Being a mom of a child who is medically complicated or having a chronic illness yourself is tough. There are decisions that we make that are not easy. There are times we have to keep our children or ourselves from doing the things they/we love because they/we need a break or it just isn't a wise idea at the time.
Today, I had to make a decision to let Rebekah go somewhere even though I know she will pay for it later. And for me it comes down to quality of life. She already misses a lot, at times she just wants to be a typical teenager.
Neil took Bekah and Josh to a local county fair tonight. She got to hang out in the barn with the horses. She would sleep there if she was allowed. Now, she is watching our Pastor during the school bus crash derby. Yep, you read that right. Our youth decorated a school bus, and our Pastor is driving it in a derby. And my daughter is loving every minute of it. She needed this tonight.
She will come home and sleep. She will get a shower in the morning and I will reaccess her port. She had to deaccess because she was sweating her dressing off. But all of it will be worth it for her.
What are some things that you allow yourself to "indulge" in so YOU can be a "typical" adult, knowing there may be consequences later?