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problem with inflammation throughout my entire body cause unknown.

Something is causing a massive inflammatory response throughout my entire body whenever I'm in certain buildings.

Here is some history on the problem.I'm originally from Texarkana but I moved to Hot Springs last year.

I really noticed the problem about 5 to 6 years ago when I still lived in Texarkana. The first time I noticed it was when I moved into Medicaid Run Apartments inside the city itself. Before then I lived out in the country where this issue did not even occur.

After I moved to Hot Springs the problem got like 10 to 30 times worse whenever I'm inside certain buildings or houses. Including the house I'm currently living in.

One of the places where I went was where I attended day treatment for mental health. At first I was having the inflammatory response there but at first it wasn't really that bad but after a few months of being there it got much much worse whenever I went inside the building.

One room in the building in particular was where most of the inflammatory response took place.

Which was the day treatment room. In the morning when we first get to day treatment we would go to a bigger room where we would be served breakfast but once I entered the day treatment room that's where I really got struck by the inflammation. It eventually got so bad that I had to go home really early a lot of the time and then one day after I entered the day treatment room the inflammation hit me like a ton of bricks it was so bad that I wanted to pass out but couldn't and after that day I just stopped going.

So after that day I just stayed at my brother's house which is where I was living after I moved to Hot Springs the problem didn't get much better. But at least I was able to lay in bed and use ice packs and pain meds and they helped it somewhat but I was constantly having to take laxatives to have bowel movements with any regularity. This inflammatory response affected my entire body including my gut. I was able to digest food but for some reason I just couldn't pass anything and when I did pass a stool. Lets see how can I put this whatever I ate in the last few days would come out really well digested in other words. I had very loose stools most of the time when I was able to have them.This next section is unimportant to the reason why I'm writing this post. It is just a side note that tells why I moved to my parents house.*********************************The reason I moved to my parents house was that my brother apparently thought it was a good idea to invite an ex-convict to live in our house that been in prison previously for 20 years for stabbing someone with a knife. Because his girlfriend had kicked him out of their apartment and his ex-girlfriend was still legally my brother's wife but they were separated. the reason he broke up with my brother's wife his ex-girlfriend was because she said something that offended him and apparently he beat the crap out of her well technically she is a piece of crap as well and he is a powder keg that can go off over the smallest thing.

Don't get me wrong I was stronger than either one of them but due to the amount of pain and discomfort I was in most of the time I didn't feel like doing anything about it but there's also the fact that I'm a nonviolent person to the point that being in the presence of violence disgusts me.

************************************

After I moved to my parents house the problem still persists to this very day as long as I inside the house.

Whenever I am not in any building or structure that would cause it I feel much better very quickly and I stay better as long as I am outside. But the inflammatory response comes back almost immediately after I go back inside my house or any other structure where this issue can occur.

Some structures cause this issue and some do not. Unfortunately the house I currently live in is one of them. If I try to sleep inside my house I always wake up with a severe headache in the middle of the night.

The only correlations I can make at this time between the day Treatment Center day treatment room, my brother's house, and the house I currently live in. Is that they all have carpet inside them and people who smoke or who haved smoked inside them.

Now the house I currently live in is my parents house and I'm the only one staying in it now because my parents live in another house a short distance from Hot Springs. So I have the house to myself virtually all of the time I just pay rent and clean up after myself.

So right now I can't go inside the house because it triggers a massive inflammatory response and the pain and discomfort that comes with it.

Sorry for any grammatical errors but I'm just desperate to find out what is going on with my body.

Feel free to ask any questions and I will answer them to the best of my abilitys.

Also I don't know if this is relevant but I have a few small patches of dry skin on my body constantly.

 

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Comments 18

  • electronicalchemist

     I don't know if this is relevant at my brother's place there was always four or five dogs in the house and before I moved into my parents house there was always three dogs in the house but there was no dogs  at the day Treatment Center except for when someone brought a service dog when they had an appointment but that was a rare occurrence.

     

     Not sure of the relevance but I thought I'd post this  additional bit of information.

  • Melissa G

    Hi and Welcome to AAFA Electronicalchemist! 

    Wow, you have been through a lot. When you say you have a "massive inflammatory response", what exactly is going on?

    What doctors have you been to to treat this? 

  • Shea

    Hi elecyronicalchemist, 

    Im really sorry to hear about all you have been going through. I first became really ill in my late 20s and it took me a while to figure it out too and was the worst!

