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Chicken soup for those tough days

I was just thinking about how tough it can be to live with lung disease. There are good days, and bleh days and days that just hit you like a ton of bricks. Sometimes triggers can be unkind words from others, other times the difficulty can come from within. I’ve had my fair share of tough, rough and rainy days and wanted to compile a thread to help those walking through tough times too. 

– You aren’t weak and you aren’t crazy and lung disease isn’t a psychological condition that you can snap out of

– you aren’t abnormal to worry about triggers and how to avoid them 

– despite your disease, you are still beautiful and capable. You are not any less than you were before a doctor gave you a physical diagnosis 

– there are no time tables for your recovery. Just as every person and their disease is unique, so to is how we recover

– it is okay to have down, blue and woe is me days; you don’t need to paint a happy face on days where you feel down. Down days happen to us all. Lung disease is exhausting. 

– remember you are never alone. 26 million Americans live with asthma, and 5-10% have severe asthma. We are all here for you to celebrate the triumphs, hold you up through the setbacks and everything in between

– you will always be a beautiful, strong and capable survivor in my book

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Comments 8

  • LK

    Thanks and well written Em!  I, too, needed to read this today.  

  • Marie E Natzke

    Me too Em!! Some of us have more than asthma to deal with and some days it's just all comes crashing down on us. Weather changes, aches. Pains bad breathing days…

    hang in there everyone!!

  • Emelina

    – some days when things are going badly, it is ok to just focus on you. If this means staying in bed or the couch, taking meds and just focusing on staying hydrated and breathing, that’s ok! Some days what your body needs is rest – and fulfilling this need shouldn’t be something to be ashamed of

    – there is no “right” way to cope with chronic illness. Everyone’s illness experience is different; so to is their experience of emotions, med side effects and how illness fits in with your social and financial life. 

    – it is ok to mourn and grieve for what illness takes away. Trying to rush or ignore this phase will just cause more distress. I still mourn the loss of “normal,” not having to think about asthma everyday and deal with it’s uncomfortable symptoms and surf from specialist to specialist. Adjusting to chronic illness can take a lifetime; as you change, so to will your disease

    – on hard tough days, remember it can’t and won’t rain forever. The sun is always shining; we just can’t see it momentarily due to passing clouds.

  • Melissa G

    I just wish my coping mechanism didn't involve copious amounts of chocolate… My hips would thank me….

  • LK

    That's funny Melissa, because I have the same dilemma!!   Let me know if you find any alternatives!