Navigation

Breo Ellipta

Anyone here use Breo for your asthma?  I had very mild exercise induced asthma until recently and then suddenly my asthma went crazy.  My inflammation was somewhat off the charts and an asthma/allergy doc put me on Breo but I have started having some difficulty taking deep breaths (no wheezing or other asthma type symptoms).  I am also having trouble sleeping at night.  Anyone else have any related side effects with Breo?  I have been on it for a little over a week.

93
384

Comments 93

  • Melissa G

    Amy, my dh has started taking Breo, for him it has been working well. Have you called your allergist to let them know what is going on? Do you have an 

  • Pljohns

    Amy-Welcome to the boards!  I tried Breo and had the same issues you did BUT I'm a weirdo that has problems with a ton of meds.  I didn't think much of it and kept using it a couple of days until I started having bronchialspams on it-called my pulmo and she to stop it so I did and within a day or so, was doing fine again so I know it was the Breo.  It works great for a lot of people, I just happen to be one that it didn't.  I pretty much can't take ANY of the combo meds (steroid and LABA)-I have to take the separately or I have problems.  I hope you and your doc can find something that helps you!

  • K8sMom2002

    Amy, that has to be super scary and frustrating! I'm hoping that you will get a chance to talk to your doc and see if you can figure out what is going on. Another great resource might be your pharmacist … could you speak to your pharmacy staff about whether it sounds like these are side effects they've heard about?

  • AmyW

    Thank you all for the support and suggestions!  I am going to call my doctor tomorrow and see what he says.  I have not been on medicine often in my life (in fact, this is if the first long-term type medicine I have ever been prescribed), so perhaps my body is not adjusting well?  Up until a week and a half ago I had only ever had a rescue inhaler, so this is all very new to me, and it seems like Breo is a fairly powerful medicine. I am on a sample pack from my asthma doctor, so I do not yet have a prescription (but calling the pharmacist is something I will keep in mind for if/when I do have a prescription).

  • LK

    Welcome Amy!   

    I am on Breo Ellipta.  Started on the low dose about a year ago and last fall went up to the high dose.  I don't recall what the initial side effects were for me.  

    Please know that you can still call and talk with a registered pharmacist even if you are only on the sample from your doctor.  My dad is a retired doctor and he always says that pharmacists are very knowledgeable about side effects and most everything else about drugs.  I have called them numerous times to ask questions when it is my doctor's office is not open.

  • Ashleigh

    I have used Breo and it works well! I have exercise-induced asthma and ever since I started using Breo about 3 months ago it feels like it went away. I haven't had to use it in a month, and I have been running 3 times a week. I haven't felt any side effects either. 

  • Pljohns

    I think meds in general affect everyone differently-I've had reactions to so many meds that work wonderfully for others-but not me.  You have to find what works for you and sometimes that can take trial and error on several different ones.

  • Linda Gid

    I have been on Breo for a year, didn’t have any noticeable side  effects.  However I take many meds, and tollerate most either well or I accept it as it keeps me out the hospital.  

    I didn’t usually hear of it being for mild asthma or as a first maintenance treatment, there are a variety of milder options.  Hope you got success with the Dr 

  • K8sMom2002

    AmyW, absolutely agree with what Lisa (LK) says … we've often called our pharmacist when we have been given a sample by a doc, mainly because our DD has a food allergy, and we have to make sure that it is safe for her. The pharmacist can pull up the prescribing leaflet and check to see any recommendations or cautions.

    Ashleigh and Linda, and so glad that you have been doing well on Breo! 

    Lynn is right … it takes different meds for different folks!

  • LK
    Linda Gid posted:

    However I take many meds, and tollerate most either well or I accept it as it keeps me out the hospital.  

    Welcome Linda!    I couldn't agree more!  If the side effects are mild we keep taking our maintenance meds to keep us going and keep us out of the hospital. 

  • AmyW

    Hi all, I apologize for not updating sooner.  

