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I Have a Dream

Hi everyone,

Asthma awareness month and world asthma day are getting near…

How would you like the world to change asthma-wise? Do you have a dream for better days to breathe in?

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Comments 17

  • Melissa G

    Wow, Wheezy Me, what a great topic! 

    1. more research

    2. more affordable medication

    3. more education

  • Wheezy Me

    Thanks Melissa! You brought some important points! Research is being held all over the world, and asthma treatments have come a long way in recent years (biologicals, portable devices, once-daily inhalers etc). I hope it will keep improving too!

     

    I dream of air that is cigarette-free and cleaner for everyone.

  • Shea

    I dream of more dander-free environments and awareness among pet owners and service animal owners to help keep certain spaces animal-free.

    It isn't that people with dander allergies do not like animals or do not think your animal is special to you or that it makes you feel better to have it with you– we do not deny that. We just deserve a right to be in social environments safely too– and it isnt just anxiety or just a stuffy nose– it is the development and worsening of long-term chronic allergic and asthmatic diseases, it is also the short-term asthma attacks and hives, it is anxiety from that happening to us, and we need them to understand that we need space too. If a cab driver doesn't want to take your dog into his cab– should he be fired? If an flight attendent is getting chronically sick from all the animals on planes, should she get worse and worse or lose her job or her health? Does an asthmatic office worker have to leave the offuce because its fun having animals inside?

    I wish to be free of medications and able to breathe. I wish to also be able to be a part of society. There are dogs in hospitals, in my allergist office– at Walmart, Target, the library, schools, even food-allergy-aware homeschool co-ops. As long as we have a population with allergies asthma and conditions that are shown to be worsening by animal dander– this is not fair!

    I wish for govermental policies that support cleaner air both inside and outside.

    We have "building sickness"es, we have pollution problems, we have agricultural problems, we have food problems we have work/home imbalances, we often dont know where our products come from or how they are made. We need programs that support transparency, we need incentives to get companies "green", we need inspections to include mold in buildings, as well as keep chemical irritants away from people's lungs and skin.

    We have big companies that cannot change on their own but are causing pollution of air of which the clean-up is not included in tbe price of their products. We need carbon taxes and tax breaks for off-setting– we need the health of the earth and the air and the water (not to mention THE PEOPLE) to be profitable and so it can use the engine of capitalism to get the underlying issues that are responsible for so many people's health deterioration to be quelled. 

    There are products we know that are harmful and addictive that are legal and when that person gets hooked and sick no one cares– they try to take away the healthcare, they try to not give it if you have prexisting conditiins in the past you could just be left for deterioration and death. But more things just keep getting legalized. More unknowns. More chemicals. More genetic alterings. Industry is running around like a chicken with its head cut off. We need to slow things down. We need real research and long-term studies. We need to take the ones we have seriously. And we need to stop wasting time.

  • Emelina

    I’m gonna go for the big tamale: asthma cure in all its forms.

    Until then, awareness and education about the spectrum of disease, affordable medications and easier access to specialty care. I feel so grateful for the opportunity to travel to Colorado. But I know that’s not a possibility for all. We all deserve the opportunity to live and love without struggling to breathe.

  • K8sMom2002

    Love this! My dream is a hybrid of all of yours …

    I wish that people could see that it's more than asthma … and that's in two different ways.

    People with asthma are more than their asthma — they can thrive and be successful and live happy, fulfilling lives, but only if they have the support of the people around them. 

    And asthma is more than just a physical set of symptoms: it can cost people money, their careers, their relationships, their peace of mind and their freedom. It can ultimately cost people their lives.

    I think if the rest of the world can really see us — and see asthma's true impact — then everything else will come because the priorities will be so clear. 

