I was advised I should share my story about my lady Payton and her situation here with you folks. Perhaps you have insight or maybe just some support.
Payton is my 7-year-old daughter (1st grader) who has uncontrolled, severe asthma, She was diagnosed when she was 3 years old. I honestly don't recall what it was that started her path on the asthma journey because she has always had health complications (more in her kidneys – 4 surgeries before the age of 3). She also has eczema (mostly on her arms) although it isn't as bad as she has gotten older – but she is an obsessive itcher now and almost always has scabs on her nose from her habitual itching.
Anyway, more to the present – She doesn't have any allergies. She has had numerous allergy panels and they have checked her IGE levels during hospital admits ( 4 in the past 6 months alone in addition to numerous ER visits and specialist appointments) to see if the numbers are high but have discovered her numbers are oddly very low (doctors have informed me they have actually had to do some research to see if this was significant as they haven't seen numbers so low – not significant as it turns out just super human anti-allergy kid I guess). No one knows what her triggers are. It's why her asthma is so uncontrolled. She sees an asthma/allergy specialist, a pulmonologist, an endocrinologist (to see if the constant steroids they put her on have impacted the functioning of her adrenal glands – they said they don't want to see kids on steroids more than twice a year, Payton has been at least 5 times already and it's only May), and an asthma plus team (for severe allergy cases). This doesn't include her urologist for her other issues she deals with.
She just had a sweat test to see if she had cystic fibrosis in addition to her asthma, and we were able to rule it out.
Today she is going in for a broncoscopy. They should have answers within 2 days. if anything, they said it will tell us what it isn't.
It's a pretty exhausting process. I've only ever seen her triggered once by loud noises and that sent her into an asthma attack – apart from that it just seems to come on for no apparent reason.
Anyway . . . that's Payton. She's an awesome, brilliant little girl. She is obsessed with learning and hates missing school but she has absolutely horrible attendance due to this problem of hers. She is obsessed with people being kind and honest with eachother. You couldn't ask for a better kid.