    I have started using Breo in the morning to see if that helps with the sleeping issues  I have had luck doing this with other medictations (Claritin does the same thing to me!) so we are trying that to see if it helps.  For now everything else is a wait and see game…my body is most likely still adjusting as this will be week three on Breo.  I go back to the doctor to see if it is helping next week and we will go from there.

    I know someone had wondered why I was put on Breo as the first attempt at treatment.  When I went to the doctor my numbers were a bit off the charts…my lungs were functioning more like a 60 year old smoker than a relatively healthy 35 year old non-smoker:-D My inflammation numbers were one of the highest they had ever seen in that office.  So the doctor started me on Breo because my situation was a bit more extreme than a first time patient with asthma.  

    Thanks again for the support and encouragement!

  • K8sMom2002

    Amy, I surely hope the change will help! And ugh on your lungs being so off the charts. I'm glad your doc is customizing your treatment to meet you where you are, not where textbooks say you SHOULD be. 

  • Kathy P

    I hope the change in dose time does the trick Are you having trouble sleeping because you are coughing? Or something else? I have issues with coughing at night. But other times it's some different factor causing insomnia. 

  • AmyW

    Kathy P I have been on steroids twice in the past few months because of asthma attacks (once a 5 day dose of prednisone and once a shot) and both times had major issues with sleeping, so the assumption is that steroids for some reason are causing the difficulty sleeping.  I did have MAJOR coughing at night until I started using Breo and it has improved to the point that I no longer cough at all, but I did have lots of night coughing before starting Breo. 

    As a side note I have also stopped running since starting Breo so that we could let it works its magic and because the two times I have ended up in the ER/Urgent Care were because I had gone for a run.  Fingers crossed that soon I can run without issues!  Does anyone here have a nebulizer at home, just in case?  I do not have one yet but am planning to ask for a prescription next week.  

    Thankful that I found this support community!

  • Pljohns

    Amyw-sounds like you have a doctor that is working with you to get you the best possible outcome and that is so awesome!  Hopefully changing to AM use will take care of the sleeping issue and hopefully you will be back to running soon!

  • Kathy P

    Oh yeah the oral and injection steroids can definitely cause sleep issues.

    I bike and had issues with it flaring my asthma – I also have exercise induced asthma. I had to get my "regular" asthma under control then figure out a pretreatment plan with the doc that would allow me to cycle. I also have figured out my "thresholds" – I have to warm up and get through the first ~5 miles while my lungs open up. I can't hit it hard til I get past that point. 

    Now I generally only have issues when I lose control if my asthma which seems to be quite frequently lately. That can sideline me for weeks. 

  • AmyW

    I only had exercise induced asthma until recently and my asthma suddenly went out of control! That is how I ended up on Breo.

     I was just looking at the Asthma Capitals report and I live in one of the top five cities :-O Could really explain my recent issues!  Hoping that the combination of getting my asthma under control plus the use of my rescue inhaler before I run will get me back on the road!

     

  • Melissa G

    Yikes Amy! Sounds like you have been having a really hard time lately. Do you also have any seasonal or environmental allergies that could be making things worse?

  • AmyW

    Melissa G., the doctor suggested/offered to do allergy testing while I was there, but in the midst of all the other testing it was forgotten.  I suspect that allergies have something to do with the problems I am having, so we will see if allergy testing is needed next time I go.  I am a librarian and work around dusty and sometimes moldy books, so I am starting to suspect that might be contributing.  Not to mention that I live in the Ohio River Valley and we get frequent Air Quality Alerts and are one of the top cities for allergies, too.  A perfect storm!  I really am doing much better (minus a couple of side effects) on Breo, though.

  • Melissa G

    I know for me and my dh, if we can control our post nasal drip, our asthma is much better. 

    Glad to hear you are doing better on the Breo!

