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Welcome to our new members for December!

Happy December!  I'm glad to welcome those who have joined our  in the last week.  Our  are a great place to connect with others, ask questions and support one another.  I have already seen some of you out there and that's awesome!

I'm Jen and I'm part of AAFA's community management team.  My family manages a variety of allergic conditions, including food allergies and eczema.

We would love to get to know you.  Please tell us how you deal with ,  and  and what your challenges are with them.  You are welcome to  or chime in on an existing discussion.  Handy tip – bookmark our  so that you can easily find your way back to our support community.

Please join me in welcoming @Jpwilde, @bowleyt, @Shel, @AngelaW, @Greg Sabo, @Rosamantlow, @Jessica27, @Hector, @Wife of, @Margaret (Peg) Abbamonte, @Tijana, @Holly, @Luftpause, @Alisa, @cin, @Tammy45, @Prakash, @Adriane, @xtow, @Pamela, @MySon2017, @Porsha Clarissa, @Mary Love, @JGC, @TinaMV, @JillS, @Siobhain(shavon), @Brisummer, @GeorgeM, @Sean, @Ladyxmess, @Doyle, @Kelly Cory, @Bobbie, @Ben, @So blessed, @Robin L Manheim, @Sadie

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  • K8sMom2002

    Welcome! This is a great community! We share a lot of tips and tricks … it's really helped me manage my own asthma and my DD's asthma.

    Hers used to be a lot more tricky to manage, but as she got older, it got better. She's 16 now, and she frequently tells me, "Mom, YOU'RE the one with the asthma that we have to watch!"

    But this group has really helped me figure out my triggers and manage things so that I do a lot better!

    And I would be absolutely remiss if I didn't let you in on a sweepstakes opportunity that's going on, where you can win an air cleaner and floor cleaner package! 

    @Katie D gave me the idea of giving our home a Christmas gift — it's a gift to make things better and more allergy-friendly for the whole family. So off I went looking to see what would be a good gift for our healthier home … and I found THIS:

     … which gives folks the opportunity to enter daily for several air purifiers (like an LG or a Rabbit Air) and a Bona floor cleaner package!

    And because I know everyone is super busy, here's the until December 15!

    Edited the link that was broken for the "enter daily" — oops!

  • Siobhain(shavon)

    Thanks for the welcome, Jen. I am in my 50's and never had severe asthma till this summer. It has been better through the Fall and early winter. Taking part in several formal yoga classes a week and focusing on slowing down my breathing other days has been a big help. I am also grateful for the Asthma Network in West Mi. I've had a respiratory therapist and social worker out to my home, providing moral support and practical items like mattress and pillow encasements. I found out that I am allergic to dust mites and dogs. I can still occasionally pet a canine but will wash my hands right afterwards.

  • K8sMom2002

    Welcome, Siobhan! It sounds like you're doing all the right things to help manage your asthma! We have a great — oh, but how can something so little cause so much discomfort and distress?

    And @Shea can give you lots of potential pointers about how to manage pet dander allergies! She is our expert on that! She has taught me so much. I am able to have pets, but now I never go out without making sure that I take precautions to "de-dander" myself as much as possible. I never want to cause problems for people who have dander allergies. 

  • Kathy P

    Welcome @Siobhain(shavon)! That's great that they have a respiratory therapist and social worker that follow up! And provide things to help control allergens!

    You'll gets lots of moral support here too! 

  • Pljohns

    Welcome-sorry I'm late to welcome you in-it's been a tough couple of weeks.  We're always glad to have new members with new insight and suggestions.  You will find this board to be AMAZING-SO MANY wonderful people with different experiences and suggestions.  More than anything, you will find SUPPORT-finally people who understand what its like to live with what we have to.  Jump in and reply to topics or start new ones-WELCOME

  • K8sMom2002

    Season's Greetings! We're so glad to welcome those who have joined our  in the last week.  Our  are a great place to connect with others, ask questions and support one another.  I have already seen some of you out there and that's awesome!

    I'm Cynthia, and I've managed my own asthma and my daughter's for many, many years, as well as my daughter's eczema and my hubby's contact dermatitis to certain chemicals and substances.

    AAFA has been such a great resource for me, and I can tell it's made a huge difference in our quality of life by teaching me so much about asthma and allergies. 

    We would love to get to know you!  Please tell us how you deal with ,  and  and what your challenges are with them.  You are welcome to  or chime in on an existing discussion.  Handy tip – bookmark our  so that you can easily find your way back to our support community.

    Please join me in welcoming @Lynn C., @Cara Kraft, @cjk, @Ceciliart, @Jacqueline Ortega, @jtomotaki, @Randall Phyall, @Me, @JS, @MZR, @daisygirl, @Jennifer P, @Carmen Stukes, @tamy.vidana, @Sandiiz, @Bugg, @SOORAJ, and @Kat88 – apologies if I missed anyone!