  • Deborah Bartlett

    My biggest dream…more education! With more education, there could be less triggers for us asthmatics!! It would be safer for us to go into public places. Maybe we could wear our masks less often! Maybe there would be less pollution…meaning less flare-ups and lung infections! Education is a marvelous thing. I learn something new every day. I will never stop learning. 😊

  • Wheezy Me
    K8sMom2002 posted:

    And asthma is more than just a physical set of symptoms: it can cost people money, their careers, their relationships, their peace of mind and their freedom…

    I think if the rest of the world can really see us — and see asthma's true impact — then everything else will come because the priorities will be so clear. 

    Reminds me of three short videos that Asthma Australia launched several years ago (came across them on youtube by chance). They titled their campaign Live, Love, Play to show how asthma can affect different aspects of everyday life, and encourage people with asthma to control it better.

    Live:

    Love: 

    Play:

    I think these can do a great service if we forward them.

    I loved the Play one the most, BTW.

  • Emelina

    Ah, thanks for sharing wheezy me! These videos were awesome! They made me smile but brought up a great point about asthma touches all aspects of our lives but doesn’t have to rule it. I’m naughty. I kinda liked the eye candy in “love” and laughed when the doctor scared him with his shirt. I loved too how they featured people from all walks of life in different scenarios. 

  • Shea

    Oh my gosh those movies made me mad– it is like they are telling the asthmatics to control their asthma better by medicating with astra zeneca instead of teaching your child not to pet animals you are allergic to, also stop using cologne that has harsh chemical irritants, maybe take it slower after a first date and actually spend time educating your partner, and the waiter– seriously?– id never go to a restaurant that lacks compasdion tbey probanly have high sulfites in their food… Steroids and steroid inhalers are not the answer to everything and its not all our fault … I dont like the messsage "maybe I can do better"– maybe everyone rlse can too. We shouldnt have to feel guilty and medicate and walk back into those situations!

    Why did that doctor lady steal her cab? Her job looked horrible too.  Ugh. 

  • K8sMom2002

    Shea, you make a good point that messages need to be balanced and that people need to understand how we can be limited … I hope that what they were trying to tell people was, "It's not hopeless. There are things you can do to improve it."

    I think about all the things you've done to improve your asthma — your phenomenal cleaning, your new house, the pet-free zones, the masks that you use — you've worked really hard to control what you can control. 

    That's what AAFA is trying to do with this month's awareness campaign — show how we are more than asthma and allergies, but asthma and allergies mean more than a physical disorder that can be treated with a dose or two of medication. 

    I love, too, how you uploaded your photo for the # photo contest! I hope everyone here will do the same! 

  • LK
    Wheezy Me posted:
    K8sMom2002 posted:

    And asthma is more than just a physical set of symptoms: it can cost people money, their careers, their relationships, their peace of mind and their freedom…

    I think if the rest of the world can really see us — and see asthma's true impact — then everything else will come because the priorities will be so clear. 

    Reminds me of three short videos that Asthma Australia launched several years ago (came across them on youtube by chance). They titled their campaign Live, Love, Play to show how asthma can affect different aspects of everyday life, and encourage people with asthma to control it better.

    Live:

    Love: 

    Play:

    I think these can do a great service if we forward them.

    I loved the Play one the most, BTW.

    Wheezy Me,  I watched the videos and waited a day to see if my perception of them would change.  It didn't.  I understand that the producers of the videos seemed to want get the point across that asthmatics should use their inhalers when needed, not just when it was convenient.  Also that asthmatics need to discus with their doctors how they are doing and what they can do to improve their asthma.  Both are valid points.

    My concerns with the videos are that none of the people using their inhalers held their breaths the required seconds after inhalation to keep the medication in their lungs.  Each person immediately breathing or exhaled quickly.  The thing that bothered me the most is that it also gives the appearance that if you have asthma all you need is your rescue inhaler. 

    Sorry to disagree but these videos just don't seem to do a good job conveying what asthma is really like for some of us or give a good example of how to use rescue inhalers.