  • Kathy P

    My allergies definitely play a huge roll! I get allergy shots and that has helped. Here is some info in allergic asthma - 

  • dory2005

    Hi Amy!  So glad the Breo is helping you. Steroids can definitely cause insomnia. Hopefully, it will be short-lived! 

  • Brenda Silvia-Torma
    AmyW posted:

    Kathy P I have been on steroids twice in the past few months because of asthma attacks (once a 5 day dose of prednisone and once a shot) and both times had major issues with sleeping, so the assumption is that steroids for some reason are causing the difficulty sleeping.  I did have MAJOR coughing at night until I started using Breo and it has improved to the point that I no longer cough at all, but I did have lots of night coughing before starting Breo. 

    As a side note I have also stopped running since starting Breo so that we could let it works its magic and because the two times I have ended up in the ER/Urgent Care were because I had gone for a run.  Fingers crossed that soon I can run without issues!  Does anyone here have a nebulizer at home, just in case?  I do not have one yet but am planning to ask for a prescription next week.  

    Thankful that I found this support community!

    Hi AmyW, I'm so glad you found us too!  I am now the owner of a nebulizer…I asked for one because I knew I'd be visiting areas that were isolated/without medical care. My MIL lives in a really isolated area of VA and it takes at least an hour to get to a medical facility. Having the nebulizer (and prednisone–if needed) will allow me to have some more "tools in my tool box" if I get into breathing trouble. 

    I'm sorry that you've had to stop running for a little while until things get under control!  I'm in the same boat–I was biking in my gym about 3-4 times a week (20 miles at a time) until the beginning of June, when I developed bronchitis. That illness triggered my asthma and now I'm also affected by air quality (never have in the past!). I hope to start biking slowly indoors again next month…still giving my lungs time to heal.

    Are you running indoors or outdoors?

    My asthma attack on July 2nd (which landed me in the ED/Urgent care) was caused by pollution–air quality was horrible that day and it was ~105 degrees…not a good combination for me to be outside. I'm still learning about my asthma and the fact that it is changing. I'm hopeful that when Sept arrives, the weather/air quality will be better and so will my breathing. In the meantime, I'm staying indoors and thoroughly enjoying the outdoors on green days!  

    Welcome!!  

  • LK

    Hi Amy!  Glad the Breo is helping you!  You asked about having a nebulizer at home?  I have one at home and use it when my rescue inhaler alone does not improve my breathing.  So glad you are doing better!  

  • Shadowcat04

    I am brand new to this forum, serious asthma and Breo. I have had a few asthma episodes following viral illnesses- but they always responded to meds quickly. I am now 4 weeks into an asthma flare. Started right before a family road trip to Yellowstone. The road trip included one ER visit and two urgent care visits for breathing treatments and asthma meds- prednisone, singulair (no allergies, though), Flovent and I already had albuterol inhaler. Nothing has really worked I cough and cough and am out of breath with the slightest activity. Now sensitive to smells, air quality. I made it to a pulmonologist and was prescribed Breo. I am on day 6 and to continue albuterol every 4 hours as needed. I feel no better- still can’t do anything without coughing and struggling to breathe, I cough for an hour when I go to bed. The doctor says I have to wait two more weeks for the medicine to work. I was fine 4 weeks ago! I broke down crying- how can I go on like this? I have 2 kids, I can hardly do anything. Any ideas, input, help would be so appreciated!

  • Kathy P

    Welcome Shadowcat and hugs! Coughing is exhausting! Has your doctor recommended a cough suppressant to calm things down? I tend to cough persistently from post nasal drip from my allergies. But during a flare, I get a deep cough that wears me out. 

    Breo is a "controller" medicine and can take several weeks to know if it's working. 

    Did the doctor check for an infection? Mine usually orders a chest x-ray when things won't clear. 