  • Katie D

    Welcome  and Happy Holidays!

    I'm Katie and I'm part of AAFA's community management team.  When I was a child I was diagnosed with EIB and through proper management I was able to play competitive sports my entire childhood and throughout college. I have two children and currently we manage allergies, including food allergies, environmental allergies and eczema.

    We are happy to have you and please let us know how we can help.  We are here for support and can't wait to get to know you!

  • Pljohns

    Welcome everyone-I am late welcoming you but you have found a amazing place for ideas, experiences and most of all SUPPORT.  This is an amazing group of people-jump right in on threads or start new ones-we welcome everyone's questions/experiences.  Welcome again!

  • Megan Roberts

    Warm holiday greetings to all of you who have joined us in the last week in our Asthma and Allergic Diseases Support Community! 

    We're so glad to have you here.   

    We encourage you to make yourself right at home: explore the , ask questions, and share experiences.  This is a great place to find support and connection. 

    I'm Megan, Community Engagement Program Manager here at AAFA, and I manage asthma/EIB, mold and pollen allergies. 

    We want to hear how things are going for you. How are your ,  or  affecting you today? Join in the conversations or .  We look forward to hearing from you!

    Also, handy tip: make sure you bookmark our  so you can easily find your way back here. 

    Everyone please join me in giving a hearty welcome to our newest members:

    @AustinCalnor, @Jeeper52, @Susana Lyons, @Wandsie, @DanielMaximo, @Middi, @Horace, @Mayra, @Ramona, @Britt421, @Cilladawn, @dei, @cupcat, @Akana, @Jane Allen, @MsTsimmons, @DC, @Doodler, @Emmiesmom51

    I hope you all feel right at home with us.  Happy final eve of Hanukkah, and an early Merry Christmas to all. 

  • Pljohns

    Welcome everyone!  We are glad you found us but sorry you needed to.  You will find this is an amazing group of people with a TON of experience, suggestions and tips and trick but most of all SUPPORT.  We welcome new threads or jump in on one already started and give us your experiences, suggestions and anything else you might want to.  WELCOME

  • K8sMom2002

    Chiming in to add my welcome and to echo what Lynn (@Pljohns) has said so well … sorry that you had to be here, but you are NOT alone. 

    I'm Cynthia — I have asthma that didn't get diagnosed until I was in my 30s, and my Dd has asthma as well. When she was little, it was her asthma that worried us. But as I've gotten older, now DD points out, "YOU'RE the one with the asthma worries now."

    Still with AAFA, I've come a long way … my asthma is better controlled and even when it flares, I can figure out what happened and how to help prevent it. With AAFA, I have hope that if I follow my doc's asthma plan and avoid my triggers, then things CAN get better. 

  • LK

    Welcome New Members!

    I will second everything that's been said so well!   

    I was diagnosed with asthma five years ago, in my late 40's.  Am on several control meds and trying to avoid my triggers which is a challenge for me since many of my triggers are in abundance in horse stables and I have horses to care for and ride.

    I am getting better about paying attention to when I'm coughing more and taking my meds on schedule both of which help keep a small flare from getting more severe.

    Until I found this site a few months ago, I felt very out of place as the only people I knew with asthma had very mild cases.  So nice to have others who understand and are going through the same types of situations.

    It took me some time to be brave enough to post about my setbacks and things I have learned, but no matter how small a comment I would make, everyone was kind, supportive and very understanding.

    Again, Welcome!

  • Britt421

    Thank you for the welcome! Happy holidays to everyone. I'm Brittany and I have recently been diagnosed with Chronic Idiopathic Urticaria (I think this topic is covered on this forum). The week before Thanksgiving I started breaking out with one hives (at this point I thought it was a bug bite as it was one here and there). Then a Saturday I woke up covered in what I thought might be bed bug or flea bites and went crazy cleaning my house and searching for any sign of a bug…nothing. I ended up going to an urgent care 4 times in one week to receive prednisone injections and pills and was told it was probably just a delayed response reaction to an environmental incident/factor at my place of work. The week after Thanksgiving I was able to basically beg an allergist to see me as my feet, legs, and hands were swollen I could barely walk. I am not nearly as bad as I was before I saw her, but this is week 6 now. 

    The only thing that seems to keep them at bay is prednisone. I have already been on one taper of it while taking allegra, zyrtec, xyzal, and doxepin…I had to restart a slower taper just this past Monday. I am not sure what triggered this, but I have hashimoto's thyroiditis and the immunologist suspects it's just another autoimmune response. I believe I will next have some xolair injections (hopefully February) as the antihistamines do not seem to be working fully. I cannot be on Prednisone much longer, it is making me miserable.  Sorry for my rambling. And thanks for reading/listening. 

