Hey guys 😁 so I'm brand new to this group but I'm looking to see if there's other people out here that have also been labeled "untreatable".
I've had asthma for 14 years and while it changes, it never leaves. I've been on dozens of inhalers, daily steroids for years, allergy meds and shots, as well as being tested hundreds of times. It seems they've tested for everything. They've shoved things up my nose, into my stomach, they've scanned my heart and lungs with more machines then I can count. So far, they just call it "unmanagable asthma".
I'm at a point in my life that I'm exhausted. I'm a single mom, I've lost my jobs due to asthma. The doctors all act like I'm crazy, like I shouldn't be so sick because I'm 27. Lately my face and arms have been numb, my head is dizzy, and I'm exhausted. Does anyone else have these problems?
Any advice is greatly appreciated. Today in the ER a doctor told me if I'm not sure my life is threatened from my breathing then I should "get used to it because this is how your life is". I know I can't be the only one that's being ignored and struggling. I just don't know what to do anymore…. sometimes it feels like these drs are just waiting for the big one.