  • Shadowcat04

    I’ve had 3 chest X-rays over the last 4 weeks, no infection. My last ER visit they did a full check for cardiac issues and pulmonary embolism.  I ended up having a panic attack in the ER, which of course worsened the asthma attack. I had a Z – pack from the doctor in Yellowstone, though, just in case I had a hidden infection. I’ve also been prescribed codeine, mucinex DM and Tessalon Perles by various doctors- none of them really help. The pulmonologist was pretty confident from hearing my cough and breathing that it was an asthma cough. Its not like a chest cough. I just can’t believe I’m supposed to live like this for the foreseeable future. I am very depressed and frustrated and unsure. 

  • Kathy P

    Well it sounds like they checked for everything!

    I totally understand you feeling frustrated and depressed. Anyone would! Flares suck! Sometimes it's just takes time. And that can be really frustrating! Hopefully things will get back on track soon.

    Are there any things that do seem to help? I drink a lot of herbal tea with honey and lemon which helps soothe my throat. The warmth seems to loosen things up. What about steamy showers? Those help for me, but I know for others, the steam / humidity can make it worse. 

  • Shadowcat04

    Thank you for the support. I haven’t found many things that help. The albuterol helps for a little while. Tea helps, but it’s been around 95 degrees here! I’ll try that again. Showers do help, a little. I guess I’m not so good at being patient, either. 

  • Pljohns

    Shadowcat04-WELCOME!  I'm sorry you had a reason to find us but we're glad you did.  Like kathy said, flares are awful and all you want to do it get better.  My old pulmo gave me cough meds because she said when you cough all you do is inflame-made sense to me but anytime I was having a flare, she made sure I had cough med.  A lot of us here are like you-went from being fine to all of a sudden not so much.  It's frustrating and hard to deal with but it does get better-in time.  Being patient is hard but with asthma it's a trait you have to learn-and I speak from experience. Hang in there and I hope you are better soon!

  • Brenda Silvia-Torma

    Shadowcat04, I completely hear (and understand) your frustration!  I went from being healthy 2 months ago to recovering from bronchitis and an asthma attack (on June 6th) and having a second (worse) asthma attack a month later. The aftermath lasted a lot longer than I ever expected. What I've learned in the past 6 weeks is that

    • I'm in really good company–this forum has helped me tremendously! (I'm so glad you found us!)
    • I need to take the QVAR twice a day (I will admit, in the beginning I only took it once a day…or as I remembered. When I learned the "why" behind taking it on schedule, I became very compliant)….although as I write this, I realize that I haven't taken my morning dose yet.   Just did.
    • If I'm going to do anything strenuous, I need to pre-treat with two puffs of albuterol (this includes lifting bags of mulch and going outside if the air quality is bad).
    •  has become the first thing I check in the morning. It tells me if I need to stay indoors or not.
    • It's essential that I become more patient with myself….this is the hardest thing because I  summer…I love being able to cool off in the pool, outdoor concerts, gardening, playing outside, going on vacations…I feel like I'm forced to put my life on hold until the air quality gets better. 

    I'm better off today than I was on June 6th.. For a couple of weeks, I wondered if I'd ever be able to just breathe (and not be focused on each breathe I took).  I have more tools in my toolbox (nebulizer & prednisone in case I need it, Vog mask–in  case I have to go outside and the air quality is yucky, knowledge that it's better to take the albuterol at the first sign of tightness). Hopefully I can prevent some exacerbations (or prevent the intensity of them) and keep moving in the right direction. My allergist changed my diagnosis from intermittent to persistent…that was hard to hear, but I'm hoping that when the weather changes in the fall, that I'll be back to intermittent again.

    I hope that you will soon feel much better!!  Are you home now from your vacation?  Perhaps being able to lay low and see your regular doctor will help you get on track.

  • LK

    Welcome Shadowcat04!  As Pljohns says above, glad you found us but sorry you had to.  I hear you on the feelings of how hard it is to imagine living with this for the rest of our lives.  I would say that all of us here have been depressed at times because of having to deal with living the severe asthma.  I have found so much wonderful support on these forums.  I don't know what I would have done without it.  

