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ER visit

I has another ER visit this week I’m back on Prednisone and a zpack.  I’m so desperate to not deal with asthma anymore. Has anybody tried salt therapy rooms or Reiki or a vegan diet?

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  • K8sMom2002

    Oh, my goodness! Hugs on the ER visit! Are you feeling any better?

    Some of our members, like @GigiGibson and @Shea, have talked with their doctors about complementary therapies like anti-inflammatory diets. And AAFA has a great blog series about complementary therapies: 

    Other things that have helped me …

    • identifying and avoiding my . It sounds so simple, but it can be so hard. It's only been in the last year that I realized that weather was a huge trigger for me (and no, I can't avoid the weather, but I can be aware of it.)
    • having a sick plan — talking with my doctor about one of my biggest triggers, a cold or sinus infection. 
    • getting my vaccinations — flu shot and pneumonia shot … here's a recent blog post about .

    Have you been able to follow up with your allergist or pulmonologist? 

    Hugs, hugs, hugs …

  • Katie D

    Hugs  

    How are you feeling @Cinni?  

    The post that Cynthia linked up to above will have a blog post about salt therapy within it as well as one about essential oils.

    I hope you are feeling better!

  • shelbyg

    I'm so sorry to hear that! If you don't mind me asking, what were the symptoms that landed you in the ER? I'm newly diagnosed so I'm trying to learn what causes some people to go to the ER and when.

  • Cinni
    shelbyg posted:

    I'm so sorry to hear that! If you don't mind me asking, what were the symptoms that landed you in the ER? I'm newly diagnosed so I'm trying to learn what causes some people to go to the ER and when.

    The asthma has been gradually getting worse in 3 months I went through 4 rescue inhalers, and finally after work on Monday I my head was pounding and my blood pressure was super high, and I couldn’t catch my breath. After a late night nebulization that did not make any improvements my only option was the ER. I hope you find out it’s not asthma and something that will be cured.

  • Cinni

    Thanks for the support everyone it’s the first I posted and I’m new to the community. I don’t feel so alone anymore.

  • Shea

    Do you use an inhaled steroid in your NEB's along with albuterol? I need both the albuterol AND an inhaled steroid called budesonide, and the inhaled steroid needs to be taken regularly, my doctor has me neb 2-3 times a day, then also carry my rescue inhaler with me. The Albuterol opens the airways but it is the inhaled steroid that fights the inflammation so if you want to keep the inflammation down and thus strengthen the body then you should talk to your doctor about an inhaled steroid. I do not do well with the inhalers, and I prefer NEB's, that is why I personally use budesonide, but a lot of people seem to do well on inhalers. I hope you find a mix that works. 

    Then to other lifestyle changes, like mentioned above, avoidance of triggers is the best for me, but I have been researching into antiinflammatory diets too. I do things like use rice milk on my cereal instead of regular milk (although I do not cut out dairy completely), and I limit red meat to once a month, and add a vegetarian day of the week.

    When I was first diagnosed I gave a real try to meditation and yoga and supplements, and I still keep pieces of that, but definitely do not rely solely on them. People may badmouth prednisone but when you need it oh my gosh it is a savior, and it is important to take extra rest and care during your wean off of it, and pay attention to your body and not wean too fast or you can really mess yourself up! 

    A journal or posting regularly on here have been helpful to me. 

  • K8sMom2002
    Cinni posted:

    Thanks for the support everyone it’s the first I posted and I’m new to the community. I don’t feel so alone anymore.

    Cinni, you are NOT alone! Lots of us have wound up in the ER, and even those of us who haven't definitely understand how asthma can get super bad super quick. 

    One thing that has helped me (and my DD) is to always follow up with my doc afterwards and see what I need to tweak, medication wise. 

    And usually the silver lining in any bad flare is that I learn something new — about asthma or about my body.  That's why I love, love, love . They help me go back and figure out, "Okay, what was the tipping point?" because with my asthma, it's usually not just ONE thing but lots of little things. 

    Some other tips that I've learned (the hard way! )

    • using a spacer unless your inhaler doesn't require one (some don't) — really important to get the meds where they need to go with an inhaler, and this applies to grown-ups AND kiddos.
    • good inhaler technique — could you ask your doctor or nurse to critique your inhaler technique?  is a short CDC video showing the proper technique with a spacer. It's with a kid — but it applies to grown-ups, too.
    • Using an inhaler sooner rather than later — at least, this is what my doc says. the way an inhaler works is by using your lungs to get the meds to all parts of the lungs. If your lungs can't move air, the medication can't get to all parts of your lungs. My doctor swore that I would use my inhaler less if I used it sooner, and I just couldn't believer her. But she was right. Guess that's why she's got the M.D. after her name, huh?

    How are you feeling today?

  • Cinni
    K8sMom2002 posted:
    Cinni posted:

    Thanks for the support everyone it’s the first I posted and I’m new to the community. I don’t feel so alone anymore.

    Cinni, you are NOT alone! Lots of us have wound up in the ER, and even those of us who haven't definitely understand how asthma can get super bad super quick. 

    One thing that has helped me (and my DD) is to always follow up with my doc afterwards and see what I need to tweak, medication wise. 

    And usually the silver lining in any bad flare is that I learn something new — about asthma or about my body.  That's why I love, love, love . They help me go back and figure out, "Okay, what was the tipping point?" because with my asthma, it's usually not just ONE thing but lots of little things. 

