Navigation

Home from hospital recovery

Due to a Viral Brinchitis that led to an “Acute Asthma Exacerbation” and 2 ER trips and then a 10 day hospital stay. Today is my first day home and this is not easy! I still feel out of breath and cough if I get up, talk a lot, move around at all. I am needing the nebulizer every 4 hours. I have have strong cough syrup that helps some. When I cough, I usually feel junk in my lungs. My family things I should be more pleasant and getting better. I feel terrible, a little scared and frustrated. What should recovery after a long hospital stay be like? Any experiences, ideas? I do see my primary care doctor tomorrow- can’t see pulmo until Friday. 

64
270

Comments 64

  • Kathy P

    Hugs – glad you are out if the hospital! It sounds like you had quite a flare. It can take a while for things to significantly improve. I would ask the doctor tomorrow for a basic timeline and what parameters would mean coming back for additional assessment. 

  • LK

    Shadowcat,  So glad you are improved enough to go home!!  You've been through so much lately!  

    I have not had a hospital stay so I won't speak to that but I do know that it takes my lungs FOREVER to get back to "normal" after a long, long flare.  Especially after any sort of respiratory infection to boot.  

    Do not push yourself just because others, family included, think you should be better or acting more pleasant.  They have not been through what you have so, try as they might, they cannot "walk in your shoes" and really understand what you are having to deal with.

    For me, when I have a long flare, I feel like it would never end.  Feel like I should be getting better faster.  Feel very frustrated that I was working so hard every breathe to breathe.  Feel like I was not making any progress.  Feel like I should be doing more around the house.  Feel angry when I could not do most anything without a coughing fit and being short of breath.  

    It is hard, I know, but try to remember that it takes teeny, tiny baby steps at this point and they are the hardest to see when you are the one taking them.  Keep in touch with your doctor if you have any questions or concerns.  Many times it helped me to just speak with the nurse at my pulmo's office.  Keep taking your meds and nebs on time.  

    I would compare recovery from a long hospital stay for asthma to a long hospital stay for most other serious medical conditions.  Would you expect someone who had just had pneumonia or major surgery, for example, to be cheery, outgoing and ready to tackle the world as soon and she got back home?  Of course not.  You would expect her to have a long recovery because she had had a major challenge to deal with.  

    Long flares not only make our lungs work extra hard to breathe, they also drain the rest of our bodies.  Be as kind to yourself as you would be to anyone else who had gone through what you have.  You will keep getting better!!  

    Hope your appointment tomorrow goes well!!

    Glad you let us know how you are doing!!  

    Sending you         !!

  • Emelina

    Just my own experience from a much milder flare, it will take weeks to feel back to normal. Like the above people have suggested brilliantly, tell family their expectations are unrealistic. My first week from the hospital I basically ate, slept, showered and did nebulizer treatments and went to follow up appointments. That’s it. I couldn’t stand for long periods to cook or clean or drive the kids I was so tired. Be especially kind to yourself as your steroids are adjusted, that will add to your fatigue levels. I think it’s an excellent idea to talk to your pulmonary and pcp about what to expect in terms of recovery and danger signs. Hope you feel better soon and get some much needed rest!

    drink plenty of fluids to keep the mucus secretions moist, consider using a humidifier and ask your doc for an incentive spirometer and acapella device. The is will exercise/expand the lungs and the acapella can help bring up mucus when too weak to cough

  • Emelina

    Just a visual example for you … this is just 2 weeks of all the nebs that I needed in the post hospital period. It took me 3 weeks before I could transition from nebs to inhalers. Please be patient with your lungs and yourself. Like a broken leg, you just went through a major ordeal! Each day should get better!