    I was diagnosed with severe uncontrolled asthma about 5 1/2 years ago.  I also have acid reflux which is especially bothersome when I lay down to sleep and makes me cough a lot.  My cough aggravates my asthma and vice versa.  Maybe ask your doctor if he/she thinks you may have acid reflux?  It is common to have it and asthma.  

    It is so hard to be patient while waiting for some of the meds to start having an effect.  

    I am on several asthma maintenance meds and the generic Singular, which you mentioned.  You may not know that Singular is also used to treat asthma, not just allergies.  Here is the Mayo Clinic information on it:

    My doctor told me that Singular also takes at least 3-4 weeks to start having an effect.  

    I am sorry you are having such a rough time with your asthma right now.  Please know that it does take weeks and sometimes months for asthmatic lungs like ours to settle down and not be so sensitive.  

  • Shadowcat04

    I’m glad I found this site. I am feeling a little less alone.  I can try some of the cough medicine I was prescribed. I’m working on getting over my disappointment about not being able to do all the things I had planned this summer. I’m a teacher and I really look forward to my summers. This asthma flare has hit me pretty hard physically and emotionally. 

  • dory2005

    Hi Shadowcat04!  I'm a teacher as well, so I know how important summers are for rest and relaxation! I had a bout with pneumonia earlier this summer and have had several severe exacerbations as well, so I've been on the steroid train all summer, and have two more weeks before school starts. It is frustrating not to be able to do everything that you want to, but hopefully, you will be able to get back to your baseline soon. I've had asthma most of my life, but I've had severe persistent asthmas for the last two years, and it has been a complete lifestyle change for me. I hope that your flare subsides soon, and you are able to enjoy the rest of your summer!  

  • Shadowcat04

    Hello Dory! That sounds awful. Everyone really thought I must have had pneumonia, too- even though I never had any other symptoms besides the cough. The other asthma attacks I had were coughing (bronchospasms) that wouldn’t stop. We simply went to urgent care or an ER had a breathing treatment and that was that. My poor doctors now, I always end up crying because after they’ve told me the new thing to try and tell me it’ll maybe work in a couple weeks, I fall apart. I ask them, through tears, when will I be able to breathe again. My PCP is probably dreading my next appointment with him. He did prescribe Prilosec, by the way, so I am taking that, too, in case GERD is part of it. I have anti- anxiety meds, too- but I mostly don’t use those. I’m pretty much a wreck. But, as moms do, I’m trudging forward and driving my 12 and 15 year old to all their appointments and activities, meeting my new principal, planning a couple easy family outings, letting my husband do more work at home, and resting because that does slow the cough and breathing problems down. I’ll drink more tea today. Oh, and I have forbidden my family from talking about the start of school because it sends my stress and depression through the roof. 

  • LK

    Shadowcat,  Sending you some much needed hugs!    

    I so understand the feeling of being so sad hearing about activities that you cannot do right now.  I used to ride and show horses.  Rode every day, went to about one horse show monthly and loved talking about horses, learning about horses and seeing my friends at the horse barn and the horse shows.  It took me most of the winter to come to terms with the fact that many of my triggers are at the barn and at shows so it is wisest for me to avoid those places.  

    All that to ask you if there is a way to reduce your exposure to your triggers?  When I am having a flare my lungs are super sensitive to anything, sometimes even things that wouldn't normally bother me, bother me.

  • Shadowcat04

    Brenda- yes, we are home from the crazy vacation. My asthma flare started June 24- about 2 weeks after yours. When we got home, July 3rd, we were told by my doctor's office to go straight to the ER for a full "work up". Then, on July 5th, I saw my regular doctor. He had diagnosed me with viral induced asthma originally about 10 years ago, but it had never been as severe as this. His appointment wasn't very reassuring, though he tried. I was scared. Then the pulmonologist on July 12th. She diagnosed "mild, intermittent asthma and cough"- this doesn't feel very mild or intermittent to me. I sent her a message yesterday telling her I wasn't better at all. Her message said to wait the two weeks (that will make 6 weeks of what feels like a constant asthma flare). I cried on the phone when her assistant called me. But, I am hearing here that this is how it is and I just need to be patient, use my meds, avoid triggers and eventually it will improve. It's still hard to accept that there isn't something to stop these coughing and breathing attacks that are happening daily, but at least I don't feel alone now and I appreciate all the ideas. I feel a lot less alone. 