    I was diagnosed with a rare chronic allergic disease called Churg-Strauss Syndrome that causes allergic blood cells called eosinophils to cause bodily inflammatory damage to my blood vessels, lungs (causing asthma), skin, intestines, heart (caused a heart attack at age 28) and other vital organs, and the underlying trigger for me personally was dog dander. I am severely allergic to it and was chronically exposed to it because it was in my living environment. The dander is hard to get out of a place even after the animal has been removed (oftentimes you will have to replace old carpet and hire people to wash the walls and air vents) o ended up moving into a brand new mobile home since and have been doing much better. I was diagnosed with the disease at the hospital by heart biopsy after the heart attack– but if I had been referred to an immunologist or allergist beforehand I might have prevented it. I had abnormally high eosinophils in CBC labs and tested positive to dog and cat dander on skin prick test. My life was near end and they had to aggressively treat me in tbe hospital with high dose prednisone and mild chemo medications to get the inflammation under control. After my diagnosis, I still had (have) flare ups of the disease– usually in my lungs with asthma is the first thing but now I have inhalers that help that and so I have to watch my other symptoms and I avoid any indoor place where dogs reside or regularly visit and dander can build up bevause it makes my whol allergic disease flare up. I found studies about dander and how it sticks on peoples clothing and shoes. The biggest and most famous study had to do with preschoolers who had more cat owners in their classroom. They had worse allergies, asthma, needed more medications, and had worse prognosis. 

    I recommend a visit with an immunologist because they can test you for both allergy skin prick test, but also other blood tests to identify any rare immunological diseases, and breathing tests for the lungs to find out where the inflammation is, what is triggering it, and the best treatment method to get it under control (may involve medications you both agree on and/or lifestyle changes or both). Knowing what is going on is a HUGE relief.

  • K8sMom2002

    Welcome, Electronicalchemist! You have been through quite a bit! I'm sorry that you got sick with something else when you were trying hard to get treatment for another chronic disorder! 

    I have the same questions that Melissa did … what kind of symptoms are you experiencing with this inflammation? And what sort of doctors have you seen?

    Like Shea said, an allergist/immunologist can help you figure out if you are having some sort of allergic issue or a problem with your immune system. If it is widespread pain, another specialist that might help would be a rheumatologist. 

    Since it happens in some houses or buildings but not others, I do wonder if it has to do with indoor air quality. 

    AAFA has some great tips on . Maybe you could try some of them in your home and see if that helps?

  • Shea

    That's great– at the very least it will help narrow some things down. In the meantime some of the stuff from the link K8SMOM posted might help you improve the indoor air quality and reduce allergens in your bedroom especially (since thats where you sleep).

    Two things I do are:

    1- I purchased a HEPA air purifier (mine is a germ guardian brand), and

    2- weekly washing of bedding in hot water

    And Im sorry about that chaos that led you back to moving in at your parents– I wouldn't want to live with people with a violent history either. 

    Good luck at your appt, and let us know how it goes!

  • electronicalchemist

     also also there's the fact theres the fact that the company that makes jenno brand ground turkey did a recall for 75000 pounds of ground turkey in the form of the 1 pound rolls of ground turkey. They issued the recall because some of the ground turkey they sent to stores in october was  contaminated with salmonella and the ground turkey I have been eating  since October was been part of this recall.

    Now I wonder if I need to get a doctor's appointment to get my self checked for salmonella poisoning.

    One thing I'm sure about is I will never buy any Jennie-O Brand Product again ever.

  • electronicalchemist

     I just looked up the symptoms of salmonella poisoning and it's almost a near-perfect match for what I've been going through for the last 4 or 5 months.

  • electronicalchemist

    New update.

    I've found that combining acetaminophen with straight black coffee seems to relieve most or all of the pain I've been experiencing. And the effect is almost instant. Either one alone does almost nothing.

     I don't know why this even works but I'm glad that it does.

     

    Anyone know what this could be an indication of?

     I've taken this combination before but never intentionally. I just happen to be drinking coffee right after I took acetaminophen. I just never made the connection before.

     

     

     

  • electronicalchemist

    Also I think low blood glucose levels could have something to do with my problem as well. If I go too long without eating something I eventually get a headache usually a bad headache.I can never sleep all the way through the night. Some nights I just wake up feeling weak and sick but it seems like a little less than half of the time. When I wake up during the middle of the night I have a very severe headache.here's some additional information:I used to take psych meds until a few months ago. But I was forced to take myself off of them because eventually it got to where I couldn't take them anymore because every time I took them I experienced very severe pain in my gut. It was getting to the point that I had to stay in bed for more than half the day every time I took them.

  • electronicalchemist

    One question I should be asking is what is different about the environment in and around hot springs and the environment in and around Texarkana because I did not have this problem until right after I moved to Hot Springs?

    Is there something really obvious that I'm not getting about this area?

  • Brenda Silvia-Torma
    electronicalchemist posted:

     I just looked up the symptoms of salmonella poisoning and it's almost a near-perfect match for what I've been going through for the last 4 or 5 months.

    Wow!! You should definitely inquire about that at your doctor's appt. I just found a list of questions from the that someone can ask their doctor when inquiring about salmonella poisoning. You may have seen this in your symptom search, but I thought it might be helpful to you as you prepare for your allergist appt next month (or if you schedule an appt with a primary care provider in between). I hope you feel better soon!

    Brenda