I don't post often, but wanted to share this update. This comes as a complete and utter surprise to me!
The last week of February I spent at National Jewish Hospital in Denver for a complete pulmonary work-up. I have never been through so many appointments and tests in so short of a time before! It was quite exhausting both physically and emotionally but I found out some very interesting news.
First, I passed the methacholine challenge which they said is the only true test for asthma. So no asthma! I've been treated for asthma my whole life so … ?!?!!
I DO have tracheobronchomalacia, which I've learned is a collapse of the trachea and bronchi upon exertion, laying down, and coughing. This is progressive and irreversible which is not good news for me. However, it explains so so so much in terms of my symptoms and seeming resistance to treatment from steroid inhalers.
I write this to those of you who feel like none of the inhalers are working and your asthma is uncontrollable, or you feel like there must be **something** else going on with your lungs but your doctors seem to be stuck on the "Oh you just have asthma" line. Don't give up — be an advocate for yourself and follow your gut. It is worth it.