    LK- we don't really know what my trigger(s) was/were. I don't have allergies, I've never smoked, the air quality was okay. Maybe I had a virus (but, no upper respiratory symptoms, just a cough and tired) and definitely had stress.  Now smoke, smells and air quality do bother me. So, the pulmonologist said to avoid those. 

    Thanks for the ideas. 

  • Pljohns

    Shadowcat-One thing that a lot of us do is keep an asthma diary-noting things you ate, air quality, how you feel, if you were outside, cleaning house etc.  It has helped me tremendously to determine that weather changes and strong smells in any form are triggers for me as are cold air in my face-either AC or wind.  I have non allergic asthma and all allergy tests came back clean so there are no allergic triggers to avoid and it’s been a challenge to figure out what give me problems and what doesn’t.  In 8 years, we’ve only figured out those few.  I’m OCD about tracking my peak flow and FEV1 numbers-it works for me but not for everyone.  It helps me see-sometimes even before I feel it-that a flare is headed my way and I can start extra meds early to keep it from being really bad.  Stress definitely plays a role in flares for me.  Until 2 years ago, I had a very stressful job, worked close to 60 hrs/week-AND it landed me in the hospital 4 times in a year (3 times in less than 6 months) and 30 days of medical leave.  That was the slap in the face I needed to realize that if I kept my job, it would probably ultimately kill me.  I made the huge decision to change jobs-taking a pay cut but I’ve not been in the hospital since and have only had a couple of bad flares in 2 years.  That was all I needed to realize how much stress hits me.  I’ve gotten better about managing it and not letting things get to me.

    Hang in there-recovering from a flare takes a while-if I get a bad one going, I’m on prednisone for almost 2 months for a taper (I start at 80 mg of prednisone a day).  It’s ugly and I hate it, but that’s what I have to do to get my lungs back in shape.  I got some sort of respiratory illness last January-needed IV steroids but the hospitals were full of flu so they couldn’t admit me.  I am JUST NOW getting numbers back where they should be and feeling mostly OK.  Give it time-I know that is so easy to say and so hard to do-but if nothing else, asthma will teach you that it is in charge of the recovery-you help it with meds, resting etc, but your lungs will recover in their own good time.

  • K8sMom2002

    Hi, Shadowcat! Like Lynn and Lisa have said, so sorry you've had to find us, but so glad you DID find us. 

    My lungs felt like they were on a hair trigger after each of my big exacerbations, so I know how frustrating it is. You just want to take breathing for granted again.

    Figuring out triggers took me a while. Could you keep something like this:

    The "eating/drinking safe foods" and the "touched mouth, nose or eyes" fit our family because we manage food allergies. But if you suffer from reflux, you could track the foods that you are eating to see if they're triggers. 

    And reading about the struggles you and Lisa talk about remind me about how I've struggled with managing my own expectations. I actually started a new thread about it: 

    Maybe I don't have any answers … but I do want to assure you that you are NOT alone.

  • Shadowcat04

    Cynthia and PLJohns- An asthma diary is a good idea, I'll make something tomorrow.   I'm so glad I am not teaching right now.  My job is extremely stressful and active- singing, games, movement, lots of walking. Maybe things will be better in five weeks.

    Thanks again for all the support and ideas.  

  • Linda Gid
    AmyW posted:

    Hi all, I apologize for not updating sooner.  

