So I've been allergic to milk protein for my entire life. I've had anaphylactic reactions my entire life probably upwards of 50. I generally administer my own epi and then get to the ED for more epi/meds a few hours of monitoring for a biphasic reaction. I've been through it all: intubation, bipap, a record of 5 epi's to stop a reaction, mag, steroids and all the H1 and H2 blockers imaginable. Just in the last half year I've been hospitalized 5 times and none of them were my mistake. I'm very good a doing whats necessary to stay alive and my reaction to the milk is so severe that it only takes a good 5-10 seconds to know – not uncommon but still.
So all the stops have been taken out on how to treat me for intervention and then non-medical related prevention. Very recently though my Allergist and I decided to take a shot in the dark to see if Xolair might be useful for mitigating (in any way) the most severe of the anaphylactic symptoms. My IgE level is 61 IU/ml. So I definitely meet criteria. It's going to be **** trying to get the insurance to cover it but we're going to try.
Has anyone had experience in using Xolair for severe food allergy?