I had my Nucala injection yesterday after work, and then had a follow-up with my pulmo's NP today, so I took the day off from work. I'm going to have to stay on the 20 mg for a few months, but I figured that. I'm also staying on the azithromycin and nebs every 6-8 hours, along with all my other meds. My lungs were a little tight and wheezy, but nothing too bad, and considering how bad the pollen is, I'm pretty happy with my progress. I do have a new action plan, which is exciting. If I start having a flare, I can increase nebs, and then increase the azithromycin to every day. If that doesn't help, then I can increase the pred by 20 for 2-3 days. I told her I'm willing to try anything if I don't have to increase the prednisone first, so I'm super happy with this plan.
She did mention another biologic since I'm maxed out on meds and still steroid-dependent. Has anyone taken FASENRA? I'm pleased with my progress on Nucala, but she's talked with my pulmo and they believe I may not be able to get off prednisone with Nucala (I've been on it for 18 months). They'd like to get me down below 20, but not while I'm symptomatic. The goal is to get off pred, but they want me to be prepared that I may have to stay on it. Hence, the conversation about the Fasenra. Still, I'm happy for any improvement, and as my NP says "Baby Steps."