    I have started using Breo in the morning to see if that helps with the sleeping issues  I have had luck doing this with other medictations (Claritin does the same thing to me!) so we are trying that to see if it helps.  For now everything else is a wait and see game…my body is most likely still adjusting as this will be week three on Breo.  I go back to the doctor to see if it is helping next week and we will go from there.

    I know someone had wondered why I was put on Breo as the first attempt at treatment.  When I went to the doctor my numbers were a bit off the charts…my lungs were functioning more like a 60 year old smoker than a relatively healthy 35 year old non-smoker:-D My inflammation numbers were one of the highest they had ever seen in that office.  So the doctor started me on Breo because my situation was a bit more extreme than a first time patient with asthma.  

    Thanks again for the support and encouragement!

    I had been instructed to take Breo in the AM, never thought about it being a PM med; for me it replaced Symbacourt.    Because my flairs ups can be so long and at times its 9 months out of the year being on IV or oral steroids on top of maint meds, my pulmonary Dr had said to try taking Breo after my first Nebulizer treatment of the day, as it might be more effective.  Its messed up my AM daily med and getting ready schedule, but that's how I take it.   Hope you see improvement with it

  • K8sMom2002

    Very interesting, Linda! That is a great reminder to talk to our doctors about not just how often to take meds, but WHEN during the day to take them. Thanks!

    So what sorts of improvements have you seen after shifting the time you take Breo? And how has it messed up your morning routine? 

  • lynne
    Linda Gid posted:

    I have been on Breo for a year, didn’t have any noticeable side  effects.  However I take many meds, and tollerate most either well or I accept it as it keeps me out the hospital.  

    I didn’t usually hear of it being for mild asthma or as a first maintenance treatment, there are a variety of milder options.  Hope you got success with the Dr 

    What IS a first line?  The doc gave her brio as a first line.  She had phnemonia (sp?) in April, wheezes some, short of breath and coughs and has a lot of respiratory infections.

  • K8sMom2002

    Hi, Lynne … I saw and gave you some links over there … but a question or two … how old is your daughter, and have you guys been to an allergist?

  • lynne
    K8sMom2002 posted:

    Hi, Lynne … I saw and gave you some links over there … but a question or two … how old is your daughter, and have you guys been to an allergist?

    She had 2 allergy tests…one primary and one more detailed.  Nothing there. She's 50. 

  • Brenda Silvia-Torma

    Hi Shadowcat04, I'm so glad you feel less alone–I do too!  The hardest thing for me  is feeling like I cannot make outdoor plans. I seem to go from denial to anger/frustration to sadness…and slowly I'm getting to acceptance. I know it's not a straight path to acceptance, and I fully expect the denial, frustration, sadness to come back during low moments.  It's a grief process–to realize that I need to do things differently.

    It sounds like you will feel the effects of the meds by next week (2 weeks after July 12th)? Do you a have a follow up appointment scheduled to evaluate with your pulmonologist see how things are going and for her to answer any questions you may have?

    Sending hugs and good thoughts to you that you breathe easier in the coming days and weeks.

    Brenda

  • Shadowcat04

    Hi Brenda- Yes, next Thursday will be two weeks on the Breo. The doctor said that it may take longer than that to feel the full effects, but if it doesn’t seem to work by then- the 2 week mark- to let her know. They’ve already called in Symbicort and actually have me checking whether Symbicort, Advair or Dulera is cheapest. I think if the Breo hasn’t worked by then they will switch me to one of those. She said she’ll see me in 3 months, but I can call or email questions concerns and see her sooner if necessary. 

    Not planning or doing outside things is tough for me, too. Any exertion is triggering me. I took my son to a school concert last night that his friend was performing in and I couldn’t stay for the whole thing. 

    My DH is having trouble adjusting, too. He’s been wonderful, but I think he is growing weary of me not wanting to do stuff or leave the house. 

     

  • Melissa G

    How have you been doing the last few days? I know waiting on a medication to work is very frustrating.