Adult onset asthma. My asthma journey started in late June 2018, with a family road trip to Yellowstone from Oregon that included an urgent care trip the day before leaving (cough syrup with codeine- thank God), ER in Idaho first night(asthma attack- chest X-ray clear, breathing treatment, prednisone and inhalers started), phone call to GP next night in Montana (prednisone increased, added singulaire and fresh inhaler), 2 visits to urgent care in the park (breathing treatments, added Flovent and z pack), ER night we got home (same asthma flare, X-ray clear, breathing treatment, heart tests, blood tests, meds and home).
2 specialists later and I am with an asthma and allergy doctor, taking Breo Ellipta 200/25, xyzal 25, albuterol as needed. Allergic to mold, dust mites and ragweed. Seem sensitive to air quality and URIs. I am not presenting “normally”. My main symptoms are cough and shortness of breath.
So two weeks ago I got an upper respiratory infection. I went to my asthma doctor, I felt horrible and couldn’t stop coughing and was SOB. She gave me oxygen and said this is your “vcd” cough. Told me to rest and prescribed Tessalon Perles. I haven’t even had the vcd assessment. I went home. Two days later coughing worse, SOB worse, still feel terrible. I called the after hours doctor and got my doctor. She said I told you this was your vcd cough, take the Tessalon Perles. I said it’s not helping, what about the asthma. She said I think it’s the vcd and you can always go to an ER. I hung up and cried. A nurse called me on Monday to set up a referral for the vcd assessment and asked if I had questions. I said yes, I’m still struggling, what about the asthma. She said oh the doctor told me it’s your vcd. I missed 3 days of work and went back sick and still struggling.
I went to urgent care on Friday, they did an X-ray, clear. They diagnosed me with an acute asthma exacerbation and prescribed prednisone 5 day. The breathing started clearing up a few hours after my first dose and was hugely better the next day. The prednisone knocked it out.
I have read that vcd does not respond to asthma meds. I felt so let down by my asthma doctor. I went to my GP today about a week later and he was great! He helped talk through everything with me, is sending the other doctor a note and wrote me a RX for prednisone to “keep in my purse” in case I need it in the future.
What have others done when their asthma doctor won’t listen to you? Has anyone else had asthma that doesn’t act “normally”? Does anyone have asthma and vcd?
sorry this was so long, I’d appreciate any advice or input.