  • Shadowcat04

    Last night, getting up the stairs to my bedroom, it took me about 20 minutes to recover enough to go to the bathrooom, take night meds and brush teeth. I used my inhaler- too early for neb. Then I gasped for another hour. I was scared I’d die in my sleep. I was trying so hard not to cry and make it worse, but couldn’t catch my breath. My DH said “see you in a couple hours for a neb”. I told him, you don’t know how hard this is. He did say, no he didn’t, but soon fell asleep. Well, I didn’t die. 10:00pm. Woke about ever 2-3 hours cough/ breathing. Woke DH for neb and cough med at 4:15 am. He was very attentive to that. He said-“look how long you made it!l”. At 6:45, he asked me to make sure the kids were getting up for school- I said I can’t. At 7:45, I planned my quick action move. Made a pole for him. Put on clothes I could wear, bathroom, am meds, teeth and moved down to couch. Like a beached whale, gasping for air. Needed immediate neb- which I got. I have everything around me and then, kids left for school and my DH said, so I’ll be back around 2:00? What? Day 2 and I’m alone  I can barely make it to the bathroom. I’m shaking, I’m still struggling to breathe. This is so scary. He said he might be able to come back for lunch – I said that would probably good. He also said he’s just a phone call away. But, I don’t think this is what the discharge people at the hospital had in mind when they said someone should be with me and help me. The kids have a band concert tomorrow and they all think I’m going.  I almost fell over coming down the stairs! I’m so tired, scared, frustrated and feel alone. Thank god for all of you, listening.  

     

  • LK

    Shadowcat,  Oh, honey!      I hear you on having to stop so often just doing simple things to catch your breath!  It is so scary when you don't know if you will have an attack while you are sleeping.  Terrifying actually.  

    Since your DH can't/won't be home all the time, is there a good, kind neighbor you can call to come over right now?

  • LK

    Or a church member?  Perhaps call  your church and talk with the office and see who they would recommend.

    Just trying to think of who you can call who would be able to come over immediately.

  • LK

    At this point you definitely need someone there to help you and take the burden off your shoulders for the duration of your recovery.

    Is there anywhere you can sleep on the first floor so you don't have to climb the stairs?

    Did the doctor tell your DH that he or someone needs to stay with you?  I know that my DH needs to be told things specifically or it doesn't sink in sometimes.

  • Shadowcat04

    Getting to the appointment was a big challenge. To the car, walking to the waiting room, walking to the exam room (the last down the hall). I was totally out of breath. Of course my O2, as usual, was fine, but breathing was very hard- SOB, cough, shaking. Anyway, my doctor listened, he advised, we went over stuff. It was okay. At the end he brought up anxiety, which set off my anxiety. The prednisone is likely making it worse, but I am also struggling to recover. I wanted DH to hear about how hard it is from the doctor, which he sort of did and I ended up offending my DH in the process. DH is ovsessing on this idea of a secondary staph infection that one of my coworkers had last year that was similar- farthest from what I need help on.

    I feel about the same as yesterday- I last about 4 hours for nebs, but I’d I get up to do anything, I have about 5-10 minutes until I am SOB, weak, coughing and shaking. Doing any task is so hard. My DH got me downstairs and set up before I wanted to get out of bed. He got me one more neb and breakfast and then basically said he can’t come back until he takes me for my appointment at 1:30 (in about 5 hours) because he can’t leave work today. I am surrounded by meds and remotes, but still scared. Make my own lunch, get ready for an appointment- dressed, teeth, etc. plus anything else. I realize this is a lot of complaining and anxiety and I need to calm down, but I just need to say it to someone. Thank you for listening. 

  • Shea

    It is totally OK to be anxious, and do not worry about complaining at all– most of us have been in a similar situation and needed to vent, cry, let out that anxiety– we are happy to be an ear and a shoulder here!

    I am so sorry to hear all that you have been through. 10 day hospitalization is no joke and it sounds like you were very near death in it all and feel like you've been clinging on. I had a similar situation before/while being diagnosed with Churg-Strauss Syndrome. 

    There is nothing scarier than wondering if you are goung to get your next breath in, and it takes a while to get used to needing to hook up to a machine just to breathe.

    I eventually did get the LifeAlert system after being scared to be at home by myself. It really put me at ease because I can wear a button and push it from anywhere and it will call the LifeAlert people, who have all my info so I dont need to repeat that– they have all my emergency contacts so I can say, call so and so or I need an ambulance or if I say nothing they just will send an ambulance and let the drivers know all my medical stuff. 

    The other thing I do if I am really feeling bad is have a "check in" phone call or txt msg with people– if I dont answer I tell them be worried, keep trying, and send help or have a neighbor check in on me because I swear I will be by my phone at that time and if I dont answer something is wrong. 

    Be careful on any lowering of prednisone– I had so many trials with lowering on it and I learned not to push myself too hard and to let the doctors know if I wasnt feeling well before lowering according to the initial schedule– sonetimes the scheduke needs to be altered. You dont want to lower when you are feeling horrible. If you are barely making it through the days, you can definitely call, leave a msg with the nurse, and talk to the doctor about it– you might need to go up on it. 

