Hi all, while I’ve been recovering, it has been tremendously comforting to read about endeavors to expand awareness, research, understanding and care for those diagnosed with severe asthma. Reading about the impact of severe asthma from patients and seeing on paper that they experienced many of the same emotions/worries I have struggled with over the last 8 months made me feel less alone and fearful.
As I find them, I’ll share some of the patient studies and documents on our type of asthma, its impact and our rights and what we should expect from our care teams.
click the patient charter to read the article and basic rights we should expect in our care
Click to read the severe asthma Canada – the patient journey
AAFA my life with asthma, 2017 survey of 800 Americans living with severe asthma and the challenges they face