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Awake in the middle of the night . . . anyone else up due to breathing issues??

I've been up in the middle of the night the past few nights and was just wondering if anyone else here is up?  (Pretty sure my eyes are not as wide-open as this emoji's!  )  

So the last couple of evenings I didn't use my neb before I went to bed and I've been paying for it.  Waking up a few hours later needing to use it. Try to go back to sleep but I'm pretty awake by the time I'm finished.

That and our weather has been warmer during the day so we've been using the A/C.  At night it cools down so the A/C doesn't come on much and it gets to feeling kind of stuffy.  Not something my lungs like.    

Feel free to join in if you are up!  

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  • K8sMom2002

    Oh, no, Lisa! Hate that you have been up in the middle of the night. Weather changes have done that for me in the past — the change of seasons is always tough on me.

    Could you talk to your doc about the nebs and the problems you've been having?

    Do you have a programmable thermostat? If you find you're waking up at a certain time period because you're warm, you can program your thermostat to drop down briefly right before you're waking up — then come back up to a more usual temp. 

    That's what I had to start doing for my hot flashes. At a certain time period, the temp drops way down for say, thirty minutes, and then I've programmed it to go back up. It really helped!

    Another possibility … how about an air purifier for your bedroom? You might start with the . 

  • Melissa G

    Oh Lisa, that stinks! It drives me crazy when I can't sleep in the middle of the night. I don't want to wake anyone, so I just sit and watch tv quietly or drive myself crazy listing all the things I could be doing but can't since everyone else is sleeping. 

  • Tiffany F.

    its big-time allergy season in most places….  even people who don't have "allergies" most of the year are getting hit with some symptoms locally due to the perfect storm of weather conditions we have been having. Also this darned humidity!  It better not be as bad as it was last year or I will lose my mind  I slept terribly last night because it was too humid to sleep comfortably but yet not hot enough to turn AC on without freezing.  I need to move to somewhere dry like CA or AZ

  • LK

    Cynthia,  That's a good idea to adjust the programmable thermostat.  Thank you!  I do have a air purifier in the bedroom and it does help immensely.  

  • LK
    Melissa G posted:

    I don't want to wake anyone, so I just sit and watch tv quietly or drive myself crazy listing all the things I could be doing but can't since everyone else is sleeping. 

    Melissa,  Exactly!  

  • LK

    Tiffany,  No I don't have a humidity monitor in the bedroom.  Hadn't even thought about something like that.  Sounds like something I need to look into.

    I used to keep the bedroom door open and that kept the room cooler but now with the air purifier I keep the door closed.  Fixed one problem and created another!  

    I hate to turn the A/C down too much.  DH like warm temps when he sleeps.  

  • Pljohns

    I'm right there with you.  I have finally figure out that if I wake up around 2AM, it's always my asthma that woke me up.  Don't know why that time, but it always is-I'm short of breath and tight and gotta love albuteral-by the time you take it and then wait to quit shaking and your heart racing, your so wide awake the rest of the night is a loss.

    We put in a Nest thermostat on our floor and it's got and app for controlling it.  If I get hot, I can roll over and pick up my phone and turn it down a little bit.  It doesn't automatically go back up, but at least I don't have to get up and trudge to the thermostat to turn it down.

  • LK
    Pljohns posted:

    Don't know why that time, but it always is-I'm short of breath and tight and gotta love albuteral-by the time you take it and then wait to quit shaking and your heart racing, your so wide awake the rest of the night is a loss.

     

    Amen to that, Lynn!!  

  • K8sMom2002

    Lisa, (before menopause! ) I used to need to be warm when I slept, and my DH needed to be cool. I still can't sleep if I get too cool. One thing that helped me (and this sounds weird) was to put a pillow on my feet. For whatever reason, the pillow on my feet kept me warm but not hot. I've suggested it to a friend, and he tried it and it worked for him. So maybe you could ask your DH if he's open to trying it?

    Lynn and Melissa, I hear you about racing hearts and racing thoughts! That's why I love to listen to audiobooks or pod casts. I just stick an earbud in one ear and set the sleep timer, and boom, either I'm enjoying a good story or I'm drifting off to sleep.

    Tiffany, hugs on the humidity! That can make it sticky and hard to breathe even when the temp is "low enough." Do you use a dehumidifier? Not looking forward to the muggy southern summer!

  • LK

    Cynthia, Interesting thought about putting a pillow on your feet!  DH is not much for unconventional ideas but I may suggest this one to him!    

    I figured out that I like having a heavy, as in weight not warmth, blanket on me which worked fine in the winter but now . . .  

  • Melissa G

    Lisa, I like a heavy blanket too, but like the temp to be cool in the room. I drive my dh crazy! 

  • Marie E Natzke

    I discovered that as log as I don't eat cold cuts with nitrates in it I don't have a problem with waking yp in the middle of the night having a hard time breathing.

