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Follow up with asthma/allergist

Saw my asthma doc today. Didn't help just reiterated that this is crazy. Lord he talked about everything under the sun. He said it's something not related to my lungs possibly. Testing for pulmonary embolism, rocky mtn spotted fever, thyroid and Epstein Barr virus. Said I need to consider two week trial of nexium if those are negative. Will send for echo of my heart if all negative. Said lung function was great today. He said if he sends me to bill he is just going to say my lungs are fine, just underlying asthma and allergies. May have vocal cord dysfunction.

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  • Kathy P

    Hugs…. sorry it's not clear cut. I hope he can quickly sort out whatever the underlying cause is.I know my reflux and asthma play a nasty tango. And I'm never sure which on sets the other off.

  • Jen

    Sorry you didn't get answers today, but glad to hear your dr is still looking under rocks to try to figure out what's going on.

  • GigiGibson

    Thanks jen and everyone else. I'm happy to report I feel better tonight. I guess maybe I need to wait ten days to pull the help me button . I am on board for all the testing but in my heart I feel like at the end it will be just a strange case of moderate persistent asthma. Aka, a pain in the arse with no real answers, just patches. Maybe not, but that's my gut impression. 

  • Jen

    Hugs~  Even if your gut feeling is right, better to rule out the other stuff. Otherwise, you'll be left wondering if one of those things could be the issue.

  • K8sMom2002

    Gigi! I know how frustrating it is for docs to look at you and say, "Uh, this doesn't make sense." You want them to figure it out so that they can begin figuring out how to make you feel human again.

    Can you translate what d dimer negative means? Does that have to do with the pulmonary embolism? 

    And if they're testing for Rocky Mountain spotted fever, are they also testing for things like Lyme Disease?

    Another possibility — did you come into this after a cold or flu? Have they checked your heart function and your arterial blood gas?

  • GigiGibson

    The respiratory distress that led her to send me for allergy testing was along with crazy spring allergies following (by a couple weeks) a month long virus the whole office shared. It was a "chest then sinus" type bug and several folks had relapses and our ceo actually had viral encephalopathy that lasted many weeks. He is still recovering five months later. So yes, I had been sick a few weeks prior. He may get an echo on me he says. No abg.  Keep in mind though I had the coughing, especially at night for quite a while. I struggled during exercise. I got sob a lot, even before. We shall see….

  • K8sMom2002

    Gigi, when are you supposed to get those test results back? I'm assuming he went ahead and pulled labs the day you saw him for the Epstein-Barr and the Rocky Mountain Spotted Fever and thyroid. 

    Did you LIKE the doctor? 

  • K8sMom2002

    I'm glad — both that your doctor is a likable fellow and that the d dimer was negative. It's so important, when you're managing a chronic disease like asthma, to have a doctor who includes you as a partner.

    No timeline on the other test results? Do you have a follow up appointment?