I'm still dealing with problems from the last thread about my wedding and being surrounded by triggers, but the situation has evolved and I'm undergoing what seems to be a new flare-up. For the past two days it's been inhaler every four hours, chest tightness, and waking up in the middle of the night last night, resolved with a nebulizer treatment. I called my doctor today and am hoping to get a call back and appointment soon.
I was diagnosed in July, and I'm still very much learning to deal…without much help. The PA I have been seeing through my asthma/allergist specialist's office seems to know very little about asthma. My next steps are asking if I can see the real doc only and going back to my PCP to ask for recommendations for other allergists/a pulmonologist.
I've done testing for chemical and environmental allergies to try to figure out triggers, but the blood test they did for environmental allergies came up negative for everything…not very helpful. So I'm left sussing it out by symptoms, which is hard and scary. I think dust is a problem, as I work in a dusty bookstore, and after handling some particularly dusty books yesterday, I was using my inhaler and nebulizer late into the night.
Right now I am using a symptom tracker, and because the PA did not seem to know what peak flow is or how to prescribe me a peak flow meter, I bought one myself. I'm three weeks from my wedding, and living in an airbnb to escape mold while we wait to move in to a new apartment…the move-in date for which keeps getting pushed back. Stress may be another trigger.
Has anyone else had to do a lot of management without much patient education? I'm trying to get a better medical support team (and quick), but for now, I'm forced to figure out how to manage the best way I can.