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Children on Xolair

Hey everyone. I’m looking to speak with anyone who’s children have been on or is on Xolair. My son just turned 7 in June and started Xolair today. I have so many questions and would love to hear experiences! Thanks so much! 

 

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  • K8sMom2002

    Hi, MomofFour! I hear you on the questions! What prompted your doctor prescribed Xolair for your son? 

  • Momoffour

    Long story short, he’s had asthma since birth basically, he was diagnosed at 3 months. We always felt it was something congenital but anyway…. he had severe asthma and allergies (food and environmental). He’s been on so many different steroids, last one was advair and now symbicort. He gets pneumonia 4-5 times a year on average. He’s had it 4 times just since dec 2018. We have noticed things getting worse over the last year. They done some blood work and his iGE level was over 700. Hes just turned 7 and weighs around 42-45lbs. Anyway, his doctors at UNC said that xolair was as needed. They have mentioned immunodeficiency disorder but they haven’t done anymore testing or bloodwork yet. He had his first 2 shots of xolair yesterday and he will do 2 shots every other week. I guess I’m looking someone to talk to that’s been through something similar. How did their children do? Did it help? 

  • Monique Cooper-Allison
    Momoffour posted:

    Hey everyone. I’m looking to speak with anyone who’s children have been on or is on Xolair. My son just turned 7 in June and started Xolair today. I have so many questions and would love to hear experiences! Thanks so much! 

     

    HI, my son Javan has been on Xolair for a little over a year and he hasn't had a severe asthma attack since. Last year February he almost lost his life with a severe attack and was in ICU for about a week, it was scary. His doctors suggested Xolair and it's been great. I believe he will soon be off of it. 

     

  • Monique Cooper-Allison

    No he didn't. The first time taking it, he had to wait for an hour with an epi pen. Now he waits 30 mins. The doctors are really great with him on this. They make sure he is still taking his Advair and singular. Even in the past with taking the Advair and Singular, the Asthma Attacks was just coming consistently. Now that he has taken Xolair, his asthma attacks went down about 90%. 

  • K8sMom2002

    Momoffour, so glad Monique could share with you their good experience! It sounds like you guys have been through the ringer!

    How has your son been doing since his Xolair shot?

    One other thing … could you talk to your doctors about whether your son has received the pneumonia vaccine? One pneumococcal vaccine series is recommended for infants now, but I'm not sure if it's one of the required shots in your state for children your son's age. And the .

    The pneumococcal polysaccharide vaccine (PPSV23 or Pneumovax®) protects against 23 types of pneumococcal bacteria. CDC recommends it for all adults 65 years or older and for those 2 years or older at .

    AAFA has a blog post about , and the CDC points out that the vaccine can help prevent lots of different types of illness:

    Each year in the United States, pneumococcal disease causes thousands of infections, such as meningitis, bloodstream infections, pneumonia, and ear infections. Pneumococcal vaccines are very good at preventing severe disease, needing treatment in the hospital, and death. However, vaccination is not guaranteed to prevent infection and symptoms in all people.  about pneumococcal vaccines.

  • Momoffour

    So far he’s doing ok. Fatigue, no appetite and he complains about his arms and legs hurting.. besides that, he’s ok. He’s starting to sound like he’s developing pneumonia so we’re calling his Dr tomorrow at UNC. We go for his next round on Monday July 15. Thank you so much for checking on him!

  • Melissa G

    You're welcome! Oh my, I hope he doesn't have pneumonia again! Please let us know what the dr says.