    Does anyone else experience or have chronic hives? 

  • Katie D

    @Britt421 welcome 

    Wow, the quick onset of the hives sounds so scary.  From what I have read CIU can cause severe itch and visible hives.  Were the hives really itchy for you?  

    I am glad to hear that the prednisone helping to keep them under control even though not ideal.  Does the doctor have a plan for you to try to get you off of the prednisone?

    Yes, we do have a resource called .  We teamed up with a couple pharmaceutical companies and Vicki Lawrence and have an educational campaign for patients with CIU.  It also includes resources such as a discussion guide and symptom tracker and can be found at . 

  • Britt421

    @Katie D

    Thanks for the reply. My hives were very, very visible, up my arms, legs, torso and I would end up going into work with my face covered sometimes. I also at times had slight facial swelling. I had so much trouble sleeping at times because of the relentless itch. Now it's better as I am on the prednisone. The plan for now is to continue a slow taper until January 8th which is my second follow up… After that we will address xolair shots and hopefully get off of the prednisone. I am definitely seeing changes in my body from the prednisone, bloating (clothing is tighter), facial changes and that adds extra stress (I worked so hard in the past two years to lose over 50 pounds). 

  • Jen

    Welcome @Britt421. The hives and prednisone side effects sound really frustrating.  I know we have other members who have dealt with similar side effects and find them frustrating.  @GigiGibson and @Shea might be able to chime in.  

  • Jen

    Happy holidays to everyone!  I'd like to extend a welcome to those who have joined  this past week. Be sure to check out our  - join in on an existing conversation or 

    I'm Jen and I'm part of AAFA's community management team.  My family manages a variety of allergic diseases, including food allergies and eczema.

    We look forward to getting to know all of you.  Tell us how ,  and  affect you.

    Please join me in welcoming @KindnessOfRavens, @Dave Locke, @DrewB49, @inVision, @monsieur-mustela, @Ted, @Scotty73, @Gail Anne, @Laura Villa, @Kidswithasthma, @Pmh16, @Dr. Liz Young, @Star, @Lisa123, @MMKB, @Mom76, @marisalee, @Vincent

    Be sure to bookmark our  so you can easily find your way back to our awesome support community!

  • Gail Anne

    Thanks for the Welcome, I only started having seasonal allergies & Asthma in the last few yrs & I’m 64. I am disabled & have lots of other issues so didn’t really need more to deal with bit guessI have no choice & here I am😎.

  • Katie D

    Welcome and Happy Holidays to all the new members!

    @Gail Anne, so sorry to hear that you have been recently diagnosed on top of other things.  Have you been able to keep your seasonal allergies and asthma under control since your diagnosis? 

  • K8sMom2002

    Welcome, @Gail Anne! Really hate that you're having to deal with asthma these last few years … we have several members who juggle lots of different medical issues, so I know you will find folks here who understand. 

  • MMKB

    Thank you for welcoming me. I have been dealing with severe asthma and allergies for about 30 years.  

  • Megan Roberts

    Welcome and happy holidays to @Gail Anne, @MMKB and all our new members! I'm sorry that asthma and allergies brought you here, but glad you've found this community of support. There is a good mix of those who are newly diagnosed and those who have been dealing with asthma or allergies for most (if not all) of their lives. You're in good company. 

  • Pljohns

    Welcome everyone-so sorry you had a reason to find us but you have found an amazing group of people with so many different life experiences, suggestions and advise but most of all-TONS of support.  We know what it's like to live like we all have to and who better to understand that unless you are dealing with the same issue.

    Welcome and Happy New Year

  • Gail Anne
    Katie D posted:

    Welcome and Happy Holidays to all the new members!

    @Gail Anne, so sorry to hear that you have been recently diagnosed on top of other things.  Have you been able to keep your seasonal allergies and asthma under control since your diagnosis? 

    Thanks Katie and all the others who have so kindly welcomed me. No I haven’t yet gotten my Asthma quite under control as for my allergies I’m trying!

  • K8sMom2002

    Gail Anne, one thing that helped me was to read about . The resource I linked to also has a great video about asthma triggers – in fact it's part of a collection of 11 short videos on understanding asthma and asthma research

    It's a new program from AAFA and the Patient-Centered Outcomes Research Institute (PCORI). The goal of the program is to increase awareness of asthma and research and to increase patient participation in research. 

    Short topics include: 

      And there are others, too, about asthma research and treatment options. They were super helpful to me! I also like to share them with friends and family so they can understand what it is I'm dealing with. 

    • Katie D

      You are welcome Gail Anne. The links Cynthia provided above have a wealth of information.  Hopefully you'll be able to get things more under control, and as Megan mentioned everyone here understands what you are going through!