Why aren't you getting better? What do the doctors say? Isn't there anything else they can do? This can't be asthma, this bad?, to come on so fast…? What are you taking? How did this happen? Why did you get asthma? Did they ever get to the bottom of this? It has to be more than asthma. You were the healthiest person I know, what in the world? I know this is depressing, what else can you do? Do you need another opinion? Can they fix this?
Care to contribute?! The good meaning ones who care for us must feel blindsided to hearing this just happens and seemingly without reason. I explain the lifetime allergies to them and progressive sob over the last two years and coughing incessantly at night. They can only relate to a couple weeks of Claritin one year in the spring. They don't understand that part.
How do you explain something that intruded into your life one day and set up permanent residence? It's not easy. Even the most intelligent of folks I know including a doctor I work with scratch their head and go "huh". That's about how I feel now 9 months into this. I'm on prednisone again. I had an attack, mind you semi mild one Sunday and the inflammation is pretty good. This is why I take so much meds my legs and feet and toes cramp up multiple times a day most days and take shots that are making my hair fall out, skin itch and so tired I need 10 hours of sleep some days. If I don't stay on top of it constantly I get major set backs. How do you explain you never know what you will be like in a few hours much less tomorrow? I'm losing friends I think….I'm not as fun. I haven't danced in 5 months and I've been out four times since. I've had to shop in the electric buggy and I'm not ashamed. I've had to ask for help with retrieving objects from another room because I was too weak. I've had to take Ativan because I was afraid to go to sleep worrying I'd wake up suffocating again in a bad attack. You can't explain all this but I know you guys understand and I'm one of the milder cases here. I worry that year after year I will be one of the sickest. Will I take it with grace and be an inspiration or crumble to fear? I don't want my loved ones to know this part. This is a chronic illness and unlike cancer or MS or others people struggle with accepting the permanence and reality of the debilitating severe cases that come on so fast. It seems rare and hard to swallow when you meet the first person you know with it I guess.
So, if you have a stellar article, succinct and on point I can share or reference please tell me. I'm wary of the inquiries some days and need something else to "splain it" for me.
Thanks for the vent or rant, not sure which, lol.