A late night thought: have you guys heard of illness narratives or written your own? Here’s a little description of them:
When I was in school, we had patients come to our class to share their experience of illness. Because it is one thing to know the signs and symptoms of disease, but quite another to understand what the experience of illness is like, my teachers made sure to continue these visits because they wanted to make sure we never lost sight of the most important person in medicine: the patient.
After the last few months of this tumultuous struggle with my lungs, I have been trying to write my own illness narrative to make sense of all that I’ve experienced and pick up the pieces of what a bad bout of asthma shattered. I’ll take a stab at sharing my illness narrative here, but was wondering if others would consider sharing theirs too? A few questions: what does “illness” mean to you, what has chronic illness taken from you? What has chronic illness taught you? What has illness given you? Has your hopes/dreams for the future changed?