I was wondering how you all avoid sugar coating how you are feeling when you go to the doctor? I have a pulmo appointment tomorrow and feel a bit nervous/uncomfortable about going to tell them (resident and pulmo) how much I’ve been struggling. You know it’s bad when you want to walk in and say can I please restart pred?
The first time I saw my doctor I had an asthma control test of 12. I repeated it last month and got a 19 with all of my meds + prednisone, but tried it again and am back down to 15 after weaning off prednisone. Asthma is interrupting my sleep again and I’m needing more albuterol and seeing yellows again.
I’m not sure what the rub is? Wanting to be a “good patient”? Not wanting to say sorry! The plan isn’t working? Maybe denial? I know what the right answer is; the doctor can’t help you unless you accurately convey your symptoms.
(Sigh) Chronic illness is tough! I wish the recovery were linear, rather than 🎢 and easier to find the right medication combo.
Thanks for listening! Best, Em