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looking for feedback – what’s most important to you?

Hi everyone! I'm just doing a quick "poll" to understand what's most important to you as a person with asthma. 

I'd be so grateful if you would please rank the following three things from 1 to 3

(1 being "most important," 2 being "second most important" and 3 being "third most important"): 

  • Your ability to sleep better
  • Your ability to perform physical activity/be more active
  • The slowing of your asthma progression (slowing down how much your asthma worsens over time)

 

Specifically, think about these in terms of outcomes of asthma treatment. What do you want your treatment to accomplish? 

Please also let me know if there's something that's important to you that I didn't mention. What am I forgetting?

Thank you!

 

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Comments 10

  • LK

    Hi Sanaz,

    My ranking would be:

    • Your ability to perform physical activity/be more active
    • Your ability to sleep better
    • The slowing of your asthma progression (slowing down how much your asthma worsens over time)

     

    Actually the first two are pretty much tied.  Each of them help the other.  It may seem short-sighted to rank them in this order but if the first two on my list can be achieved, then hopefully the third one will follow suit.

    Thanks!

  • Sanaz Eftekhari

    @LK 

    Lisa—thank you sooo much for the insights! Let me know if you think of other “outcomes” that might be important for you.

  • Emelina

    Howdy, my rank list is the same as lisa’s.

    Here are ideas for other treatment outcomes

    – reduction of asthma’s impact on your full participation in school/work

    – reduction in # of Exacerbations per year requiring hospitalization

    – reduction in annual health care costs (medicines, ed/clinic/urgent care visits)

    – reduction in social/emotional impact of asthma on your mental wellbeing/health

    – level of satisfaction with one’s level of asthma control

     

  • Shea

    I guess I want all 3… To sleep well, to be able to be more active, AND to slow/stop any worsening of asthma. There really isnt any room for compromise.

  • Deborah Bartlett
    Sanaz Eftekhari posted:

    Hi everyone! I'm just doing a quick "poll" to understand what's most important to you as a person with asthma. 

    I'd be so grateful if you would please rank the following three things from 1 to 3

    (1 being "most important," 2 being "second most important" and 3 being "third most important"): 

    • Your ability to sleep better
    • Your ability to perform physical activity/be more active
    • The slowing of your asthma progression (slowing down how much your asthma worsens over time)

     

    Specifically, think about these in terms of outcomes of asthma treatment. What do you want your treatment to accomplish? 

    Please also let me know if there's something that's important to you that I didn't mention. What am I forgetting?

    Thank you!

     

    Good day! 

    1st would be slowing the progression. I also have COPD, so this is important to me.

    2nd is the ability to perform physical activity. I do not want to lose that.

    3rd is the ability to sleep better. 

    I want and need my treatment to completely control my asthma. At this point, it may not be. Docs and I are working on this now. 🙏

  • MizWheezie

    First and foremost for me would the slowdown of any progression - 

    2nd – I'd have to say: The ability to be more active – I'm always tired – ALWAYS 

    I actually don't have any (asthma-related) problems sleeping (Thank God)

    (It's those occasional sinus infections that keep me awake)

  • Pljohns

    I would have to say tops for me is to slow down the progression, second is be able to be more active but I'm pretty much doing whatever I want right now.  A biggie of me is more meds for my type of asthma but I guess that falls under the slowing down the progression.

  • CAPuttPutt

    @Sanaz Eftekhari

    For my son who is 6, I'd rank as follows:

    • Your ability to sleep better #3
    • Your ability to perform physical activity/be more active #2
    • The slowing of your asthma progression (slowing down how much your asthma worsens over time) #1
  • Kelsey124

    1. Ability to be more active

    2. Sleep better

    3. Slow the progression

    I’ve come to terms with the fact that it will get worse and progress overtime, because they don’t really know how to slow it down, stop it, or cure it. I care more about quality than quantity. That may sound extreme but it’s honest.

  • Sanaz Eftekhari

    Thank you all sooo much for your feeback! I really appreciate it and I completely understand there really shouldn't have to be any compromise here.   @Emelina @Shea @Deborah Bartlett  @MizWheezie  @Pljohns  @CAPuttPutt @Kelsey124