    And yes, prednisone can make you feel very — tense and quick to anger and just ahhhh… So just being aware of that effect can be helpful. Also, trying to do things like art can be helpful– I dont know why, and I am not psrticularly skilled in art, but it helped to have pastels or an adult coloring book to get out some angst and focus the mind and express in colors. 

    Also come on here and venting helped me. 

    What you are going through is real and serious and you are doing a great job coping with it.

  • Shadowcat04

    2 hours after my neb, got up to do a few things for myself (total 10 mins). Coughing, SOB, shaking, weak, barely accomplished tasks. Coughing and wheezy even after inhaler albuterol and Atrovent. Laid back, almost recovered. Well, it’s not just anxiety. Though, I went ahead and took that med (as the doctor suggested)- maybe that’ll help. Rest up for next neb. Worry about food, clothing, teeth in a couple hours. Did I mention that my DH and lovely, confused and disappointed children (13 and 15) still think I am going to make it to their band concert tonight? Breaking my heart. 

  • Shea

    Jeesh– they need to all just open there eyes to what you are going through. Sorry– I didnt mean to be insensitive to them–  but Im just concerned about YOU… And I feel like they should be too… I kinda wanna bop them on tbe head and be like helllooooooo!!!! And in my experience– if I was your dr (and Im not a dr) I would up your prednisone– you might even want to get a secind opinion or just get a ride to your primary dr– my primary dr will give me a steroid shot and pred as I wait for a specialist appt.

  • LK
    Shea posted:

    Jeesh– they need to all just open there eyes to what you are going through. Sorry– I didnt mean to be insensitive to them–  but Im just concerned about YOU… And I feel like they should be too… I kinda wanna bop them on tbe head and be like helllooooooo!!!! 

    Shadowcat,  I'm with Shea.  Concerned about you!!  

    Is there anyone who can come stay with you and drive you to your doctor appointments?  A good neighbor?  A friend?  Sometimes it is so hard to ask for this kind of help but those are the times when it is something that must be done.  Know that the pred is having a lot to do with the highs and lows of emotions.  Spoken from experience!  

    When one's family still thinks you can do things that you aren't up for yet it is heartbreaking.  For me, a big part of it is, not only that I can't do what I used to be able to do, but that they were so unaware of how I was truly doing that they either don't understand or don't want to admit how badly I was.

    Sending you very gentle   !!  Please keep us informed how you are doing!

  • Melissa G

    Oh my Shadowcat! That just breaks my heart. Sending you lots of hugs! How are you doing today?

  • Shadowcat04

    About the same today- nebs help, cough medicine helps, I take the anxiety medicine once or twice. Still very hard to do anything besides sit/ lie on the couch. I can get up for 10- 15 minutes and come back to my couch base SOB, coughing and shaking. Can calm with inhaler or neb or cough med or slow breathing or time or all. It’s exhausting. My husband went golfing this morning until 1:00 or something because he said he had to do something for himself. Left me with my daughter, 15, who is being helpful- but needs cajoling and sweetness to get her help (she’s 15) and she resents the 13 year old. The 13 year old has stopped talking and is sulking. I don’t know if he’s scared, mad, resentful. Meanwhile, I just feel awful and want to sleep and breathe. 

  • Shadowcat04

    Yes, pulmonologist said it’s going to be a long recovery. On work papers wanted to say at least 3 months leave . I said, 3 months like this?! She said, yes could be 2-3 months to get back to normal. I said, but I can’t do this for that long. What if I’m better in a couple weeks- she said maybe, then we could reassess. She did not seem confident. I can’t be away from school and my students for that long! And my family is barely handling 5 days like this at home. The pulmonologist said see her in 2 months, call in 3 weeks with update. School starts back in one week. I still can’t breathe or do hardly anything. This is so hard. 

  • Shea

    Im sorry Shadowcat! No one ever asks for sickness, but when it comes, we all have to cope with it together. People have to understand that you are sick and need to be at home and rest and pray and be thankful for each breath– I remember having dreams of tidal waves when my health crises hit 7 years ago. I held onto my life and my son like a person being hit with a tidal wave, popping up for breath gasping, and I had to just trust that I was going to be carried to shore. And now I am on solid ground. But it was hard to even imagine back then. I remember not being able to walk across the room without being out of breath. 

