontrolled asthma … that can be very tough to deal with, but you'll definitely find support and encouragement here.

    What sort of food allergies do you manage? What makes your asthma worse or better?

  • Melissa G

    Welcome SuzanneSC! So glad that you found us! That is great that you have been cancer free for 5 years!!  I am so sorry you have uncontrolled asthma!  

  • K8sMom2002

    Welcome to all of you who have joined us in the last week in our Asthma and Allergic Diseases Support Community! 

    I hope you'll feel as at home in this community as I do – AAFA has given me lots of good support and encouragement!

    So explore the , ask questions, and share experiences.  We're here for you! If you're wondering about something, chances are, someone else is, too.

     I'm Cynthia — my daughter and I have asthma, and my daughter has eczema. AAFA's been such a great help to me in understanding our asthma better. 

    Whether you're trying to figure out how to manage , share tips on , or you want to take your mind off your asthma or allergies by hearing other members share "" … AAFA has something for everyone managing asthma and allergic disorders.

    We want to hear how things are going for you. How are your ,  or  affecting you today? Join in the conversations or .  We look forward to hearing from you!

    Also, handy tip: make sure you bookmark our  so you can easily find your way back here. 

    Please join me in giving a hearty welcome to our newest members:

    @Priya, @Okos Koti, @Lupita, @JanelleL, @Justdontunderstand, @miss9900, @LolaC, @Bjamc, @SylviaGee, @MarthaM, @Lee S., @Sue pikari, @amybear25, @Jackie Lee, @kdf9, @Barbara Borden, @Maria madrid, @AJ, @twilkie, @Mohamed Youssef, @Jacki, @Eileen1983, @Marianne, @Jerdwetta, @@learnwithlynne, @Kevin O'Sullivan, @Cathy6653, @Aaron, and @Sven Fuller.

    Did I miss anyone? Please, feel free to jump in and introduce yourself!

  • Pljohns

    Welcome everyone!  We're so glad you found us, but sorry you had a reason too.  I'm Lynn-adult onset, severe uncontrolled asthma-and I've been on this forum just over a year.  You will find the people here to be the best anywhere.  They all actually understand what it's like to live like we have to.  You will find all kinds of ideas, suggestions and experiences but most of all, you will find AMAZING support. Please jump right in on topics or start new ones-we welcome anything.  Welcome again!!!

  • LK

      Welcome everyone!  

    I second everything Lynn says above!  I found these forums last fall and wish I had found them when I was first diagnosed with adult-onset, cough-variant, moderate to severe uncontrolled asthma just over five years ago.

    Before I found AAFA I thought I was doing something wrong since no one else I knew had such severe, uncontrolled asthma.  The people I knew who have asthma were not on any maintenance medicines and one or two puffs on an inhaler would get them breathing just fine again.  Here I have found others who have similar struggles living with asthma.  

    Looking forward to hearing how you are living with asthma and what sorts of questions and comments you have!  Glad you are here!

  • Aaron

    Hello everyone. I am a new member and I'm glad I found this group. Although I have been dealing with asthma, COPD, and allergies for a few years now I feel as if I am new to all this. I don't know exactly how all this happened but a couple years ago I broke my ankle and had to have 3 surgeries. I was off work for a year. But it seems like since then I have been battling the unknown. At the time I had insurance so I managed to go to a lung doctor. She said I had sleep apnea so I had to do 2 sleep studies. I don't know the results because I had to terminate my insurance due to the unaffordable affordable health care act. I have seen other doctors which all say I have COPD and asthma. All the doctors I was seeing won't see me anymore unless I pay up front. I don't know how everyone else's problems are but with mine it seems like my body produces too much mucus and sometimes I can feel it running into my lungs. Prednisone seems to slow the mucus . Sometimes all I can take is small short breaths no matter how hard I try. While this happens I get really hot. I could stand in a snow bank and still be sweating. Last December I had gotten sick. I took a couple days off of work to recover but I wasn't getting any better. I went to the emergency room because I couldn't breathe no matter what I did. They had to put me on a machine to make me breatheand they called in hospice. I didn't know what hospice was at the time. I stayed in the hospital for a week. They said I had the flu. When I got out I still had difficulties and two weeks later I had to go back. Again I got admitted. They said I had pneumonia this time. That's when this mess took control over my life. People I know including family got mad because they thought I was just trying to lay out of work. I never just lay out of work. However I'm trying to get this all under control so I can go back to work. It is aggravating, frustrating, and scary all at the same time. Being I'm not working it has made me broke. Add all that to the mix and it has made me depressed. I'm slowly losing the things I have worked my entire life to get. My primary doctor now is the emergency room and hopefully I can find someone to buy my medicine. Makes me feel like a loser and a bum. I feel like I am useless now. So I am hoping to read other people's stories, tips, and tricks so I can learn how to control this and pull myself out of this rut. Back in 1999 I rolled a truck and broke my neck, back, and pelvis in three places. The doctors told me I will never walk again. However I forced myself to walk. I wasn't taking no for an answer. I figured I could do the same with this. Maybe it's because I'm older now, maybe I can but I just don't know how yet. Do thank you all for sharing your stories and accepting me to the group. I will sit back and try to learn something.

  • Marie E Natzke

    Welcome everyone, hope you are doing well.  The information and support here is amazing.  Some of us have more than just asthma that we struggle with.  I have asthma, seasonal; allergies as well as in-door allergies and inflammatory arthritis.

  • K8sMom2002

    Welcome to all of you who have joined us in the last week in our Asthma and Allergic Diseases Support Community! We're so excited to have you here!

    AAFA has given me lots of good support and encouragement, and I hope it can do that for you as well.

    So explore the , ask questions, and share experiences.  We're here for you! If you're wondering about something, chances are, someone else is, too.

     I'm Cynthia — my daughter and I have asthma, and my daughter has eczema. AAFA's been such a great help to me in understanding our asthma better. 

    Whether you're interested in discussing news like how a , share tips on managing your , or you want to take your mind off your asthma or allergies by hearing other members share "" … AAFA has something for everyone managing asthma and allergic disorders.

    We want to hear how things are going for you. How are your ,  or  affecting you today? Join in the conversations or .  We look forward to hearing from you!

    Also, handy tip: make sure you bookmark our  so you can easily find your way back here. 

    Please join me in giving a hearty welcome to our newest members:

    @Misty, @KJ80, @Traci', @Laura Galaida, @Deborah Davis, @Keata, @SophiaWeiss, @Polly 1964, @DaniJack, @Xavier, @mdunn84, @Daniel Asige, @Mary Smith, @aporter, @Maya, @Naresh, @Rae', and @T. Shikany