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Starting Dupixent

The Dupixent nurse called me a little bit ago and she can come out this afternoon to coach me for my first injection!  Yayy!!!    She said she would be out of town tomorrow and Wednesday so my options were today or Thursday or Friday.  She said she will be in my area this afternoon so it worked out amazingly well!  She just got my information this afternoon.  The Good Lord does work in mysterious ways!  I was expecting to have to not hear from her until tomorrow and not schedule it until late in the week, so am grateful she could come out today.

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  • K8sMom2002

    Yay, @LK! I used your reply from yesterday to start this new topic for you … So glad the nurse could come out and give you training! How did the training go? How often will you need to give yourself injections?

  • LK

    Thank you, Cynthia! 

    The training went very well. The nurse was so well-versed about the process and explained it so well that by the time I had practiced with the training syringe a few times I felt comfortable enough to give myself the injections.  I am glad I had the nurse come out for the first time. It's very strange to give yourself injections! 

    From here on out, I give one injection every 14 days. Yesterday was the loading dose so I had two injections.

    Dupixent My Way has a video you watch about how to give the injections. It also has  registered nurses that you can call anytime during the day. They answer any questions about the Dupixent and will also stay on the phone when you do your injections. 

    Very nice to know they are there!

    Don't know if I will have the fatigue that I usually got after my Xolair injections but so far I'm doing fine today.

  • Kathy P

     that you felt comfortable with the process so quickly! Sticking yourself can be scary and intimidating. 

    Are those prefilled syringes?

    that it makes a difference!

  • Pljohns

    It recently got approved for asthma.  When I went to NH to speak, one of my contact people there was the lead on the team for the documentation to get it approved for asthma.  

    Lisa-hoping you don't have the fatigue you did and hoping even more that it works wonders for you!

  • LK

    Yes, BreatheEasy, as Lynn said above, it was approved a few months ago for asthma, too.  

    Thank you, Kathy, Melissa and Lynn!  

    Kathy, Yes, the syringes are prefilled and have this handy needle guard so after the injection the needle withdraws and is not exposed.  Then I put the syringe in the sharps container.

  • LK

    Thank you so much for that Deborah!  Not sure I deserve it but sure am grateful for it!  

  • Deborah Bartlett

    Well, of course you deserve to have an improvement in the way you feel! It's nice that you are managing your health so well! Good for you!! ⭐⭐⭐

  • LK

    That is kind of you, Deborah!  Thank you!!    We all do what we can!

  • K8sMom2002

    Lisa, so glad everything has gone well so far training wise — I hope this works well for you! I think if I had to have an injection, I'd love to be able to have it at home. 

    Does Dupixent arrange for disposal of the sharps? Or have you got a place where you can dispose of your sharps?

  • LK

    Thank you,Cynthia, Yes, they sent a sharps'disposal container and it has several layers of secure return packaging (including a seal-able bag and two boxes)  so when it is full I can just mail it.  

  • Pljohns

    That's great-we have one that isn't one you mail back, it's full and no one will take it to dispose of it.  I have no idea what I'm going to do with it.

  • LK

    Lynn,  Would the local pharmacy know what to do with it?  

    Found this about sharps container disposal options - 

     

    Started getting a little headache right around my eyes last night and still have it this morning.  Not a bad one just annoying.  Could be from the new med or this crazy weather.  It's -5 right now so the furnace has been working almost full time.

    Other than that seem to be doing okay after the first injections.  

  • Pljohns

    We checked with the pharmacy and they said they didn't dispose of them.   I'm going to see if the clinic next door will take it and put it with their disposal.  The next one we get will have the mail in return.

  • LK

    Thanks Deborah!

    So not sure if it is the Dupixent or what but this morning I feel like I can breathe way down deep in my lungs!  Without doing a neb first either!!  Even after a neb usually I can't breathe this deeply so I am hoping it is the new med.  Was thinking that I would be worse this morning since the furnace has been on so much but I am surprisingly better.  Just talked for over 30 minutes with my parents on their GrandPad and hardly coughed!!     Talking always makes me cough a whole lot but not this time.  Usually feel tired after such a long conversation but not this time.  Hardly dare hope that it will continue but it sure is nice to breathe way down deep in my lungs!  Praise the Lord!!  

  • LK

    Listening to Laura Story's song "Blessings" on K-Love.  Love this song.  

  • Deborah Bartlett

    Lisa!!! This could be the miracle you've been waiting for!!!! I so hope that your deep breathing and talking without coughing continues!!!! I am so happy for you!!!

  • LK

    Thank you very much Deborah!  Don't want to look a gift horse in the mouth but . . .  sure hope this continues!  (Had to find some saying about horses!        )

    Trivia for the day    -  The saying "Don't look a gift horse in the mouth" supposedly comes from the old days.  To a degree, you can tell a horse's approximate age by their teeth, so if you got a horse and were told it was a certain age you would not want to look in it's mouth because you might be disappointed to find it was older/younger than you thought it was. 