    Did you talk to your pulmo about how much you are struggling and if he or she thought you could try more aggressive treatment with prednisone? I know that is the only thing that brought me relief when I was that bad, and aggressively hit out some of the inflammation with a steroid shot in the butt and start my taper at 60mgs and stretch it out longer– it made a much higher quality of life and allowed me to complete my bare minimum acrivities of daily living. I k ow it is hard to do anything now even phone calls, but you could talk to your primary care too, get a second opinion from them, because if your pulmo knows you are struggling this bad and didnt change any treatment it just makes me worry. 

  • Emelina

    Goodness, I hope things start turning soon for you. I agree with Shea, I’d think about maybe getting another opinion or talking with your pulm again about how debilitating the dyspnea is right now. What regimen does your pulmo have you on? Like Shea said, sometimes a higher dose pred may be just what you need. I hope they are adjusting your meds to your symptoms. Does your pulmo like peak flow monitoring? It really helped me during my recovery to have objective numbers to look at to see when things were getting better and getting worse. I can’t imagine what you are going through. It’s so tough when people have expectations that don’t match what you are ready for. 

    My peanut gallery advice would be to talk with your docs and see if there is any room to adjust tweak or fine tune your meds. For example, I left the hospital on prednisone, levalbuterol, Atrovent and budesonide and tussinex. In 3 weeks that has changed to advair 250/50 then 500/50, required a major pred taper adjustment, added back singulair and added spiriva and a course of levofloxacin. And this is just with a pcp driving the ship.

    hang in there! You went through an intense experience being in the hospital for 10 days. I hope your recovery proceeds quickly and you are back in the classroom when your body is ready! 

     

  • Shadowcat04

    When I left the hospital Monday I had just switched to 40 mg, 2 x day (80 mg total) of oral steroids, from solumedrol the morning before. Then 80 mg Tuesday, and Wednesday. Thursday the pulmo said that is way too much and told me to change it (starting that night) to 60 mg. until Sunday. So, today is 40mg for 4 days, 30 mg for 4 days, 20 mg for 4 days and then stay at 10 mg. I am also to do Dulera 200 2 puffs twice a day and Spiriva 2 times a day. Singular once a day. Nebulizer 4 xs a day for 5 days, then taper down from that. I have a cough med, I can use every 6 hours and an anti- anxiety med. I don’t feel good – my stomach is upset, I’m tired, I’m still SOB and coughing whenever I get up. So, I’m not getting up much and trying to relax. 

  • Emelina

    Oofta, watch out, I just finished that taper almost exactly and the every 4 days is really hard. You might wanna talk to your pulmo if you start to struggle more, there’s always room to go up on your dulera. Are you peak flow tracking? Are you in the yellow or green? And are you trending down? I started to tank when I dropped to 20mg and needed some med adjustments then. What kinda nebs are you doing? I loved my Atrovent levalbuterol nebs. When I feel really miserable and weak, sometimes I switch the spiriva to that temporarily. I don’t care what any doc says, the nebs seem to work better! 

    I hope you feel better soon! What I’ve learned from these wise ladies is don’t be afraid to keep calling your pulmo for help and questions if things don’t feel right. You’ve been through a big ordeal and it may take fiddling but there’s a good med combo out there for you. 

  • Emelina

    The stomach upset might be from your pred. You can ask your doc if a anti acid med would help. I also had wicked bad nausea on high dose prednisone until I dropped to 20mg daily. Are you sleeping ok? I had miserable insomnia. Benadryl before bed seemed to really help me actually get some sleep so I could heAl! 

  • Shadowcat04

    Feeling about the same. Down to 40 mg, terrible stomach ache, nausea and nearly all day loose stools.  Breathing no better. My DH is going stir crazy and cleaning away “piles”. I’m helpless to stop him and likely to lose a lot of important paperwork. Very stressful. 

  • Shea

    Shadowcat, it is a good idea to give any changing/worsening/new symptons updates to your dr as you taper– he or she may decide to keep you at a certain dose or slow the taper.

  • Melissa G

    I think Shea has great advice. You may need to call and chat with your pulmo and let them know how much you are still struggling and maybe they can slow down the pred taper. 

  • Shadowcat04

    I called in and checked with my pulmo (well through the assistant). I shared about the nausea, near diarrhea, feeling “warm”, still SOB and coughing when doing the least bit of activity. I checked on another couple meds that weren’t clear on whether I should continue as well.  At first, the assistant seemed annoyed- but then I think she caught on and has been working on getting me answers. She told me to stick with the taper and she’s checking the other meds, too. It’s still difficult to do much of anything. My DH took my kids to a movie tonight- so I’m alone, but that may be restful. 

