Weird question for you, how do you think your objective disease severity (what your doctor says about you) matches up to how you and the rest of the world perceives you? And do you think it’s a problem if there is disagreement especially between how you feel/see yourself and what the numbers/treatment says?
I got to thinking about this after my work wouldn’t let me resume working:
– the world (work) thinks I’m a walking train wreck. In their eyes I’m on max therapy and could keel over at any time.
– pulmo places me in severe based on level of therapy (6) needed to keep me controlled and symptoms frequency (act 10).
– myself, I look in the mirror and see someone’s who’s very fatigued and frequently gets infections, but I don’t think of myself as severely ill/debilitated. I think I can handle a 10 hr work day.
I’ve been wondering if my green-ness to asthma makes me expect too much too soon, which is why I run out and overdo and then end up in the bed next day like a turkey and get so frustrated.
Mhmm, this would be a good pulmo question. What to expect in terms of expected recovery + regression/control of symptoms.