  • LK

    Not sure exactly but would venture to say that since it is used when people are acting up and need to settle down, it stems from how horses race around, buck, nip and kick at each other in play, roughhouse and various other things they do when full of energy.  Horses can act quite silly at times!    

  • Deborah Bartlett

    I am wondering, do your horses eat snacks or treats? And what is it that they eat for a treat? Also…silly as this may sound…Did any of your horses ever try to or sneak in the house????

  • LK

    Yes, horses do eat treats.  Many of them have a sweet tooth like most of us!    Depending on the horse, they will eat carrots, apples, peppermints and bananas.  There are also treats specifically made for horses.  Most contain oats and molasses or some other sweetener.  Too many sweets are not good for them and unfortunately horses don't have the good sense to not overeat and can get themselves into a lot of trouble that way.  Also, horses will get nippy if you hand feed treats very often and don't constantly reinforce good manners.  They will also overeat grain if they get access to the grain/feed room.  My dad, who was around mules on his uncle's farm when he was young, says that mules are smart enough that they will not overeat as horses will.

    As to have they ever gotten into our house?  Nope!  For one thing there is a fence between the barn/pastures and the house, but mainly you really don't want a 1,000 pound animal in your house!      Horses in general don't want to go into enclosed areas.  They are prey animals and prefer to be in wide open areas so they can spot predators afar off.

    Have you had experiences with horses in houses?  

  • LK

    So, still breathing well!  Was on the phone with our prescription insurance to see where the alcohol swabs that were supposed to have already shipped were and to see when the next shipment of Dupixent would arrive next week.  Realize they could just be shipped together.  Long story, short – had to talk wit the Rx insurance, then the specialty insurance, then back to the Rx insurance then she had to get a hold of the specialty insurance to figure out that it could ship next Monday.    Lots of time on hold but at least it all got straightened out!

    The good thing is I am still breathing well today with no neb at all today!  First day in months with no neb!!  My FEV numbers are good and even with all the talking on the phone, I am not coughing hardly at all and not exhausted as I usually would be!  Hallelujah!!  

  • Deborah Bartlett

    No. No horses in houses or houses with horses. Can you imagine? I have a friend who has a hobby farm. One of her goats snuck into the house and busted open a wall. She sent me a picture. 

    If I could have one farm animal, it would be a miniature Italian donkey. 💞💞💞💞 I love donkeys!

  • Pljohns

      Lisa-that is absolutely WONDERFUL!!!  I'm so glad you are doing well-you've had a long haul with this flair and a good day is exactly what you needed

  • Shea

    Lisa, that is so cool that you can do the injections at home yourself– makes it WAY easier than going somewhere. And that is great that you've been feeling better since starting! I will have to ask my doctor about it next visit. I appreciate all the info and everyone's questions/ answers on here. ☺

  • LK

    Shea,  I think I will feel more comfortable as I do more of them.  It is a lot easier than going somewhere to get them, that is for sure!  

  • K8sMom2002

    Lisa, this is marvelous! I am so glad! And thanks for the entertaining "horse" trivia!

    Shea, do let us know what your doctor says!

  • Marie E Natzke

    LK yes giving self injections does get easier each time you do them.. With my humira injections I find that it's better if I relax for a little while before I do the injection and then for the rest of the evening after I take the shot. It seems to work better. I don't know how it would be for an asthma drug but maybe the same?

  • LK

    Thank you, Marie, for letting me know what works for you!  I appreciate that.  Makes sense to start out relaxed and that a person's body would metabolize an injection more efficiently when not stressed. Will have to remember that for the next ones.  I know from giving horses injections that needles go into muscles more easily when the muscle is relaxed than when the muscle is tense.  I think it is less painful that way as well.  Good to know that it will get easier!  

  • LK

    Still good FEV numbers but just coughing some and a little bit tight so going to do half a vial of albuterol on the neb before I go to bed this evening. 

    Have a pulmo appointment first thing in the morning but it will still be frigid out, single digits, so trying to decide if I should call and cancel in the morning.  Don't want to undo whatever progress I have made so far!  On the other hand, if I am still doing so well in the I would love to show my pulmo the improvement!  Will decide in the morning.  

  • Breatheeasy

    Great that it works for both asthma and eczema.

    So good! Happy for you! Hope this keeps working for you!

  • LK

    Called my pulmo and they had an opening for next Wednesday so am doing that appointment instead of this morning's.  

  • K8sMom2002

    Glad they had another opening and that you thought through all the pros and cons! It was really smart to check in with your doctor to get the doc's advice!

  • LK

    Thank you, Lynn and Cynthia!  

    Still breathing really well today without any nebs!    Actually thinking about what else I can do today and not just trying to breathe.  It's like I can think more clearly and just FEEL BETTER.  

  • LK

    Thank you, Lynn!  Hesitant to hope that it will last but still hoping it might!    

  • LK

    Haven't needed a neb today until just now.  Did some errands since it's up to 50 today.  I was coughing more and just a little tight and wheezy.  Not nearly as bad as I have been though!  Could be because I was pushing it and didn't wear my mask the whole time I was out and about.  Harder to want to wear it when it's warmer outside.  

    Still feeling great!