  • Shea

    Shadowcat, that was perfect– I am glad you stuck with the assistant so she really understood what to relay to the doctor. I hioe they get back to you soon. If they dont, you can always call your primary doctor too– my primary doctor is quicker and itd be a second opinion. And always know if things get worse you can go to a w4 hour clinic or ER. 

    It is really nice that you are able to get extra rest tonight, I am sure your body needs it after all you have been going through. Stay strong, you are doing great coping with this all!

  • LK

    Shadowcat,  Hope you are feeling better today!     Glad you stuck to your guns and kept asking the assistant until she understood how much you need answers.

  • Shadowcat04

    Meanwhile, my DH keeps “clearing” away things/ clutter- so he can organize. I started to cry. Out of helplessness and sadness. He was starting to throw away- old baby hair things. He said- you want to go through it? Great? No, I just want all the stuff left alone so I can relax and breathe. I don’t have extra energy for any of this and now I’m an emotional mess. 

  • LK

    Oh, Shadowcat!  Hope your DH takes it easy and doesn't stress you out anymore!!

  • Shadowcat04

    Down to 30 on prednisone. Definitely do not feel any better- hoping I don’t get worse with prednisone taper going down. I think this has not been an easy Spring Break for my DH and kids. DH went back to work today. Less stir crazy now. I still need a lot of help and can hardly do anything. This afternoon, I can add a headache and a little stuffiness. Mostly, still can’t get up for more than 10 minutes or so. Using nebulizer, cough med (almost gone) and the anti- anxiety maybe once a day. The doctor called in a different cough med, without codeine (that’s fine). But the cough med is one that I am likely very allergic to. I had anaphylaxis when I took a similar med 20 years ago. So, not gonna use that new cough med. Too tired to tackle the call to tell them that one won’t work, even though I know I have to. The cough med helps at night. Sigh. I am so tired. 

  • LK

    Shadowcat,  Sending you tons of   !!  Does your doctor have your medicine allergies on file?  They should have asked you when you saw him.  Can yo send a message through a patient portal to tell him of your concern about the new med?  Forgive me if you have already said this but, why is he reducing your pred when you are still struggling so?  

  • Emelina

    I had a thought for you shadowcat, maybe you are like me and more of an air trapper. I don’t wheeze much but do get very short of breath. One thing that seemed to help was a switch from advair to trelegy. Are you still tracking peak flows? That can be especially helpful when tapering. I noticed I was doing ok and staying green until I dropped below 30mg. Having objective data can make it easier to advocate for yourself and communicate effectively to your pulmo if the treatment is working or not. Hope you are feeling better and gathering strength. 

  • Shea

    I am with Lisa on the question of why the doctor would have you keep lowering when you are struggling so much where you are at? 

  • Emelina

    I agree with all above, if you’re struggling and still needing to neb frequently, it seems odd to still be tapering. Maybe you need to go up on your controller med a bit before coming down more?

  • Shadowcat04

    I think I can say that I am better than a week ago. Still can’t really do more than very short stints (10-15 minutes) of anything. Walking upstairs to my bedroom makes me out of breath. Showering makes me out of breath. The nebs still help. I’m still on 3 a day, from the doctor’s orders. I’m on 30 mg prednisone for a couple more days and Dulera 2 puffs 2 times. Spiriva 2 times in the morning. Singular at night. I asked for more cough syrup, that was helping at night and was prescribed one that would cause me anaphylactic shock. I’ve been having headaches and stuffiness, so I checked the only other new thing she gave me- azelastine nose spray. Turns out I shouldn’t take it with one of my other meds. So I didn’t do it last night. Maybe that’ll help. It’s all very confusing and at times it feels like I’m back at the start again, gasping for air. 

  • Emelina

    Howdy, just wanted to drop you a hello and ask how you are doing? I hope each day continues to get you stronger and breathing better! 

  • Shadowcat04

    I am still home recovering. Still can’t do much than be up for 10-15 minutes. A shower has me shaky and out of breath. I’ve been doing 3-4 nebs a day. I have needed one at night, every night. I am down to 20 mg of prednisone. I am wondering if that is not enough. I am also really, really tired. SOB and cough when I go upstairs. Recovery is taking forever. It’s hard to not be frustrated and anxious about it. 

  • Shea

    I am worried about you ShadowCat.

