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Is there a place on here to learn forum basics? Such as how can I tell if I've already read a post? Thank you from a newbie!

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  • Kathy P

    Welcome JennaLu. We don't have a tutorial like that… but thanks for letting us know that would be helpful! What type of tips would you find useful?

    You can use the "Activity" tab and customize that for topics you interact on. 

  • JennaLu

    Thank you for your reply. I'm glad I found this site as I'm wanting to learn more about my asthma/allergies. The info here is wonderful! I find myself reading threads I've already read so I was hoping for some way to mark as read. I'll check out the activity tab. Thanks again! 

  • Melissa G

    Hi JennaLu! Welcome to the AAFA forums! So glad that you found us! 

    Here is a great free online . The videos are short, but you learn a lot. 

    Is there anything specific you want to learn about?

    If you need anything, don't hesitate to ask! 

  • Shea

    Hi JennaLu– you can use the "search" function if you remember part of the title of the thread.

  • JennaLu

    @Melissa G, I haven't been on for a few days but I am getting the hang of it. I'm in South GA and my ETD is ridiculously bad. I'm keeping a food and weather diary now. ENT prescribed Astelin on top of allergy shots, Allegra, and Flonase. I'm pretty sure it gave me a headache. I'm at my wits end. Trying to learn from everyone here. 

  • Melissa G

    Oh my Jennalu, sounds like you have been having a rough time. Is the Astelin helping? Yikes on getting a headache. Have you called to check in with your doctor lately?

    Hi @Sinead! Welcome to the AAFA forums! Is there anything I can help you with?

  • K8sMom2002

    Waving to another Georgian, Jennalu! I'm also from south Georgia … the weather in Georgia lately has been totally ridiculous … going from warm enough for shorts (at least for my DD) to so cold even my hot-natured DD is looking through her closets for warm sweaters.

    Welcome, Sinead! You'll find an amazing community of folks here! 

  • JennaLu

    Waving back @K8sMom2002, I'm in Savannah! The weather lately….GAH!

    @Sinead, I've learned a lot. It's a lot to take in. I've had allergies all my life and childhood asthma but just recently diagnosed with asthma again and allergies (or something) are really kicking my butt. 

    @Melissa G, I actually went to the ENT last week and a second opinion later today. I only used the Astelin over the weekend. I'm not sure if it works yet. My allergy/asthma doc wanted me to go to a neuro for the headaches but I am strongly convinced that these headaches are related to my eustachian tube/nose issues. At the ENT I found out I have GERD which can affect the ear and asthma so I'm just a bit overwhelmed. Also, enlarged turbinates. He wants to do turbinate surgery and ET dilation in the spring after I lose some weight…..Things are GREAT lol but at least I'm finally taking care of myself. 

  • Brenda Silvia-Torma

    Hi Jennalu, welcome to the forums! Keep us posted on how your appointment goes later on today…is the second opinion with another ENT or with an allergist or pulmonologist?

    Brenda

  • JennaLu

    @Brenda Silvia-Torma, it's with another ENT. It was pre-scheduled and I kept it as I'm curious to see how similar their diagnoses are. I learned a lot from the first ENT such as acid reflux can cause headache and ear pain. I think a lot of what I was frustrated about (hoarseness, drainage, headache) can also be due to acid reflux which I didn't know I had until the ENT last week. I was thinking my allergy treatment wasn't effective including the wonderful shots I'm on year 3 of. My allergy doctor is an allergist/immunologist and I feel he is effectively treating my asthma. My next step would probably be a gastrointerologist and maybe neurologist. I haven't felt the need to go to a pulmonologist yet as my asthma is under good control with Arniuty Elipta. My first step is lose 50 pounds and significant diet changes. I've started that process. If anything will finally get me to lose weight, it's this. I started regularly working out about 6 months ago but haven't changed my diet much. 

     

     

  • K8sMom2002

    JennaLu, I do love Savannah! My sis has a beach house on Tybee, but it's not often we get to go down there. 

    Still … the weather … the humidity … my family is about an hour and a half northwest of you, so we share a lot of the same weather. Absolutely no way to figure out which way the temp is gonna go!

    I hope the new ENT can help!

  • JennaLu

    So the first ENT said acid reflux, ETD, and recommended surgery to dilate ET and something about turbinate reduction. He prescribed Asteline. ENT yesterday said I have something called Cochlear Hydrops which is like the baby of Meniere's Disease. He seemed very concerned and sure of himself and he is one of the best here in town apparently. I was diagnosed with ETD in 2006 and have been thinking the allergy treatment should be helping with that. To say I'm confused and frustrated is an understatement. Both ENT's think the headache part is migraine so I'm off to neurologist tomorrow. I definitely need allergy treatment…I'm allergic to a lot. But now thinking that this ear/head thing is totally unrelated. I'm going to start with the low sodium diet, no caff, no alcohol, as that's the easiest change to make. And go from there….GAH!

  • JennaLu

    He said I was misdiagnosed with ETD in 2006 and have had Cochlear Hydrops this whole time. I don't know what to believe.

  • JennaLu

    Hi, Melissa G. Thank you for checking in. I'm still trying to get to the bottom of my inner ear issue. Last night I had one of my wonderful headaches. The pine and maybe oak pollen here in Savannah is nuts already. I have been keeping a diary re: headaches and food for over a month now and I think my headaches are hormonal so that's good. Neurologist is thinking not migraine so that's great news. I've always thought they were allergy related. I've been mainly sticking to low sodium diet which seems to help my dizziness/ear fullness so that leads me to think the CH/MD diagnosis is correct. I get hearing testing done next week to further pin that down. Asthma is under good control with just one med each night. I will say that from all of my research on all of this, I'm considering doing the auto immune protocol (AIP) diet for 30 days to see how I feel and how my ear responds. I believe many of us allergic-types are reacting to certain foods with inflammation which is causing or exacerbating our symptoms. My work is busy right now (tax season) but I'll post updates on my findings from that. Thanks again!

  • Melissa G

    Jenna, that is great that journaling has helped you potentially figure out some issues. 

    Good luck on your hearing test and the tax season! Keep us updated!