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Flying with nebs

Ok so we haven't taken a family vacation in literally FOREVER-DH usually takes both boys to a gaming convention in early July but this year, our youngest(15YO) came and ask if we could all take a family vacation instead. We decided to give everyone a chance to pick a place so we all have until this Saturday to come up with at least 2 places we would like to go in the US, we will put them all in a jar and draw one and that's where we will go.  I know at least 2 of the places that have been come up with involve flying.  I'm fine with that except for my concerns over TSA and trying to get my neb and vials of meds on board. My main med has to stay refrigerated so I have a cooler of sorts that is amazing and will easily hold it for the flight BUT I have to get that past TSA too.  As if all of that isn't nuts enough, we will have to get shot needles and injectable meds past TSA also.  DH has cluster headaches and we keep torodol injections for him.  

Any suggestions?  I don't dare go anywhere without albuterol, budesonide, duoneb plus my maintenance med (Brovana)-all of which is in vials.  I'm also having issues finding a room that has a mini fridge-We're trying to stay in 1 room (2 queen and a sofa bed) instead of the expense of 2 rooms and our sons are 6'4" and 6'5" and DH is 6'5" so nothing smaller than a queen will work.

Any help/suggestions would be greatly appreciated.

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  • K8sMom2002

    Ooh, how exciting! I haven't flown in a while, but I know some of our members have. I'll send up a flare.

    Also, here's AAFA's resource on . And the TSA has more information about what is allowed and what isn't on their page. 

  • K8sMom2002

    And just to be clear … medications are allowed — including needles and ice packs — for documented health issues. They do have to be screened, but the link above goes into that.

    I'm not sure if it's required, but it might not be a bad idea to get a letter from your doctor stating what the medications are for. 

  • Pljohns

    Thank yhou!!  I printed both pages out  so I can see what I have to do.  Thankfully, if we go one of the places, the flight is non stop so once I get on, I should be OK until I have to come home.

  • K8sMom2002

    The TSA page also has a link about respiratory equipment and says this:

    Nebulizers, CPAPs, BiPAPs, and APAPs

    A nebulizer, CPAP, BiPAP and APAP must be removed from its carrying case and undergo X-ray screening. Facemasks and tubing may remain in the case.

    You may provide a clear plastic bag to place the device through the X-ray. A TSA officer may need to remove it from the bag to test it for traces of explosives.

    Liquids associated with the nebulizer are exempt from the 3-1-1 liquids rule. .

  • Kathy P

    None of that should be an issue, but I recommend allowing extra time to get through security in case you have to deal with additional screening. Sometimes there is a queue of bags/passengers waiting to for secondary screening. I've had too many times in a panic worried I'd miss my early boarding group when the lines were really long and slow.

    I haven't flown with my neb in a while, but mine has a battery, so it was always flagged by the x-ray if I left it in my suitcase. I started just pulling it out and putting it in a bin by itself. It's all in a zippered case, so pretty easy. I know, now things like CPAP machines are required to be pulled out, but it doesn't specify nebulizers.

    I always pack my liquid meds in ziplocks to contain them. I cut the Rx label from the box and stick that in there as well with the foil packs of ampules. I would do the same with the needles.

    I found this TSA blog about that recommends printing out a card to hand them. It has info about freezer packs too.

    Once you know your destination, we can probably help with hotel options. I really hate mini-fridges – so many times, things wind up frozen because it gets too cold. That would worry more if was meds. But being able to refreeze the gel packs would be good.

  • Pljohns

    You guys are AMAZING-I have not flown since I was diagnosed and was a bit worried about it all.  Looks like one of the possible destinations will be San Diego and one will be Washington DC.  We can drive to Washington but not Sand Diego!

  • Kathy P

    I can help w/ San Diego We are heading that way in a couple weeks tovisit family and to see the desert bloom!

  • Pljohns

    WWAHOO!  We want to be near the coast-seaport village or gaslamp quarter area and all I'm looking for is something with a suite with 2 queen and a sofa bed and refrig.>$300/night if at all possible but if its perfect, I could go to $350(really don't want to!~)

    Any help would be GREATLY appreciated

  • Kathy P

    Hmmm…we usually stay in the Mira Mesa area and go cheap! LOL! Let meknow once you decide and I can point you to nice areas.

  • K8sMom2002

    PLJohns … I'm hoping you will have a great trip! What all do you plan on seeing there? My sister went to San Diego some years ago when my DD was a baby and brought her back a San Diego Zoo tee shirt. 

    I've always wanted to travel to California. One day … one day!

  • Jen

    If you end up near DC, let me know.  I live between Baltimore and DC.

  • Pljohns

    Well now DH is being a wet blanket and has decided he doesn't want to go ANYWHERE-I'm not done trying to change his mind but as of right now, looks like another summer working away as usual.

  • Kathy P

    Ugh…. What about some shorter car trips? We do long weekends to places that are within say an 6hr drive.

  • K8sMom2002

    Hugs … I hope you guys can at least take a car trip. Nothing like getting away and seeing something new and different. 

  • Pljohns

    Unfortunately car trips are a no go too-Dh is 6'6" and DS's are 6'5" and 6'4" and NONE of them like to try and fold up and stay in a car for long.  That's why I thought I had ti all taken care of-non stop flights and everything.  DH has bad knees so I even found a place to rent a scooter so he wouldn't have to walk through all of the tourist places.

  • Pljohns

    Well-DH agreed to SOMEWHERE but I can't get the two DS's to agree on WHERE-we are looking at either San Diego still or now NY.  DS was there 2 years ago with a school trip but the rest of us have never been so we might decide there.  the only problem-I can't find hotel rooms with queen size beds-only double or 1 king

  • K8sMom2002

    Oh, no! Hope you can get them to agree fast so that you can book everything before your DH changes his mind! 

  • Jen

    Is it NY where you're having trouble finding the right type of hotel room?  If so, could you stay a little outside of the city and take a train in?

  • Pljohns

    And the winner is…..San Diego!  Now all I have to do is get time off approved and get everything booked.

  • Kathy P

    Woohoo! What time if year will you be going?

    I'm so excited to be heading there this weekend! We used to live there and miss having an office with an ocean view and meeting up to surf after work! We are headed to the desert this weekend. I assume you guys are sticking to the coast/beach. 

  • Pljohns

    Boss approved my time and everything is booked-we will get there June 2 and return June 7.  None of us are really beach people so we will be typical tourist-zoo, city trolley, Coronado island, naval ship…usually tourist stuff.  

    I'm SO EXCITED-I messed up the airlines BIG TIME-I got interrupted making the reservation and hit "book and pay" before I realized I had us going in June and not coming home until JULY!  I was in a MAJOR panic and was on hold with the airlines for 2 hours but finally got it fixed.

    Now I just have to take care of every detail because DH won't do anything to help-just not his nature.

  • Kathy P

    Oops on the airline dates! My dh usually books the travel, then I have to do most of the rest. For this trip, he focused on off road maps…I planned/packed the camping gear, food, etc. But I have it down to a science these days LOL