    It reminds me of what I was like pre-diagnosis of Churg-Strauss Syndrome. If I could go back in time and give my former self advice, Id say get to an immunologist who can understand the warning signs and what needs to be done for the disease. Churg-Strauss Syndrome is rare, it is associated with adult onset asthma, high eosinophils levels in CBC, and can be further tested for. If I had been treated with high dose steroids and immunosuppressants earlier I would have avoided a heart attack. I was lucky the pulmonologist in the hospital had recognized my symptoms and started treating me aggressively with steroids after I was admitted due to severe shortness of breath that I thought was an asthma attack but was a heart attack. Had I not seen him, Id probably be dead.

    Not saying you have what I had but both are inflammatory diseases and I was on singulair (which us being correlated with Churg-Strauss) and trying to wean off a prednisone taper and was struggling like you are now.

    No matter what the disease– severe asthma or a greater allergic or immunologic disease– the inflammation-prednisone taper story is similar. I have had other experiences with orednisone in the past– I had ulcerative colitis at age 13 that was treated and controlled with prednisone, and if I weaned toi fast Id have intestinal i flammation and increased  bleeding .. later as I tried to lower on prednisone for Churg-Strauss with asthma symptoms– id just get worse and worse trying to lower when having symptoms luke you are now. 

    I learned that aggressive treatment with steroids knocks out all the inflammation. Slowly lowering without inflammation coming back is tge way to wean. If you are lowering and the inflammation is present and bad as you describe yours– it is a fire that will spread. You have to extinguish that fire better. I am so concerned for you and I really think if your doctor is telling you to keep going down after hearing your symptons that you need a second opinion. Immunologists and pulmonologists deal with asthma and diseases dealing with inflammation and prednisone. 

  • LK

    Shadowcat,  I am worried about you like Shea is.

    What does your doctor say about staying on higher dose until you stabilize?

  • K8sMom2002

    Hugs, ShadowCat … I'm glad you're seeing the tiniest window of improvement, but could you follow up again with your doc and ask, "Okay, what timeline do you think I'll be able to feel less weak and tired and short of breath? Are there other things — home health, physical therapy, pulmonary rehab — that could help?"

    Like Shea points out, when we don't follow a typical path of recovery, that's when we need to reach out to our doctors and keep pushing until we get some answers.

  • Emelina

    I’m no pulmonologist, but I’d echo what others have said that we are all concerned about you. Something seems wrong to my sensors that you are still needing to neb so frequently and so fatigued with minimal exertion. I love sheas example of beating down the inflammation in your body then weaning without a smoldering fire around. Weaning is hard enough … do you think I could beg/plead/grovel at your feet for a phone check in with your pulmonology. I also like the idea of perhaps seeking a second opinion. High eosinophils are so nasty and hard on the body!

    We all really care about you and want to see you thriving. You really came through one really tough and long hospitalization and nasty bronchitis! Has your controller med dose changes any recently? Perhaps your doc might wanna tweak the dose up to help make up for the falling oral steroids.

    how is your family holding up? I know you’d mentioned in the past it was tough on your teens and I’m sure you’re missing your class! 

    Wishing you easier and better days.

    best

    em

  • Shadowcat04

    I really appreciate the feedback. Being new to such a major asthma flare, I don’t know what to expect. I will call the pulmonologist tomorrow and update them on how I’m feeling and see if any of the meds should be adjusted- especially the prednisone. I don’t think my eosinophils are high. 

  • Shadowcat04

    Well, I spoke with the pulmo through her assistant. We cleared up some med issues- a nose spray that was giving me a headache, a stronger cough med I wanted and the continued cough and chest congestion. She doesn’t want to prescribe any cough syrup with codeine and the other one she would do, I am allergic to. So we came back to tessalon perles and delsym. Those things both sort of work- so I’ll do that. She said Flonase or xyzal (which I had suggested because I used to take it and it worked and I don’t like nose sprays). She said to do nebulizer treatments 4 times a day (I had told her those really help).  I asked her why I am still SOB and so slow to recover and do I need to be taking higher dose of prednisone to make that better. She said we all recover at different rates and it takes time for some people. She said that raising the prednisone can increase anxiety and make things worse. But, she would take these questions back to the doctor and call me back. She did and the doctor did not increase the mg of prednisone, but instead of 4 days at 20 mg- I am to do 7 days at 20 mg and 7 days at 10 mg and then call to check in. When I hung up, I cried. I guess what I heard was at least 14 more days.