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Anyone heard of …

Anyone familiar with asthmastory.com?

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  • K8sMom2002

    Gigi, I hadn't heard of this. I went and looked at the above link, and I'm skeptical for a number of reasons. 

    • Any time anyone says they're "completely" cured of something, it raises a red alert for me. "Cure" to me means that something is gone and never coming back and you never have to worry about it again. 
    • Long term antibiotics use in this day and age scares the willies out of me. Here's why:
      • The more a person uses antibiotics, the more chance she's likely to develop something called Clostridium difficile [klo–strid–ee–um  dif–uh–seel] (C. difficile) — I know you're in the medical field and you know about c. diff, but others may not. C. diff is hard to treat, can make you very sick and can even kill. 
      • You're much more likely to develop other complications as well — , , candida. 
      • There's more and more research coming down the pike that a — and that it may increase the chances of all manner of autoimmune disorders, . 
      • The super-bug phenomenon is real — and is real. I shudder to think we could wind up in a post-antibiotic world, but we could. 
      • And even if antibiotics don't lead to resistance in an individual's case, I have another reason I avoid antibiotics — my mom. She was extremely ill over the years with lung infections — bronchitis, pneumonia — all of that due to untreated asthma. Doctors would give her one antibiotic after another. She stayed on antibiotics — first one, then another. The reason she had to change? She developed allergies to them. It got to the point that she had very few antibiotics that she could take, and her doctors told her that people who had to take a lot of antibiotics over a long period of time were more likely to develop allergies (I don't know if that's true — that's just what they told her.) So I prefer to save antibiotics for when I absolutely need to call in the cavalry. 
  • K8sMom2002

    I will add this … there comes a point — and it never truly goes away — where I so absolutely want to be rid of what ails me. I have these bad days where I just want a pill or a treatment or a therapy to fix me (or my DD or my dad or my sis). The memory of life BEFORE is so strong and powerful, and I lose all my acceptance, and that makes me so vulnerable to snake oil salesmen and their wares. 

    I'm not saying don't research. I believe in research. I believe in crowd-sourcing knowledge. I'm saying … what am I saying? I'm saying don't let your desperation lead you down an unscientific path. 

  • Jen

    I believe that anything like this is worth a discussion with your doctor.  They can tell you what they know about this.

    • Has it really been proven to work?
    • Would it be appropriate  for you?
    • Their reasoning for all of the above.

     

    All that said, I truly believe that if a cure were out there, particularly one that's supposedly been around for 20 years, we'd know about it by now and it would be in mainstream use.

  • Shea

    Interesting stuff. I wonder what the risks involved are of taking that antibiotic for 12 wks, because the benefit of curing asthma is pretty big. I read what he wrote, but a seconfd opinion would be good. I do not think it would work for mine because I think my asthma is allergic asthma and not related to that bacteria… But azithromiacin is my antibiotic of choice whenever I get sick and need an antibiotic ,i request that one, it agrees with my system the best, and I like its mechanism of action best. I wonder what determines if you have a strong immune system? I also wouldn't be a good candidate due to my prior heart attack. But I am always for talking things over with doctors.

  • K8sMom2002

    Shea, that is a good question: what determines if you have a strong immune system? It might be a good question to pose to your doctor. 

    And you point out that in folks with allergic asthma, it's a bit different. The "allergic" part means that your immune system is trigger happy when it comes to substances that most people's immune systems don't recognize as an invader. 

    Drugs like Xolair that are used in treating allergic asthma actually work to block the body's immune response to allergens. So what does that mean about the body's immune response? It's very confusing to a lay person like me!

    I think there may be a lot more research focusing on the body's immune system in the coming years — it's such a hot topic and shows such promise in so many fields from cancer to food allergies.