Was just wondering if you guys have any favorite cheats, tips, tricks and hacks to make living life with chronic lung disease easier?
Things I’ve learned thus far from you all:
meds: budesonide needs to be swirled back into solution and should be nebbed solo or it foams like nuts
neb care: pari sprint nebs are worth every penny, boiling in distilled water eliminates nasty grime on your equipment
portable nebs: be sure to register your battery and device
Inhaler technique: hold dpi’s flat like a hamburger but suck like a milk shake
med adherence: pill minder app for steroid tapers, keep meds visible in areas you are likely to encounter them and need them
surviving prednisone: puzzles to keep the mind busy, channel the energy of high doses to prep for the weaning lethargy, antiacid for stomach upset, Benadryl for sleep, apologize/warn family of the mood swings/irritability.
post hospital: keep a journal to help see the little daily improvements