Has anyone else had meds just quit working? I can't use inhalers, and that issue flows over into the too self conscious to use nebs at work.
I just can't seem to get over being very self conscious about the nebs. I would give anything to be able to use inhalers, but the propellant in them is what my lungs don't like. I can use inhalers for some steroids but all we can figure is the steroid itself combats the reaction to the the propellant.
When I was originally diagnosed, my doc said there was nothing to control my type of asthma-it was in the pipe, but it was at least a decade away-so we threw everything but the kitchen sink at it until we found something that would work as well as anything would-but she said the chances were that it would only work for a while-and then it would quit. She said we would just have to start all over again every time and hope we could keep finding something that worked until the meds in the pipe were out. I'm using a COPD med off label because of reactions to all of the asthma meds. Slowly, one after another inhaler quit working-including all of the albuterol ones on the market. I knew when the inhalers started to fail on me, what was happening. I've been scared to death recently that all of my meds are starting to fail on me, just like my doc said they would. Now, 3 doctors later, I'm afraid that's what is happening and I have no doc to help. All of the docs I've seen that are good have left the area or are no longer seeing pulmo patients-sleep apnea patients only. I had to cut my main med back to 1/2 dose months ago-I just can't afford the almost $900/month price tag for 1 med and then almost $300 for the steroid inhaler on top of that. My lungs are more twitchy because of I've had to cut back, but it is what it is. Nothing will ever control this mess, but with full doses, it was at least not as twitchy.
I know you guys probably think I'm stupid about the nebs and work, but I've had too many bosses humiliate me in front of others about my asthma or when I needed a neb, and I just can't get past it. My new clinical director is amazing-very caring, family oriented, strong Christian man, but I've just been burned too many times to feel comfortable-or to forget.The smart side of me knows better and knows I need the nebs, but the hurt side still wins out. I guess also, part of me thinks and hopes that if I don't use the nebs unless I absolutely can't go any longer, maybe it will be longer before they quit working as well.