  • Wheezy Me

    Lisa, I didn't even notice that. You're right, but the point of the video wasn't demonstrating the correct use of inhalers, but rather showing how asthma affects our daily lives, and that uncontrolled asthma should be discussed with a doctor and get treated.

  • Deborah Bartlett

    I remember those TV commercials for COPD med. It was for an inhaler..could have been Symbicort. It showed two older people. The man was laying on a couch with an elephant on his chest. Yes..  COPD sometimes feels like a tractor trailer is parked on your chest. Then, supposedly, after using the med, they were "all better". The couple was walking hand in hand on the beach, as if nothing was wrong. I had not yet been diagnosed with COPD at that time. When I think of that commercial now, I know that they are not showing us what COPD really is. They want us to purchase and use their medication. I did use Symbicort for two years. It wrecked me. It did not help me. It caused severe thrush. It destroyed my nails. It caused me permanent damage. Some commercials and videos present the wrong image. They glorify the story. They are not honest. It's not fair. It's not right. 

    Every person who suffers with asthma and/or COPD is a different case. No two people are the same. People can react differently to medications. Have different side effects. Take longer to wean off of Prednisone. Have weaker immune systems. WORLD: Become educated! May is THE month to do just that! Please try and help us…the ones who suffer and struggle! Keep your pets at home. They don't need to go grocery shopping with you. No more loading up with fragrance. Save it for your private times. Please have some respect for us!!! We're just trying to get through the day. It is very difficult for us to try and accomplish the things you don't have to give a second thought to. 

    Amen. 🙏 😊

     

     

  • Shea

    It is unfortunate that most people know what they know about asthma from drug companies because they can make enough money for airtime on TV and to run abd publish studies and can get in with the doctors more easily than anything else. But this is more than a "drug-cure"– there is no cure! I hate the zyrtec commercial that is like "because a stuffed animal is no substiture for a real dog".. It makes me so mad lol. I also get angry with the dog-obsessed media and that allergies is rarely mentioned ever.

    I also noticed the inhalers in those videos were all misused! I just thought– no one who made this video has asthma. They seemed to be writing from the perspective of an outsider. 

    One day, I want to write and make videos/ media that help spread awareness and in a realistic way. 

    Thank you Cynthia for liking the photo and just being here for me as I have made a lot of difficult progress with this disease. Many on here have seen me when I couldnt go to celebrations around family without severe flare-ups and I finally can and it seems so snall if a thing but it is huge that my oarents have kept their home a nice common space for us to meet with no aninals inside that any of us are allergic to. 

     

  • Emelina

    Thanks Lisa and Shea, you guys bring up great points. I didn’t pick up on the incorrect inhaler use. No spacers ugh! And yea, that’s a bummer that it focuses just on rescue use. You’re right too, the treatment for us is more than just drugs. 

  • Deborah Bartlett
    Shea posted:

    It is unfortunate that most people know what they know about asthma from drug companies because they can make enough money for airtime on TV and to run abd publish studies and can get in with the doctors more easily than anything else. But this is more than a "drug-cure"– there is no cure! I hate the zyrtec commercial that is like "because a stuffed animal is no substiture for a real dog".. It makes me so mad lol. I also get angry with the dog-obsessed media and that allergies is rarely mentioned ever.

    I also noticed the inhalers in those videos were all misused! I just thought– no one who made this video has asthma. They seemed to be writing from the perspective of an outsider. 

    One day, I want to write and make videos/ media that help spread awareness and in a realistic way. 

    Thank you Cynthia for liking the photo and just being here for me as I have made a lot of difficult progress with this disease. Many on here have seen me when I couldnt go to celebrations around family without severe flare-ups and I finally can and it seems so snall if a thing but it is huge that my oarents have kept their home a nice common space for us to meet with no aninals inside that any of us are allergic to. 

     

    And what a good job you would do making videos/media. They would be accurate, based on your own experiences. No baloney….just reality to the max.