    Some other tips that I've learned (the hard way! )

    • using a spacer unless your inhaler doesn't require one (some don't) — really important to get the meds where they need to go with an inhaler, and this applies to grown-ups AND kiddos.
    • good inhaler technique — could you ask your doctor or nurse to critique your inhaler technique?  is a short CDC video showing the proper technique with a spacer. It's with a kid — but it applies to grown-ups, too.
    • Using an inhaler sooner rather than later — at least, this is what my doc says. the way an inhaler works is by using your lungs to get the meds to all parts of the lungs. If your lungs can't move air, the medication can't get to all parts of your lungs. My doctor swore that I would use my inhaler less if I used it sooner, and I just couldn't believer her. But she was right. Guess that's why she's got the M.D. after her name, huh?

    How are you feeling today?

    Thanks that’s great advice. I will have to follow up and more attention to it. I am feeling great on the prednisone because I’m breathing easily and not in need of any inhalers. The side effects are the I’m jitteryness that kicks in the a.d.d. But it’s allk good, I’d rather be jitttery and hyper instead of struggling for air. 

    Im really happy to have found this group. I’m 35 years old and for so long people around have not fully understood what I was going through. I feel so validated and more willing to accept my circumstances now.

  • Cinni
    Shea posted:

    Do you use an inhaled steroid in your NEB's along with albuterol? I need both the albuterol AND an inhaled steroid called budesonide, and the inhaled steroid needs to be taken regularly, my doctor has me neb 2-3 times a day, then also carry my rescue inhaler with me. The Albuterol opens the airways but it is the inhaled steroid that fights the inflammation so if you want to keep the inflammation down and thus strengthen the body then you should talk to your doctor about an inhaled steroid. I do not do well with the inhalers, and I prefer NEB's, that is why I personally use budesonide, but a lot of people seem to do well on inhalers. I hope you find a mix that works. 

    Then to other lifestyle changes, like mentioned above, avoidance of triggers is the best for me, but I have been researching into antiinflammatory diets too. I do things like use rice milk on my cereal instead of regular milk (although I do not cut out dairy completely), and I limit red meat to once a month, and add a vegetarian day of the week.

    When I was first diagnosed I gave a real try to meditation and yoga and supplements, and I still keep pieces of that, but definitely do not rely solely on them. People may badmouth prednisone but when you need it oh my gosh it is a savior, and it is important to take extra rest and care during your wean off of it, and pay attention to your body and not wean too fast or you can really mess yourself up! 

    A journal or posting regularly on here have been helpful to me. 

    The prednisone is really a life saver! I have not heard of your mix but I will look into it. I also plan on adding air purifiers to my house maybe that’ll help. The vegan diet is said to reduce the inflammation in your body so I’m pretty eager to start it.

  • K8sMom2002

    Cinni, as you're doing your research on ways to improve your indoor air-quality, you can check out these links:

     (and this has a link to register to win a FREE air purifier and floor cleaner package!! So if you're in the market, definitely register! Can't win if you don't enter!)

  • Jen

    Welcome Cinni.  I hope that you're feeling better.

    Do you feel comfortable talking to your asthma specialist about complementary therapies, lifestyle changes, etc?

  • Kathy P

    Welcome @Cinni - glad the Prednisone and zpack are doing the trick. 

    Do you have an asthma action plan from your doctor -  

    I know if I keep winding up with bronchitis/infection, my doc usually looks at my baseline treatment to see if that needs to be tweaked. 

  • RedCoog
    Shea posted:

    Do you use an inhaled steroid in your NEB's along with albuterol? I need both the albuterol AND an inhaled steroid called budesonide, and the inhaled steroid needs to be taken regularly, my doctor has me neb 2-3 times a day, then also carry my rescue inhaler with me. The Albuterol opens the airways but it is the inhaled steroid that fights the inflammation so if you want to keep the inflammation down and thus strengthen the body then you should talk to your doctor about an inhaled steroid. I do not do well with the inhalers, and I prefer NEB's, that is why I personally use budesonide, but a lot of people seem to do well on inhalers. I hope you find a mix that works. 

    Then to other lifestyle changes, like mentioned above, avoidance of triggers is the best for me, but I have been researching into antiinflammatory diets too. I do things like use rice milk on my cereal instead of regular milk (although I do not cut out dairy completely), and I limit red meat to once a month, and add a vegetarian day of the week.

    When I was first diagnosed I gave a real try to meditation and yoga and supplements, and I still keep pieces of that, but definitely do not rely solely on them. People may badmouth prednisone but when you need it oh my gosh it is a savior, and it is important to take extra rest and care during your wean off of it, and pay attention to your body and not wean too fast or you can really mess yourself up! 

    A journal or posting regularly on here have been helpful to me. 

    I like the veggiterian day a week idea! I may add this to my routine!

    medication is very helpful but natural type additions can only be beneficial!!

  • K8sMom2002

    Redcoog, we try to have one meatless meal a week, and over the years, we've cut way back on the amount of meat that we eat. I've noticed that when we cook, say, spaghetti, I can get by with half a pound of sausage. When I cook chicken soup or have a chicken and rice or pasta meal, one diced chicken breast is usually more than enough. And with burritos or tacos, I can reduce the amount of meat and "stretch" it by adding black beans to it. 

    Cinni, have you thought of any ideas you'd like to talk over with your doctor?

  • Pljohns

    We do the same thing-one day a week is meatless-we will do mac and cheese or something like that or just a night of vegi's.  Unfortunately, I have to cook A LOT because I have teenage boys that I can't seem to fill up!

  • Jen

    @Cinni How did you manage over the holidays?  Did you have any flares?