  • Melissa G

    Marie, that is great that you figured out what was causing you to wake up in the middle of the night! 

  • K8sMom2002

    Funny, Lisa, I'm the same way! And so is DH … we recently swapped comforters, and our new one was lighter in weight than our old one … it took some getting used to. The pillow helped, as well as taking our old comforter and using it as a "scarf" of sorts on the end of the bed. 

    Marie, that was good detective work to find what was causing your middle of the night issues! Did you keep a symptom journal or just happen upon that discovery? Whatever way you found it, yay!

  • LK

    Hi Melissa, Thank you for asking!  Actually, I have.  Not sure if it's the warmer weather (so the A/C is on), the second dose of Xolair, the new Incruse (started a few days ago) or getting out more.  I'm thinking that since I wake up more refreshed and it doesn't take my mind as long to get with it in the morning then I am breathing better while I am asleep and therefore sleeping better.

  • LK

    Melissa, Yeah, little things like oxygen sure seem to make a big difference, don't they!!!      

  • K8sMom2002

    I swear, sometimes it's the chicken or egg thing for me … If I don't sleep well one night, my asthma seems worse the next day, and then I don't sleep well because of my asthma the next night. 

    I'm glad you are doing better!

  • LK

    I am wondering . . .  Does our severity of asthma ever settle into a predictable pattern?  Aside from the predictable pattern of being UNpredictable!!  

  • Pljohns

    I would give anything if it would!   Maybe when it's controlled it's more predictable-

  • Verdigirl

    I started taking 1/2 tsp for a week then went up to 1 tsp of Natural Calm Magnesium and it has helped me sleep through the night more often. Available on Amazon.Verdigirl

  • LK

    Verdigirl,  What does your doctor say about any interactions with other medicines you are on?

  • Verdigirl

    Hi Lisa,I was told to take supplements 2 hours away from meds. My doctor is more natural minded so he works with both meds and supplements. If the body is deficient in certain nutrients, the body can't heal as well, the meds take care of the symptoms. Thankfully we have the meds when needed.

    Verdigirl

  • Verdigirl

    It's important to remember when starting a new supplement to take a small amount and work up.  Magnesium dilates and eases lung spasms, relaxing the smooth muscles in the respiratory system. Cooking kills the nutrients in foods, most people are looking for fast foods not dark leafy veggies. Many are low in magnesium, even if blood work shows normal, asthmatics found improvement with supplementation.Verdigirl

  • Pljohns

    I actually use to take magnesium and ala lipoic acid as a migraine preventative because I refused to take any of the hard meds like topomax-it really worked.  I haven't had bad migraines in a few years so I quit taking it.

  • Verdigirl

    So glad to hear it worked for you too. I didn't have headaches but pain from being triggered keeps me up all night sometimes. It's much better now. Verdigirl

  • K8sMom2002

    Verdigirl, sounds like you have worked with your doctor to figure out what works for you and won't interact with your meds — way to go! 

    Lynn, my migraines peaked around the time I started sliding into perimenopause, and they were hormone based. That was a once-a-month torment that I am glad is better. But if I start seeing a spike in migraines again, I'll have to remember to talk to my doc about that. 

    Lisa, are you sleeping better now? Hope so!

  • LK

    Hi Cynthia, Thanks for asking!  Some nights yes, and some nights not so much.  Still needing the inhaler or neb as soon as I get up in the morning.

    A question – The allergist suggested a test for VCD (Vocal Cord Dysfunction) but between their schedule and mine it will be a month before I can get it done at their office.  Would it be a good idea for me to call my pulmo and see if I can get tested at his office earlier?  Assuming his office performs that test.  Thoughts?  I don't know the protocol or if I'd be stepping on one or the other of the doctor's toes.

  • K8sMom2002

    Why not call the allergist and explain your situation and ask if they would mind you checking with your pulmo?

    I don't see how asking would hurt … most of the time my doc has always given her blessing — she'll say, sure, do it however is convenient for you, or something along those lines.

    And not just her … another doc I had, a specialist, needed me to do some fasting bloodwork first thing in the AM two days running. I asked her if I could get it done at home (this was three hours away). She was fine with it, even wrote out the hospital order and told me that a doctor's lab orders were good at any hospital in the state where they are licensed — at least here in Georgia.

  • K8sMom2002

    And wouldn't you know? I think I may have jinxed myself with my "I don't get migraines much anymore." I just realized that I was having a pre-migraine aura …  

    Off to take my meds before it hits. Sometimes if I get it in before the pain starts, it short-circuits the headache. Thank goodness it's Friday!

  • LK

    Thank you for the suggestion, Cynthia.  I will call the allergist on Monday.

    Hope you don't get a full blown migraine and your meds help!