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Child-parent shared decision making about asthma management

This article caught my eye about how parents of children with asthma involve their kids in managing asthma at different points and in different situations.

When you were a child, how much input did you have in managing your asthma? If you have kids with asthma, how do you handle it?

Asthma management decisions between children and parents were non-linear, with responsibility transferring from parent to child under different conditions. Children made a range of decisions about their asthma, often sharing decisions with their parents. However, during acute illness episodes, children often relied on parents to make decisions about their asthma.

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Comments 9

  • HikaControl

    I pretty much left it to my mom because she had medical background so it was easier for me when I had asthma attacks. 

  • K8sMom2002

    But as you got older, did some of that responsibility shift? Did she teach you what to do when your asthma flared?

  • HikaControl

    Very much. I  basically learned my triggers from her and how to avoid those. Most of my asthma attacks now are because of things out of my control like respiratory illness and cold wind/damp air.

  • K8sMom2002

    Hikacontrol, how exactly did she do that, if you recall? What advice would you give to parents of young children on how to do what she did? Because obviously you do a good job controlling what you can control, and that's in part because of your mom's teaching.

    I think it might be helpful for parents of young children for those of us who are adults with asthma to figure out some "best tips and practices" on how our parents taught us how to manage our asthma.

     

  • HikaControl

    My mom has a medical degree so I think that was an advantage. But I think it's the "operant conditioning" in some sort of way. She can tell the symptoms and then she gives me my medications. Along the way, I associated what my mom says is a symptom to how I was feeling. It's hard to put it to word. But basically, I think being aware of what triggers your kid's asthma and "training" them to identify early onset of symptoms (before they get worse). Maybe having a stethoscope can help?

  • K8sMom2002

    So it was kind of like you absorbed her knowledge over the years?

    She sounds like a great mom, btw! And yeah, I think a stethoscope might be helpful — at least to me, as I'm the kind of person who learns by doing. 

    Do you remember the first time you ever had to handle an asthma flare on your own?

  • HikaControl

    I think stethoscope are a must. When I went a few weeks to the nurse practitioner to get my asthma checked as well as get prescription for inhaled steroids, the nurse said she could not hear any wheezing but I definitely could "feel" it. I don't know whether her gear was working or not. Haha

    I don't really remember the first time I have flare up alone. My mom tells me that she talks to the teachers and tells them I have my asthma medication and to make sure I don't share it to other kids! Haha

  • K8sMom2002

    It IS good for parents to touch base with teachers. Even though asthma is much more familiar to people these days, they still might not be familiar enough with it to know how to help a student or recognize when someone is having an asthma attack.

  • Kathy P

    I think many people have a lot of misinformation about asthma, so touching base and sharing a kiddo's asthma management plan with teachers who are supposed to be a second set of eyes looking for issues is a good thing.